Helping primary care to support people with dementia


It is important for clinicians to look for other physical illnesses or co-morbidities on an ongoing basis, so that they can be effectively managed as well as the dementia.

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  • Dementia rarely travels alone: living with dementia and other conditionsApril 20 2016This report published by the All Party Parliamentary Group (APPG) on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people.
  • Dementia and comorbidities: Ensuring parity of careApril 14 2016This report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year.
  • Cataracts and dementia factsheetJune 25 2013The information in this factsheet will help people in with both dementia and sight loss and how to help someone with dementia cope with surgery.
  • Eye examinations for people with dementia factsheetNovember 10 2014This factsheet provides information on eye examinations for people with dementia. It will be useful for people with dementia, their families, carers and professionals.
  • ICD deactivation at the end of life: Principles and practiceSeptember 30 2013Designed for any health professionals involved in caring for patients with an Implantable Cardioverter Defibrillator (ICD), this document discusses issues relating to ICDs in the management of advanced heart disease.
  • Dementia and People with Intellectual Disabilities: Guidance on their Assessment, Diagnosis, Interventions and SupportApril 29 2015This guidance published by the British Psychological Society aims to promote effective and timely assessment, diagnosis, interventions and support to people with intellectual disabilities who develop dementia.
  • What about me? Remembering the needs of carersJuly 29 2010This short leaflet published by Marie Curie Cancer Care is a good starting point for anyone working in health, social care or other setting who is likely to come into contact with people approaching the end of life and their carers.
  • Continence Product AdvisorJune 25 2014The Continence Product Advisor is a website providing evidence-based guidance on how to select appropriate products for managing incontinence and use them effectively.
  • Cancer Delivery Support ToolJune 17 2014The Cancer Delivery Support Tool developed by Macmillan Cancer Support is an electronic support tool to assist GPs and Health Professionals to make an early diagnosis of five types of cancer: Oesophageal, Pancreatic, Ovarian, Colorectal and Lung.
  • Diabetes care pathwayOctober 14 2013This NICE care pathway defines clinical best practice for diabetes care. It covers managing type 1 and type 2 diabetes.
  • Better care for older peopleJuly 11 2014This online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.
  • National Diabetes AuditSeptember 29 2014The National Diabetes Audit (NDA) is a major national clinical audit, which measures the effectiveness of diabetes healthcare against NICE Clinical Guidelines and NICE Quality Standards, in England and Wales.
  • Diabetes in adults quality standardMarch 14 2011This NICE quality standard defines clinical best practice for diabetes care. It provides specific, concise quality statements, measures and audience descriptors to provide patients and the public, health and social care professionals, commissioners and service providers with definitions of high-quality care.
  • Cancer information factsheetsJune 17 2014These factsheets published by Macmillan Cancer Support cover a variety of topics relating to cancer, such as chemotherapy drugs, less common cancer types and practical issues for cancer care professionals.
  • Improving the delivery of adult diabetes care through integrationOctober 10 2014This report published by Diabetes UK explains how diabetes care can be improved to achieve better outcomes for people with diabetes. The challenge for commissioners and healthcare providers locally is to make the system work to support that.
  • Taking medication ‘just like that’October 13 2012This campaign led by the British Heart Foundation (BHF) aimed to remind people how vital heart medicines and raise awareness that millions of people could be putting their lives in danger by not taking their medicines as prescribed.
  • Guidance for Learning Disability Partnership BoardsJune 18 2013This booklet offers guidance to Learning Disability Partnership Boards to help them ensure that carers of people with learning disabilities, and carers with learning disabilities are supported and involved in local service developments which affect their lives, and the lives of the people they care for.
  • A proposal for a UK dementia eye care pathwayJune 11 2015This article published in the journal Optometry in Practice introduces a proposal for a UK dementia eye care pathway and outlines the areas that should be covered within a pathway.
  • 10 Top Tips for supporting carers of people living with cancerDecember 12 2014This guidance produced by Macmillan Cancer Support offers some top tips for primary care practitoners to support carers of people living with cancer.
  • Diabetes and your heartMarch 11 2010This booklet is for people who have diabetes, and for their families and friends. It may also be useful if you don’t have diabetes but you have been told you may develop it in the future.
  • Best practice for commissioning diabetes servicesMarch 14 2013This guidance published by Diabetes UK aims to help commissioners understand the nature of integrated diabetes care, why it is so important and to provide a signpost to other documents that will be of help in the commissioning process.
  • Improving cancer patient experience: A top tips guideJune 17 2014This guide published by Macmillan Cancer Support provides top tips to support professionals make service improvements in response to the National Cancer Survey and deliver improved patient experience.
  • Improving the quality of cancer care in primary careThis toolkit developed by Macmillan Cancer Support aims to support the primary care professionals to develop initiatives and programmes which have a positive impact on the care of people daiagnosed with cancer, their families and carers.
  • Diabetes Risk ScoreSeptember 29 2013The Diabetes Risk Score is an assessment tool which aims to identify individuals with impaired glucose regulation (IGR) and is designed to predict an individual’s risk of developing Type 2 diabetes within the next ten years. It was developed by University of Leicester and University Hospitals of Leicester NHS Trust in collaboration with Diabetes UK.
  • Implementing local diabetes networksJanuary 14 2013Implementing Local Diabetes Networks, published by Diabetes UK, is for commissioners to explain the importance and composition of a local diabetes network.
  • Diabetes care planning reviewMarch 12 2014Practitioners should provide an annual care planning review to all people with diabetes to ensure that each patient gets the right support for managing their diabetes. This short film produced by Diabetes UK aims to help patients to understand what care planning is, and how they can get more involved in their diabetes care.
  • Duty to Care? Supporting and involving unpaid carers of people at the end of lifeJune 1 2014This resource covers the three plenary discussion sessions at the ‘Duty to Care?' conference held in 2013 facilitated by the National Council for Palliative Care. Three detailed scenarios were debated to help identify and explore the practical issues involved in being or supporting a carer.
  • Echocardiography guidelines for valve quantificationApril 1 2011This poster contains guidelines for echocardiography valve quantification developed by the Education Committee of the British Society of Echocardiography.
  • Cardiovascular Disease Outcomes StrategyMarch 29 2013This outcomes strategy published by the Department of Health identifies ten key actions for local authority and NHS commissioners and providers to deliver improvements in patient outcomes.
  • Life After Death: Six steps to improve support in bereavementJanuary 30 2014This briefing paper published by the National Council for Palliative Care identifies six steps to address bereavement as a major public policy issue.
  • Wearing glasses with dementia factsheetNovember 10 2014This factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
  • Supporting Family Carers of People with Learning DisabilitiesSeptember 18 2009This resource pack produced by the Foundation for People with Learning Disabilities and the Sharing Caring Project at Sheffield Mencap supports practitioners to develop and provide the best information and support to family carers of people with learning disabilities.
  • Thinking Ahead: a planning guide for familiesOctober 18 2013This guidance, published by the Foundation for People with Learning Disabilities, provides a clear framework to help the families of people with learning disabilities plan for the future and address the concerns they have.
  • Diabetes sample service specificationAugust 14 2014The service specification, published by NHS England, outlines the provision of high quality care for all those with diabetes. It describes all the services needed to provide a complete care pathway for people with diabetes.
  • Dementia and People with Learning DisabilitiesSeptember 18 2009This document jointly published by the Royal College of Psychiatrists and the British Psychological Society provides guidance on the assessment, diagnosis, treatment and support of people with learning disabilities who develop dementia.
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  • Marie Curie Cancer CareMarie Curie Cancer Care is a UK charity dedicated to the care of people with terminal illnesses.89 Albert Embankment, London, SE1 7TP0800 716 146
  • Parkinson’s UKParkinsonism is a feature associated with some dementias, particularly Parkinson's dementia and dementia with Lewy bodies. Parkinson's UK offers support for patients and carers, including excellent advice on coping with daily activities.215 Vauxhall Bridge Road, London, SW1V 1EJ0808 800 0303
  • Macmillan Cancer SupportMacmillan Cancer Support is a national charitable organisation that provides practical, medical and financial support and push for better cancer care.Macmillan Cancer Support, 89 Albert Embankment, London, SE1 7UQ0808 808 0000
  • British Heart FoundationThe British Heart Foundation is a UK charity leading the fight against coronary heart disease funding pioneering research to transform the lives of people living with heart and circulatory conditions.Greater London House, 180 Hampstead Road, London, NW1 7AW020 7554 0000
  • Self Management UKSelf Management UK provide support and advice for people living with a long term health condition, such as asthma, diabetes, heart disease, COPD, arthritis and chronic pain.32-36 Loman Street, London SE1, United Kingdom03333 445 840
  • Foundation for People with Learning DisabilitiesThe Foundation for People with Learning Disabilities influences government and local authority policies and services so that they better meet the needs of people with learning disabilities, their families and carers.1st Floor, Colechurch House, 1 London Bridge Walk, London, SE1 2SX020 7803 1100
  • Bladder and Bowel FoundationThe Bladder and Bowel Foundation is the UK wide charity for people with bladder and bowel control problems. It provides information and support services, including a confidential helpline, for anyone affected by these conditions as well as their families, carers and healthcare professionals. SATRA Innovation Park, Rockingham Road, Kettering, Northants, NN16 9JH0845 345 0165
  • Diabetes UKDiabetes UK is a leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes.Macleod House, 10 Parkway, London, NW1 7AA0345 123 2399
  • The National Valuing Families ForumThe National Valuing Families Forum brings together a network of regional family carer organisations to consult and feed into government policy and legislation affecting those with learning disabilities and their families.32-36 Loman Street, London, SE1 0EH
  • British Institute of Learning DisabilitiesBritish Institute of Learning Disabilities (BILD) wants people with learning disabilities to be valued equally, participate fully in their communities and be treated with dignity and respect.Birmingham Research Park, 97 Vincent Drive, Edgbaston, Birmingham, B15 2SQ0121 415 6960