DementiaRoadmap

Helping primary care to support people with dementia

Preventing well

This section provides details of groups and resources related to the prevention of dementia, ensuring that the risk of people developing dementia is minimised.

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Resources
Groups

Resources

  • Dementia core skills education and training frameworkOctober 29 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • Dementia Atlas: Putting a focus on dementiaAugust 16 2016The Dementia Atlas is an interactive map that plots data about dementia care and support, allowing people to compare the quality of dementia care across the country.
  • World Alzheimer Report 2015: The Global Impact of DementiaAugust 25 2015The World Alzheimer Report 2015, 'The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends' makes key recommendations to provide a global framework for action on dementia.
  • Approaching an unthinkable future – Understanding the support needs of people living with young onset dementiaOctober 7 2015This report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015.
  • Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onsetOctober 22 2015This guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life.
  • Prime Minister’s Challenge on Dementia 2020 Implementation PlanMarch 6 2016This implementation plan outlines how the 50 commitments set out in the Prime Minister’s challenge on dementia 2020 will be met, ensuring that England becomes the world-leader in dementia care, research and awareness by 2020.
  • The Daily SparkleFebruary 8 2016The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • Health matters: midlife approaches to reduce dementia riskApril 12 2016This guidance published by Public Health England makes the case for action in midlife to promote healthy lifestyles that can reduce the risk of dementia.
  • Support and care for people living with dementia from minority communitiesFebruary 24 2013This report outlines recommendations to improve support and care for people with dementia from minority communities in the North East.
  • Women and Dementia: A global research overviewJune 5 2015This report published by Alzheimer’s Disease International explores the main issues affecting women in relation to dementia from an international perspective.
  • Can dementia be prevented?February 16 2014These web pages on the NHS Choices portal give advice on leading a healthy lifestyle to help lower your risk of developing dementia when you are older.
  • Younger people with dementiaMay 19 2015This factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
  • The dementia profileMarch 1 2016The dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform.
  • Living with young onset dementiaJune 10 2015This video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.
  • Dementia awareness resource packApril 10 2011This pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.
  • Are you worried about Dementia?April 7 2014This leaflet produced by the Lewy Body Society explains the main symptoms and causes of dementia. It also outlines the distinct symptoms associated with Lewy body dementia.
  • Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • CMG48: Support for commissioning of dementia careApril 3 2013This guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
  • Information about Lewy Body DementiaApril 27 2015This handbook published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.
  • Unlocking Diagnosis: The key to improving the lives of people with dementiaJuly 4 2012This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
  • Moving and walking aboutJune 20 2012This Alzheimer's Society factsheet explains some of the reasons why a person with dementia may walk about and looks at what you can do to help.
  • Drugs used to relieve behavioural and psychological symptoms in dementiaJanuary 20 2012This factsheet produced by the Alzheimer’s Society explores the different types of drugs that can be used to treat these symptoms if non-pharmalogical treatments have not worked.
  • New models of care for dementiaApril 9 2012This report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
  • Award in Understanding DementiaMarch 18 2015The Alzheimer's Society and the Royal Society for Public Health have joined forces to create a new qualification to help people understand more about dementia.
  • What is dementia?April 2 2014This resource will help practitioners to understand that dementia is more than just difficulties with memory. Dementia is not a single disease but a term used to describe a group of symptoms.
  • Women’s experiences of dementiaJune 1 2015The 'Women's experiences of dementia' website contains a wealth of stories which highlight the experiences of women affected by dementia.
  • How common is dementia?April 6 2014According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.
  • Improving Dementia Education and Awareness (IDEA)October 13 2013This online resource managed by the University of Nottingham is aimed at improving the care and quality of life for people with dementia.
  • Blackfriars Consensus on promoting brain healthMay 3 2014The Blackfriars Consensus, published by the UK Health Forum and Public Health England, explores the potential for incorporation of dementia risk reduction into current approaches for non-communicable diseases.
  • NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careMarch 1 2011This guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
  • Dementia Revealed: What primary care needs to knowOctober 30 2014This toolkit written by Dr Elizabeth Barrett is intended as an educational resource for use by GPs and practice nurses to expand their knowledge and confidence.
  • Frontotemporal dementiaAugust 6 2013This article published in the British Medical Journal highlights some of the issues pertinent to Frontotemporal dementia, a clinically and pathologically heterogeneous group of non-Alzheimer dementias characterised collectively by relatively selective, progressive atrophy involving the frontal or temporal lobes, or both.
  • The Sound Doctor: Getting the best out of life with dementiaMarch 23 2015A series of films providing information to families living with dementia through the entertaining medium of TV/Film.
  • What causes dementia?April 6 2014Dementia is the result of brain cells being damaged in an ongoing way. This happens as a result of a number of different diseases (sometimes referred to as ‘types’ of dementia). It is not an inevitable part of ageing.
  • Dementia and aggressive behaviourMay 20 2013This factsheet produced by the Alzheimer's Society aims to aid understanding about what may cause this type of behaviour and offers some ways to deal with it.
  • Windows of opportunity for prevention and early intervention in dementia toolkitMarch 24 2011This online resource, produced by the Social Care Institute for Excellence, will help commissioners and providers to ensure that any help or support offered at any stage in a person’s journey with dementia is offered in a timely way.
  • Sight, perception and hallucinations in dementiaOctober 20 2012This Alzheimer's Society factsheet considers some specific difficulties that people with dementia can have with sight, perception and hallucinations, and suggests ways to support them.
  • What is vascular dementia?December 7 2011Vascular dementia is the second most common form of dementia after Alzheimer's disease. This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for vascular dementia.
  • Am I at risk of developing dementia?January 16 2014This factsheet published by the Alzheimer's Society explains what we know about the risks associated with developing different types of dementia, and gives some advice on the steps people can take to reduce their risk.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • What is Alzheimer’s disease?March 7 2012Alzheimer's disease is the most common cause of dementia, affecting around 496,000 people in the UK. This Alzheimer's Society factsheet outlines the symptoms and risk factors for Alzheimer's disease, and describes what treatments are currently available.
  • The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesJuly 4 2011This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
  • Dementia e-learning sessionsAugust 26 2013An interactive e-learning resource to support the training of all health and social care staff in recognising, assessing, and managing dementia, and providing high quality dementia care.
  • A practical guide to healthy ageingOctober 1 2015This guide published by NHS England and Age UK contains advice to help improve the health and general fitness of people of any age, but it is particularly relevant for people who are about 70 years or older.
  • Ten tips for communicating with a person with dementiaSeptember 8 2012These top tips produced by the Family Caregiver Alliance will help practitioners and those caring for a person with dementia to improve communication skills and ability to handle the difficult behaviour.
  • What is dementia with Lewy bodies (DLB)?June 7 2013This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for Dementia with Lewy bodies (DLB).
  • Be head strongMarch 16 2014This guidance published by the Alzheimer's Society contains tips to help people reduce the risk of developing dementia.
  • Unusual behaviourNovember 29 2010This factsheet produced by the Alzheimer’s Society outlines some typical sorts of unusual behaviour in people with dementia and explains some common causes.
  • Services for younger people with Alzheimer’s disease and other dementiasMarch 18 2006This briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer's Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.
  • Enhanced service for people with dementia in primary careSeptember 30 2013This short paper by Alistair Burns and Laurence Buckman summarises a multi-disciplinary group discussion on how the Enhanced Service might be optimally used to increase the numbers of people receiving a diagnosis and accessing post diagnostic support.
  • Understanding and respecting the person with dementiaNovember 29 2010This factsheet produced by the Alzheimer’s Society explores ways that carers can help people living with dementia to feel valued and good about themselves.
  • World Alzheimer Report 2014, Dementia and Risk ReductionSeptember 16 2014The World Alzheimer Report 2014, Dementia and Risk Reduction: An analysis of protective and modifiable factors critically examines the evidence for the existence of modifiable risk factors for dementia.
  • The later stages of dementiaMarch 7 2012During the later stages of dementia most people will become increasingly frail due to the progression of the illness. They will also gradually become dependent on others for all of their care.
  • Women and dementia: A marginalised majorityMarch 8 2015This report published by Alzheimer's Research UK reveals that dementia has become the leading cause of death among British women and that women are far more likely to end up as carers of those with dementia than men, suffering physical and emotional stress and job losses in the process.
  • Delivering major improvements in dementia care and research by 2015: A report of progressNovember 8 2012This report by the three Champion Groups leading the Prime Minister's challenge on dementia provides an update on progress since the launch of the Challenge in March 2012.
  • Care of people with dementia in primary careMarch 10 2012This factsheet published by the Royal College of General Practitioners provides GPs with guidance on the care of people with dementia in primary care.
  • Listen, talk, connect: Communicating with people living with dementiaSeptember 5 2014This handbook published by Care UK is a guide to support carers relatives and friends who want to communicate effectively with someone living with dementia.
  • Wearing glasses with dementia factsheetNovember 10 2014This factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
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Groups

  • Health Education EnglandHealth Education England (HEE) works across England to deliver high quality education and training for a better health and healthcare workforce.1st Floor, Blenheim House, Duncombe Street, Leeds, LS1 4PL
  • HealthwatchHealthwatch England is the national consumer champion in health and care. We have significant statutory powers to ensure the voice of the consumer is strengthened and heard by those who commission, deliver and regulate health and care services.Skipton House, 80 London Road, London, SE1 6LH03000 683 000
  • Admiral Nursing DIRECTAdmiral Nursing DIRECT is a telephone and email helpline run by experienced Admiral Nurses for family and professional carers, people with dementia and those worried about their memory. 2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA0845 257 9406
  • All-Party Parliamentary Group on Dementia (APPG)The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.House of Commons, London, SW1A 0AA
  • Lewy Body SocietyThe Lewy Body Society is a charity which aims to raise awareness of Dementia with Lewy bodies for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease.Hudson House, 8 Albany Street, Edinburgh EH1 3QB, United Kingdom0131 473 2385
  • Innovations in DementiaInnovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals to develop and test projects that will enhance the lives of people with dementia.PO Box 616, Exeter, EX1 9JB01392 420076
  • Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA020 7697 4160
  • Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.Devon House, 58 St Katharine's Way, London, E1W 1LB020 7423 3500
  • Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.Iris Murdoch Building, University of Stirling, Stirling, FK9 4LA, Scotland01786 467740
  • Alzheimer’s Research UKAlzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias. 3 Riverside, Granta Park, Cambridge, CB21 6AD0300 111 5555
  • Faculty for the Psychology of Older PeopleThe Faculty for the Psychology of Older People (FPoP), formely known as PSIGE, is part of the British Psychological Society's Division of Clinical Psychology. It works to encourage the exchange of information, ideas and expertise about psychological approaches with older people.St Andrews House, 48 Princess Road East, Leicester, LE1 7DR0116 252 9515
  • The Dementia Training CentreThe Dementia Training Centre offers a range of courses from face to face training programmes, tailored to the meet the needs of your organisation, free e-learning packages designed by experts, to a Master’s degree offering specialist dementia training.115 Denmark Hill, London, SE5 8AZ020 7848 0508
  • YoungDementia UKYoungDementia UK is a charity based in Oxfordshire that aims to help people whose lives are affected by young onset dementia.PO Box 315, Witney, Oxfordshire, OX28 1ZN01993 776295
  • Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.Bushbury Triangle Resource Centre, 74 Stanley Road, Wolverhampton, WV10 9EL01902 556630
  • Cognitive neurology and dementia centreThe Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.St George's Hospital, Blackshaw Road, London, SW17 0QT
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