DementiaRoadmap

Helping primary care to support people with dementia

About the Roadmap

The Dementia Roadmap provides high quality information about the dementia journey alongside local information about services, support groups and care pathways to assist primary care staff to more effectively support people with dementia and cognitive impairment, their families and carers. Find out how to get a Roadmap in your local area

Choose your local Dementia Roadmap


Latest groups

  • Join Dementia ResearchJoin Dementia Research forms part of the Governments Dementia strategy and is a service that delivers opportunities for people to see what studies are taking place both in their local area and nationally and connecting researchers with them.
  • Admiral Nurse Dementia HelplineThe Admiral Nurse Dementia Helpline is for anyone with a question or concern about dementia. From looking out for the first symptoms of Alzheimer’s, to understanding the challenges of living with someone with vascular dementia, Admiral Nurses have the knowledge and experience to understand the situation and suggest answers that might be hard to find elsewhere.
  • Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.
  • Dementia AdventureDementia Adventure is a registered charity dedicated to supporting people with dementia to get outdoors, connect with nature, themselves and their community, and retain a sense of adventure in their lives.
  • Race Against DementiaRace Against Dementia is an alliance of groups currently providing information and support to people from Black, Asian and minority ethnic communities in the UK.
  • House of MemoriesHouse of Memories is an award-winning training programme, run by the Museum of Liverpool, which targets the carers of people living with dementia. It provides participants with information about dementia and equips them with the practical skills and knowledge to facilitate a positive quality of life experience for people living with dementia.
  • Playlist for LifeBeing able to respond to music is the one thing dementia cannot destroy. Playlist for Life encourages families and caregivers to create a playlist of personally meaningful music on an iPod for people with dementia.
  • Engage & CreateEngage & Create is a not-for-profit organisation that uses creativity and conversation to improve the quality of life for people with dementia and those that care for them.
  • Ladder to the MoonLadder to the Moon provides workforce and service development that enables health and care organisations to develop active, creative, vibrant care services. It uses approaches that incorporate creativity and the arts, and involve staff, older people living with dementia and other long-term conditions, and the wider community.
  • ThriveThrive is the leading charity in the UK using gardening to change the lives of disabled people. Thrive run structured programmes of activities for people with dementia which focus on positive reminiscence, re-connecting with others including friends and family and gentle appropriate exercise and cognitive stimulation
  • Health Education EnglandHealth Education England (HEE) works across England to deliver high quality education and training for a better health and healthcare workforce.
  • HealthwatchHealthwatch England is the national consumer champion in health and care. We have significant statutory powers to ensure the voice of the consumer is strengthened and heard by those who commission, deliver and regulate health and care services.
  • RevitaliseRevitalise is a national charity providing short breaks and holidays (respite care) for disabled people and carers. We also offer inspirational opportunities for volunteers through one of the largest, most diverse volunteer programmes in the UK.
  • The ExtraCare Charitable TrustThe ExtraCare Charitable Trust is a not for profit developer and operator of ExtraCare Villages and Housing schemes which has retirement villages and housing schemes across the Midlands and North. ExtraCare's award-winning Enriched Opportunities Programme® (EOP) supports residents with dementia and dementia-related conditions.
  • Arts 4 DementiaArts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers.
  • The Reading AgencyThe Reading Agency is a charity working to inspire more people to read more, encourage them to share their enjoyment of reading and celebrate the difference that reading makes to all our lives.
  • All-Party Parliamentary Group on Dementia (APPG)The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.
  • Dementia Engagement and Empowerment Project (DEEP)The Dementia Engagement and Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia.
  • Innovations in DementiaInnovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals to develop and test projects that will enhance the lives of people with dementia.
  • The Reader OrganisationThe Reader Organisation is a charitable social enterprise working to connect people with literature through shared reading. The older people and dementia work programme uses shared reading to improve quality of life and care for people living with dementia and their carers.
  • Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.
  • Cognitive neurology and dementia centreThe Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.
  • Carersmart: Making life a little easier for carers Offers, benefits and discounts available exclusively for carers and people with care needs
  • YoungDementia UKYoungDementia UK is a charity based in Oxfordshire that aims to help people whose lives are affected by young onset dementia.
  • The Imperial Memory UnitThe Imperial Memory Unit within Charing Cross Hospital offers patients access to the latest treatments for memory disorders through participation in clinical trials and research.
  • Sporting Memories NetworkThe Sporting Memories Network, also known as Replay, is a national charity which promotes the use of sporting memories to improve the wellbeing of older people and to tackle dementia, depression and social isolation.
  • Dementia Action AllianceThe Dementia Action Alliance brings together organisations across England committed to transforming the lives of people with dementia and their carers.
  • Faculty for the Psychology of Older PeopleThe Faculty for the Psychology of Older People (FPoP), formely known as PSIGE, is part of the British Psychological Society's Division of Clinical Psychology. It works to encourage the exchange of information, ideas and expertise about psychological approaches with older people.
  • British Institute of Learning DisabilitiesBritish Institute of Learning Disabilities (BILD) wants people with learning disabilities to be valued equally, participate fully in their communities and be treated with dignity and respect.
  • British Heart FoundationThe British Heart Foundation is a UK charity leading the fight against coronary heart disease funding pioneering research to transform the lives of people living with heart and circulatory conditions.
  • Diabetes UKDiabetes UK is a leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes.
  • Self Management UKSelf Management UK provide support and advice for people living with a long term health condition, such as asthma, diabetes, heart disease, COPD, arthritis and chronic pain.
  • Dementia Research CentreThe Dementia Research Centre, based at the National Hospital for Neurology and Neurosurgery, is one of the UK's leading centres for clinical research into dementia.
  • Bradford Dementia GroupBradford Dementia Group is a multi-disciplinary, multi-professional group committed to making a difference to policy and practice in dementia care, through excellence in research, education and training.
  • Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.
  • Disabled Living FoundationThe Disabled Living Foundation (DLF) is a national charity providing impartial advice, information and training on independent living.
  • National Council for Palliative CareThe National Council for Palliative Care (NCPC) is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.
  • Gold Standards Framework CentreThe National Gold Standards Framework (GSF) Centre in End of Life Care is the national training and coordinating centre for all GSF programmes, enabling generalist frontline staff to provide a gold standard of care for people nearing the end of life.
  • Employers for CarersEmployers for Carers provides practical, ‘hands-on’, help to employers to support carers in their workforce.
  • Short Breaks NetworkThe Short Breaks Network is the national co-ordinating body for the short break sector in the UK, providing short breaks for disabled children, young people and their families.
  • Bladder and Bowel CommunityThe Bladder and Bowel Community is the UK wide charity for people with bladder and bowel control problems. It provides information and support services, including a confidential helpline, for anyone affected by these conditions as well as their families, carers and healthcare professionals.
  • Foundation for People with Learning DisabilitiesThe Foundation for People with Learning Disabilities influences government and local authority policies and services so that they better meet the needs of people with learning disabilities, their families and carers.
  • The National Valuing Families ForumThe National Valuing Families Forum brings together a network of regional family carer organisations to consult and feed into government policy and legislation affecting those with learning disabilities and their families.
  • Marie Curie Cancer CareMarie Curie Cancer Care is a UK charity dedicated to the care of people with terminal illnesses.
  • Macmillan Cancer SupportMacmillan Cancer Support is a national charitable organisation that provides practical, medical and financial support and push for better cancer care.
  • Foundation for Assistive TechnologyThe Foundation for Assistive Technology aims to develop a thriving market in equipment that promotes independent living and meets the real needs of disabled and older people.
  • Assist UKAssist UK leads a UK wide network of locally-situated Disabled Living Centres. Most centres include a permanent exhibition of products and equipment that provide people with opportunities to see and try products and equipment to support them to live independently.
  • Carers DirectCarers Direct offer a helpline for carers that need help with their caring role and want to talk to someone about what options are available to them.
  • Carers UKCarers UK is a national membership charity for carers, that is both a support network and a movement for change.
  • Carers TrustCarers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.
  • The Disabled Parents NetworkThe Disabled Parents Network is a National network of Disabled Parents, helping each other and bringing about change for disabled people who are parents or who hope to become parents, their families, friends and supporters.
  • Driver and Vehicle Licensing Agency (DVLA)The Driver and Vehicle Licensing Agency (DVLA) maintain registers of drivers and vehicles in Great Britain. It is important that practitioners encourage their patients with dementia to inform the DVLA of their diagnosis.
  • The Dementia Training CentreThe Dementia Training Centre offers a range of courses from face to face training programmes, tailored to the meet the needs of your organisation, free e-learning packages designed by experts, to a Master’s degree offering specialist dementia training.
  • Parkinson’s UKParkinsonism is a feature associated with some dementias, particularly Parkinson's dementia and dementia with Lewy bodies. Parkinson's UK offers support for patients and carers, including excellent advice on coping with daily activities.
  • Lewy Body SocietyThe Lewy Body Society is a charity which aims to raise awareness of Dementia with Lewy bodies for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease.
  • Alzheimer’s Research UKAlzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias.
  • Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.