DementiaRoadmap

Helping primary care to support people with dementia

Worried about your memory

For anyone concerned about their own, or someone else’s memory, it is important to visit their GP or to seek help from relevant local organisations e.g. Alzheimer’s society, Wellbeing Centre.

GPs and primary health care teams are often the first port of call for people worried about their memory, and are a gateway to timely diagnosis and interventions. Dementia is progressive so it is important to obtain a diagnosis and understand about the support and treatments that are available to stabilise / improve symptoms that start affecting day to day life. The GP will carry out an initial assessment and may refer to a consultant for further specialist assessment either in primary care or a memory clinic.

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Resources

  • Dementia core skills education and training frameworkOctober 29 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • World Alzheimer Report 2015: The Global Impact of DementiaAugust 25 2015The World Alzheimer Report 2015, 'The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends' makes key recommendations to provide a global framework for action on dementia.
  • Approaching an unthinkable future – Understanding the support needs of people living with young onset dementiaOctober 7 2015This report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015.
  • Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onsetOctober 22 2015This guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life.
  • Prime Minister’s Challenge on Dementia 2020 Implementation PlanMarch 6 2016This implementation plan outlines how the 50 commitments set out in the Prime Minister’s challenge on dementia 2020 will be met, ensuring that England becomes the world-leader in dementia care, research and awareness by 2020.
  • The Daily SparkleFebruary 8 2016The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • Health matters: midlife approaches to reduce dementia riskApril 12 2016This guidance published by Public Health England makes the case for action in midlife to promote healthy lifestyles that can reduce the risk of dementia.
  • Support and care for people living with dementia from minority communitiesFebruary 24 2013This report outlines recommendations to improve support and care for people with dementia from minority communities in the North East.
  • Younger people with dementiaMay 19 2015This factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
  • Can dementia be prevented?February 16 2014These web pages on the NHS Choices portal give advice on leading a healthy lifestyle to help lower your risk of developing dementia when you are older.
  • The dementia profileMarch 1 2016The dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform.
  • Living with young onset dementiaJune 10 2015This video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.
  • Dementia awareness resource packApril 10 2011This pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.
  • Are you worried about Dementia?April 7 2014This leaflet produced by the Lewy Body Society explains the main symptoms and causes of dementia. It also outlines the distinct symptoms associated with Lewy body dementia.
  • Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • Unlocking Diagnosis: The key to improving the lives of people with dementiaJuly 4 2012This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
  • Drugs used to relieve behavioural and psychological symptoms in dementiaJanuary 20 2012This factsheet produced by the Alzheimer’s Society explores the different types of drugs that can be used to treat these symptoms if non-pharmalogical treatments have not worked.
  • How common is dementia?April 6 2014According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.
  • NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careMarch 1 2011This guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
  • Frontotemporal dementiaAugust 6 2013This article published in the British Medical Journal highlights some of the issues pertinent to Frontotemporal dementia, a clinically and pathologically heterogeneous group of non-Alzheimer dementias characterised collectively by relatively selective, progressive atrophy involving the frontal or temporal lobes, or both.
  • The Sound Doctor: Getting the best out of life with dementiaMarch 23 2015A series of films providing information to families living with dementia through the entertaining medium of TV/Film.
  • Windows of opportunity for prevention and early intervention in dementia toolkitMarch 24 2011This online resource, produced by the Social Care Institute for Excellence, will help commissioners and providers to ensure that any help or support offered at any stage in a person’s journey with dementia is offered in a timely way.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesJuly 4 2011This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
  • A practical guide to healthy ageingOctober 1 2015This guide published by NHS England and Age UK contains advice to help improve the health and general fitness of people of any age, but it is particularly relevant for people who are about 70 years or older.
  • Be head strongMarch 16 2014This guidance published by the Alzheimer's Society contains tips to help people reduce the risk of developing dementia.
  • Am I at risk of developing dementia?January 16 2014This factsheet published by the Alzheimer's Society explains what we know about the risks associated with developing different types of dementia, and gives some advice on the steps people can take to reduce their risk.
  • World Alzheimer Report 2014, Dementia and Risk ReductionSeptember 16 2014The World Alzheimer Report 2014, Dementia and Risk Reduction: An analysis of protective and modifiable factors critically examines the evidence for the existence of modifiable risk factors for dementia.
  • Services for younger people with Alzheimer’s disease and other dementiasMarch 18 2006This briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer's Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.
  • Wearing glasses with dementia factsheetNovember 10 2014This factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
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Groups

  • Health Education EnglandHealth Education England (HEE) works across England to deliver high quality education and training for a better health and healthcare workforce.1st Floor, Blenheim House, Duncombe Street, Leeds, LS1 4PL
  • HealthwatchHealthwatch England is the national consumer champion in health and care. We have significant statutory powers to ensure the voice of the consumer is strengthened and heard by those who commission, deliver and regulate health and care services.Skipton House, 80 London Road, London, SE1 6LH03000 683 000
  • Admiral Nursing DIRECTAdmiral Nursing DIRECT is a telephone and email helpline run by experienced Admiral Nurses for family and professional carers, people with dementia and those worried about their memory. 2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA0845 257 9406
  • All-Party Parliamentary Group on Dementia (APPG)The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.House of Commons, London, SW1A 0AA
  • Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.Devon House, 58 St Katharine's Way, London, E1W 1LB020 7423 3500
  • Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA020 7697 4160
  • Alzheimer’s Research UKAlzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias. 3 Riverside, Granta Park, Cambridge, CB21 6AD0300 111 5555
  • Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.Iris Murdoch Building, University of Stirling, Stirling, FK9 4LA, Scotland01786 467740
  • Faculty for the Psychology of Older PeopleThe Faculty for the Psychology of Older People (FPoP), formely known as PSIGE, is part of the British Psychological Society's Division of Clinical Psychology. It works to encourage the exchange of information, ideas and expertise about psychological approaches with older people.St Andrews House, 48 Princess Road East, Leicester, LE1 7DR0116 252 9515
  • YoungDementia UKYoungDementia UK is a charity based in Oxfordshire that aims to help people whose lives are affected by young onset dementia.PO Box 315, Witney, Oxfordshire, OX28 1ZN01993 776295
  • Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.Bushbury Triangle Resource Centre, 74 Stanley Road, Wolverhampton, WV10 9EL01902 556630
  • Cognitive neurology and dementia centreThe Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.St George's Hospital, Blackshaw Road, London, SW17 0QT
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