DementiaRoadmap

Helping primary care to support people with dementia

Diagnosing well

Diagnosing dementia is often difficult, particularly in the early stages. The GP is usually the first person who is  consulted either by the person themselves or their family. The GP may then refer the person being diagnosed to a consultant for specialist assessment.

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  • DeAR-GP (Dementia Assessment Referral to GP)April 1 2016DeAR–GP, developed by the South London Health Innovation Network, is a simple paper based case-finding tool which has been designed for use by care workers to identify people who are showing signs of dementia.
  • 10 key steps to improving timely diagnosis: A resource pack for Commissioners and General PracticesJanuary 29 2014This resource pack sets out key steps for Commissioners, and key steps for General Practices to improve the diagnosis of dementia, and the diagnosis pathway.
  • Dementia Atlas: Putting a focus on dementiaAugust 16 2016The Dementia Atlas is an interactive map that plots data about dementia care and support, allowing people to compare the quality of dementia care across the country.
  • Dementia READ codesDecember 5 2012This knowledge summary produced by Dementia Partnerships defines a standard set of READ codes for the diagnosis of dementia to be used by general practices and memory assessment services.
  • Helping you to assess cognition: A practical toolkit for cliniciansMarch 12 2013This toolkit published by the Alzheimer's Society provides guidance to clinicians about what cognitive function tests are available and how they may be used in clinical practice.
  • Prevalence of dementia in population groups by protected characteristics: a systematic review of the literatureOctober 2 2015This literature review published by Public Health England examines evidence on how the prevalence of dementia varies with different characteristics, such as ethnicity, gender and religion.
  • Prime Minister’s Challenge on Dementia 2020 Implementation PlanMarch 6 2016This implementation plan outlines how the 50 commitments set out in the Prime Minister’s challenge on dementia 2020 will be met, ensuring that England becomes the world-leader in dementia care, research and awareness by 2020.
  • Models of dementia assessment and diagnosis: Indicative cost reviewSeptember 28 2015This report published by NHS England is designed to provide commissioners and service providers with detailed information about real alternative models of dementia assessment and diagnosis, with a cost breakdown.
  • DiADeM (Diagnosis of Advanced Dementia Mandate in Care Homes)April 14 2016This protocol developed by the Yorkshire and Humber Dementia Strategic Clinical Network aims to support GPs to diagnose dementia for people living with advanced dementia in a care home setting.
  • Younger people with dementiaMay 19 2015This factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
  • Dementia and People with Intellectual Disabilities: Guidance on their Assessment, Diagnosis, Interventions and SupportApril 29 2015This guidance published by the British Psychological Society aims to promote effective and timely assessment, diagnosis, interventions and support to people with intellectual disabilities who develop dementia.
  • The dementia profileMarch 1 2016The dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform.
  • Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • CMG48: Support for commissioning of dementia careApril 3 2013This guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
  • Unlocking Diagnosis: The key to improving the lives of people with dementiaJuly 4 2012This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
  • The Sound Doctor: Getting the best out of life with dementiaMarch 23 2015A series of films providing information to families living with dementia through the entertaining medium of TV/Film.
  • Six Item Cognitive Impairment TestMay 12 2014The Six Item Cognitive Impairment Test (6CIT) is a brief cognitive function test which takes less than five minutes and is widely used in primary care settings.
  • Dementia: A state of the nation report on dementia care and support in EnglandNovember 29 2013This report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
  • Frontotemporal dementiaAugust 6 2013This article published in the British Medical Journal highlights some of the issues pertinent to Frontotemporal dementia, a clinically and pathologically heterogeneous group of non-Alzheimer dementias characterised collectively by relatively selective, progressive atrophy involving the frontal or temporal lobes, or both.
  • Putting dementia on the mapNovember 29 2013Putting dementia on the map published by the Department of Health draws on data and information about dementia health and care, dementia friendly communities and research.
  • Abbreviated mental test scoreMay 12 2014The Abbreviated mental test score (AMTS) was developed in 1972 for assessing cognition. The test takes around five minutes and is widely used, particularly in UK general hospital settings.
  • Building on the National Dementia Strategy: Change, progress and prioritiesJuly 27 2014This report published by the All Party Parliamentary Party Group on Dementia (APPG) calls for a new long term strategy for dementia to be a worthy successor to the National Dementia Strategy for Dementia in England and the Prime Minister's challenge on dementia.
  • State of Care 2013/14October 16 2014This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
  • Improving services and support for people with dementiaJuly 3 2007This report published by the National Audit Office presents findings from a study into the health and social care services available for people with dementia and their unpaid carers in England and whether they are providing effective and good quality support; and the scope for better use of resources against a background of rising demand.
  • NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careMarch 1 2011This guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
  • Mini-CogMay 12 2014The Mini-Cog is a brief cognitive function test to screen for cognitive impairment in older adults in the primary care setting.
  • Addenbrookes cognitive examination-IIIThe Addenbrooke's Cognitive Examination-III (ACE) is one of the most popular and commonly used cognitive tests used in dementia clinics and in the assessment of other neurological disorders.
  • Dementia Revealed: What primary care needs to knowOctober 30 2014This toolkit written by Dr Elizabeth Barrett is intended as an educational resource for use by GPs and practice nurses to expand their knowledge and confidence.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Referral for a diagnosisApril 7 2014This leaflet produced by the Lewy Body Society highlights the importance of practitioners identifying the main symptoms of Lewy body dementia early to enable referral to a specialist at a memory clinic for correct diagnosis to be made.
  • Montreal cognitive assessmentMay 12 2014The Montreal Cognitive Assessment (MoCA) is a rapid screening instrument for mild cognitive dysfunction suitable for use in primary care settings.
  • Dementia Prevalence CalculatorApril 30 2013The Dementia Prevalence Calculator presents an opportunity for all health communities to gain a better understanding of their local estimated prevalence of dementia in the community, and among people living in local care homes.
  • Dementia diagnosis resource packJanuary 17 2013This resource pack produced by Dementia Partnerships sets out key steps for Commissioners and General Practices to improve the diagnosis of dementia, and diagnosis pathways.
  • ACEmobileMay 13 2014ACEmobile is a mobile-friendly version of the Addenbrooke’s Cognitive Examination (ACE-III), a popular and commonly-used screening tools for dementia.
  • Dementia assessment and referral 2014-15October 28 2014This data collection reports on the number and proportion of patients aged 75 and over admitted as an emergency for more than 72 hours who have been identified as potentially having dementia, who are appropriately assessed and, where appropriate, referred on to specialist services in England.
  • Services for younger people with Alzheimer’s disease and other dementiasMarch 18 2006This briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer's Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.
  • General practitioner assessment of cognitionMay 12 2014The General practitioner assessment of cognition (GPCOG) is a reliable, valid and efficient tool to use to screen for dementia in primary care settings for people with carers.
  • Enhanced service for people with dementia in primary careSeptember 30 2013This short paper by Alistair Burns and Laurence Buckman summarises a multi-disciplinary group discussion on how the Enhanced Service might be optimally used to increase the numbers of people receiving a diagnosis and accessing post diagnostic support.
  • Guidance on the use of neuro-imaging in the assessment of dementia in Primary CareSeptember 12 2013This guidance for Clinical Commissioning Groups and Health and Wellbeing Boards covers the role of neuro-imaging in the assessment and diagnosis of dementia in primary care.
  • Dementia coding clean-up exerciseMay 13 2013This exercise devised by Dr Paul Russell aims to support GPs to identify problems in coding, which are contributing to low rates of dementia diagnosis on practice registers.
  • Five Year Forward ViewOctober 23 2014The Five Year Forward View published by NHS England sets out why the NHS needs to change and various models of care which could be provided in the future to deliver transformed care for patients.
  • Guidance and standards for diagnosing dementiaMarch 10 2012This guidance sets out the process and associated standards for making a diagnosis of dementia in primary health care services, and by specialist memory assessment services.
  • Care of people with dementia in primary careThis factsheet published by the Royal College of General Practitioners provides GPs with guidance on the care of people with dementia in primary care.
  • Dementia commissioning for quality and innovationDementia commissioning for quality and innovation (CQUIN) aims to help identify patients with dementia and other causes of cognitive impairment, alongside their other medical conditions and to prompt appropriate referral and follow up after they leave hospital.
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Groups

  • All-Party Parliamentary Group on Dementia (APPG)The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.House of Commons, London, SW1A 0AA
  • Lewy Body SocietyThe Lewy Body Society is a charity which aims to raise awareness of Dementia with Lewy bodies for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease.Hudson House, 8 Albany Street, Edinburgh EH1 3QB, United Kingdom0131 473 2385
  • Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.Devon House, 58 St Katharine's Way, London, E1W 1LB020 7423 3500
  • Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA020 7697 4160
  • Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.Iris Murdoch Building, University of Stirling, Stirling, FK9 4LA, Scotland01786 467740
  • Alzheimer’s Research UKAlzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias. 3 Riverside, Granta Park, Cambridge, CB21 6AD0300 111 5555
  • Faculty for the Psychology of Older PeopleThe Faculty for the Psychology of Older People (FPoP), formely known as PSIGE, is part of the British Psychological Society's Division of Clinical Psychology. It works to encourage the exchange of information, ideas and expertise about psychological approaches with older people.St Andrews House, 48 Princess Road East, Leicester, LE1 7DR0116 252 9515
  • Cognitive neurology and dementia centreThe Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.St George's Hospital, Blackshaw Road, London, SW17 0QT