DementiaRoadmap

Helping primary care to support people with dementia

At home

Continuing to remain independent is important to most people.

Support can be provided to enable people to live at home, this may include domiciliary support, support with personal care, adaptions adjustments and equipment.

Advice on these can be obtained from the local authority, a Dementia Advisor or Age UK.

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Resources
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Resources

  • Dementia core skills education and training frameworkOctober 29 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • Active Minds – dementia activity resourcesFebruary 15 2016Active Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.
  • The Daily SparkleFebruary 8 2016The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • How living with dementia could beSeptember 2 2016This short animated video highlights how living with dementia could be through the 'well pathway for dementia'. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local community settings.
  • Making your home dementia friendlyOctober 20 2015This booklet published by the Alzheimer's Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing.
  • Dementia and homecare: driving quality and innovationOctober 22 2015This report published by the United Kingdom Homecare Association demonstrates how skilled homecare can play a pivotal role in enabling people with dementia to live well in their preferred familiar environment. Through a series of innovative practice examples, the report shows why good homecare should ...
  • Tailored resource for carers and care providers on supporting people to live well with dementiaSeptember 16 2015This resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
  • Assistive technology – devices to help with everyday livingAugust 12 2013This factsheet published by the Alzheimer's Society explores technological developments that can help make life easier for people with dementia and their carers in certain situations.
  • Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • New models of care for dementiaApril 9 2012This report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
  • Find me good careOctober 23 2012This website developed by the Social Care Institute for Excellence (SCIE) is designed to help people find the right care and support to suit their needs and lifestyle, whether at a time of crisis or as they plan for the future.
  • The Care Bill: factsheetsJanuary 10 2014These factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Journey of Caring: An analysis of long-term care for dementiaSeptember 19 2013This report published by Alzheimer’s Disease International highlights the importance of helping people with dementia to remain independent and living in their own homes as part of the local community for as long as possible.
  • Telehealth and Telecare AwareJuly 11 2014This online information portal provides a news and information service for people interested in telecare and telehealth.
  • State of Care 2013/14October 16 2014This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
  • The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesJuly 4 2011This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
  • AT DementiaMarch 13 2014AT Dementia is web-based information resource on assistive technologies (including telecare) for people with dementia.
  • Dementia-friendly technology charterJune 23 2014The Dementia-friendly technology charter gives people with dementia and their carers information on how to access technology. It also provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs.
  • Dementia: Finding housing solutionsMay 7 2013This report, published by the National Housing Federation, highlights how good housing and related services can impact positively on the lives of people with dementia, from delaying more intensive forms of care to preventing admission and readmission to hospital.
  • Support, Stay, Save: care and support of people with dementia in their own homesApril 4 2011This report provides evidence from over 2,000 carers, people with dementia and home care workers on the aspirations, experiences and outcomes of providing dementia care in the community in England, Wales and Northern Ireland.
  • Supporting people with dementia at homeJanuary 14 2013This training resource published by the Alzheimer’s Society aims to help homecare workers provide excellent person centred support for people with dementia who are living at home.
  • Making your home a better place to live with dementiaJune 9 2014This briefing published by Care and Repair England outlines how people might adapt their homes to help better manage the symptoms associatted with dementia.
  • Understanding out of hospital dementia careMay 10 2011This report, published by Healthcare at Home, explores home-based models of care that will keep people with dementia out of hospital.
  • Case for change – Communities for people living with dementiaNovember 28 2011This document explains the evidence that has been used in designing the service to support people with dementia, whether living at home or in care homes, as well as dementia-specific elements of other Communities.
  • Personalisation and dementia: a practitioner’s guide to self-directed support for people living with dementiaThis guide to personalisation and dementia has been written for, and with input from, people living with dementia, their families and friends, and the practitioners who support them.
  • Service specification for dementia: better care at home, and in care homesJuly 28 2011This specification has been designed to support primary care in the assessment and management of people with problematic symptoms of dementia or other complex presentations living at home, in a care home or other residential setting.
  • Commissioning domiciliary care for people with dementia and their carersNovember 28 2009The purpose of this paper is to assist commissioners in ensuring that homecare for people with dementia is appropriate to their needs and/or the needs of their carers.
  • Dementia Friendly Housing CharterMarch 27 2017This toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.
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Groups

  • Assist UKAssist UK leads a UK wide network of locally-situated Disabled Living Centres. Most centres include a permanent exhibition of products and equipment that provide people with opportunities to see and try products and equipment to support them to live independently.Redbank House, 4 St Chad's Street, Manchester, M8 8QA0161 850 9757
  • Disabled Living FoundationThe Disabled Living Foundation (DLF) is a national charity providing impartial advice, information and training on independent living.Landmark House, Hammersmith Bridge Road, London, W6 9EJ0300 999 0004
  • Ladder to the MoonLadder to the Moon provides workforce and service development that enables health and care organisations to develop active, creative, vibrant care services. It uses approaches that incorporate creativity and the arts, and involve staff, older people living with dementia and other long-term conditions, and the wider community.Studio 522, Highgate Studios, 53-79 Highgate Road, London, NW5 1TL0203 784 9649
  • Foundation for Assistive TechnologyThe Foundation for Assistive Technology aims to develop a thriving market in equipment that promotes independent living and meets the real needs of disabled and older people. 302 Tower Bridge Business Centre, 46-48 East Smithfield, London, E1W 1AW0300 330 1430