DementiaRoadmap

Helping primary care to support people with dementia

Buckinghamshire Dementia Roadmap

The Buckinghamshire Dementia Roadmap provides high quality information about the dementia journey alongside local information about services, support groups and care pathways.

The content on the Roadmap is organised into topics to reflect the Well Pathway for Dementia, developed by NHS England. The main topics of the Well Pathway include: Preventing well, Diagnosing well, Supporting well, Living well, Dying well, Caring well and an Underpinning topic containing sub topics that cut across the pathway. Each main topic contains sub topics and each topic page provides access to a collection of useful resources and support groups that are relevant to that topic.

In addition to browsing through the topics we offer a range of tools to help you find what you need:

If you would like us to include information about a local group, initiative or service that you are involved with on the Roadmap, please use this form to tell us more about it. We would like to hear your views about our Roadmap. Please spare a few minutes to complete our brief feedback form.

Topics

Preventing wellThis section provides details of groups and resources related to the prevention of dementia, ensuring that the risk of people developing…

Diagnosing wellDiagnosing dementia is often difficult, particularly in the early stages. The GP is usually the first person who is consulted either…

Supporting wellWhen someone is diagnosed with dementia, they should be supported to remain as independent as possible, and to continue to enjoy their…

Living wellMany people are happier if they can remain independent and in their own homes as long as possible. It is important for clinicians to…

Dying wellWhen someone is diagnosed with dementia, they should be encouraged to remain as independent as possible, and to continue to enjoy their…

Caring wellGPs and the primary care team can provide carers with invaluable support, advice and information. For example, they can provide information…

UnderpinningThis section contains details of groups and resources relevant to several topics that underpin the well pathway for dementia, such…

Popular Resources

Dementia: assessment, management and support for people living with dementia and their carersThis NICE guideline covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia.

10 key steps to improving timely diagnosis: A resource pack for Commissioners and General PracticesThis resource pack sets out key steps for Commissioners, and key steps for General Practices to improve the diagnosis of dementia, and the diagnosis pathway.

Dementia Atlas: Putting a focus on dementiaThe Dementia Atlas is an interactive map that plots data about dementia care and support, allowing people to compare the quality of dementia care across the country.

World Alzheimer Report 2015: The Global Impact of DementiaThe World Alzheimer Report 2015, 'The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends' makes key recommendations to provide a global framework for action on dementia.

Dementia READ codesThis knowledge summary produced by Dementia Partnerships defines a standard set of READ codes for the diagnosis of dementia to be used by general practices and memory assessment services.

Active Minds – dementia activity resourcesActive Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.

Helping your loved one with dementia eat wellThis infographic published by Bupa UK offers some pointers for carers and relatives on how to help people with dementia to eat well so that they remain healthy and can continue to remain independent in their own home.

Helping you to assess cognition: A practical toolkit for cliniciansThis toolkit published by the Alzheimer's Society provides guidance to clinicians about what cognitive function tests are available and how they may be used in clinical practice.

Accessible Information StandardThe Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.

Prime Minister’s Challenge on Dementia 2020 Implementation PlanThis implementation plan outlines how the 50 commitments set out in the Prime Minister’s challenge on dementia 2020 will be met, ensuring that England becomes the world-leader in dementia care, research and awareness by 2020.

Approaching an unthinkable future – Understanding the support needs of people living with young onset dementiaThis report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015.

Prevalence of dementia in population groups by protected characteristics: a systematic review of the literatureThis literature review published by Public Health England examines evidence on how the prevalence of dementia varies with different characteristics, such as ethnicity, gender and religion.

Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onsetThis guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life.

The Daily SparkleThe Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.

Models of dementia assessment and diagnosis: Indicative cost reviewThis report published by NHS England is designed to provide commissioners and service providers with detailed information about real alternative models of dementia assessment and diagnosis, with a cost breakdown.

NICE quality standard QS13: End of life care for adultsThis quality standard published by the National Clinical Institute for Health and Clinical Excellence (NICE) defines clinical best practice in provding end of life care for adults.

Care of dying adults in the last days of lifeThis guideline published by the National Institute for Health and Care Excellence (NICE) covers the clinical care of adults (18 years and over) who are dying during the last 2 to 3 days of life. The guideline contains specific advice relevant when caring for people with dementia.

Joint declaration on post-diagnostic dementia care and supportThis joint declaration signed by signatories across government, health, social care and the third sector sets out a shared commitment to deliver good quality post-diagnostic dementia care.

The experiences, needs and outcomes for carers of people with dementiaThis comprehensive literature review undertaken by the the Association of Dementia Studies at the University of Worcester, examines the experiences and needs of carers of people with dementia and the evidence of outcomes produced from a wide range of interventions. Download The experiences, needs and outcomes ...

Immediate post diagnosis support guidanceThis guidance document, published by the London Strategic Clinical Networks, has been created for professionals to support people with dementia and their carers immediately following diagnosis.

Dementia advisers surveyThis report published by Ipsos MORI presents the findings of a survey into the provision of dementia adviser services throughout England.

How living with dementia could beThis short animated video highlights how living with dementia could be through the 'well pathway for dementia'. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local community settings.

Health matters: midlife approaches to reduce dementia riskThis guidance published by Public Health England makes the case for action in midlife to promote healthy lifestyles that can reduce the risk of dementia.

Fix dementia care – NHS and care homesThis report published by the Alzheimer's Society marks the second phase of a campaign looking at the experiences of people with dementia in a range of health and care settings. It contains the results of a survey of care home managers and the voices of people with dementia, their families and carers.

Dementia rarely travels alone: living with dementia and other conditionsThis report published by the All Party Parliamentary Group (APPG) on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people.

Integrated approach to identifying and assessing Carer health and wellbeingThis toolkit published by NHS England clarifies the new duties on NHS organisations under the Care Act 2014 and the Children and Families Act 2014, provides a template Memorandum of Understanding (MOU) to support joined up working locally, and includes examples of positive practice of work that have proven successful in supporting carers and their families.

Dementia and comorbidities: Ensuring parity of careThis report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year.

Making your home dementia friendlyThis booklet published by the Alzheimer's Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing.

Cataracts and dementia factsheetThe information in this factsheet will help people in with both dementia and sight loss and how to help someone with dementia cope with surgery.

Dementia and homecare: driving quality and innovationThis report published by the United Kingdom Homecare Association demonstrates how skilled homecare can play a pivotal role in enabling people with dementia to live well in their preferred familiar environment. Through a series of innovative practice examples, the report shows why good homecare should ...

Creating a dementia friendly workplace: A practical guide for employersThis guide published by the Alzheimer's Society is designed to help employers provide support for staff members with dementia. It may also be a useful resource for people living with, or affested by, dementia in the workplace.

DiADeM (Diagnosis of Advanced Dementia Mandate in Care Homes)This protocol developed by the Yorkshire and Humber Dementia Strategic Clinical Network aims to support GPs to diagnose dementia for people living with advanced dementia in a care home setting.

Grief, loss and bereavementThis factsheet published by the Alzheimers Society looks at some of the feelings carers may experience in caring for someone living with dementia and suggests ways to cope. It also looks at supporting a person with dementia to cope with grief and bereavement.

Support and care for people living with dementia from minority communitiesThis report outlines recommendations to improve support and care for people with dementia from minority communities in the North East.

Spirituality and ageing: implications for the care and support of older peopleThis briefing paper published the Institute for Research and Innovation in Social Services explores why our ageing population requires person-centred care and developmental support in order to maximise its chances of ageing well.

Loss and bereavement in people with dementiaThis leaflet published by Alzheimer Scotland addresses the lack of help and information available for formal and informal carers of people with dementia who are bereaved.

Eye examinations for people with dementia factsheetThis factsheet provides information on eye examinations for people with dementia. It will be useful for people with dementia, their families, carers and professionals.

Moving into a care home: advice for lesbian, gay and bisexual peopleThis factsheet published by the Alzheimers Society provides some advice for lesbian, gay and bisexual people on choosing a suitable care home and suggests things to think about when the person moves in.

Carer’s health checkA Carer's health check should be offered to any newly-registered carers according to local guidelines or the terms of any Local Enhanced Service.

Duty of Candour: Information for all providersThis document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.

Mental Capacity Act Code of PracticeThis guidance published by the Office of the Public Guardian explains to people working with or caring for adults who lack capacity to make decisions for themselves the legal responsibilities that must be considered under the Mental Capacity Act 2005.

Mental Health Act 1983: Code of PracticeThe revised code of practice shows professionals how to carry out their roles and responsibilities under the Mental Health Act 1983, to ensure that all patients receive high quality and safe care.

Tailored resource for carers and care providers on supporting people to live well with dementiaThis resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.

Peer Support for People with Dementia: A social return on investment studyThis report published by the Health Innovation Network South London, the Academic Health Science Network for South London, outlines the findings of a study which demonstrated that the positive social value of peer support groups for people with dementia, their carers and volunteers can be far greater than the investment.

Planning for your future careThis guidance published by the National Council for Palliative Care explains advance care planning to the public. It outlines the different options available to people when planning for their end of life care.

How can we make our cities dementia friendly?This briefing paper published by the Joseph Rowntree Foundation contributes to the emerging evidence base for Dementia friendly communities by drawing out the key messages from independent evaluations of their work programmes in Bradford and York.

Developing a national user movement of people with dementiaThis report published by the Joseph Rowntree Foundation explores the learning from the Dementia Engagement and Empowerment Project (DEEP), a national network that engages and empowers people with dementia to influence the services and policies that affect them.

Evaluation of the York Dementia Friendly Communities ProgrammeThis report published by the Joseph Rowntree Foundation identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme.

Making decisions: who decides when you can’t?This guidance published by the Office of the Public Guardian explains how the Mental Capacity Act 2005 affects anyone who is unable to make some or all decisions for themselves. It provides advice to help people to plan ahead in case they are unable to make and understand decisions in the future.

Evaluation of the Bradford Dementia Friendly Communities ProgrammeThis report published by the Joseph Rowntree Foundation identifies the distinctive features of the Bradford Dementia Friendly Communities programme, and examines how people with dementia can influence what a Dementia Friendly Bradford should be like.

Making decisions: a guide for people who work in health and social careThis guidance published by the Office of the Public Guardian explains to health and social care workers how the Mental Capacity Act 2005 affects anyone who is unable to make some or all decisions for themselves.

Assistive technology – devices to help with everyday livingThis factsheet published by the Alzheimer's Society explores technological developments that can help make life easier for people with dementia and their carers in certain situations.

ICD deactivation at the end of life: Principles and practiceDesigned for any health professionals involved in caring for patients with an Implantable Cardioverter Defibrillator (ICD), this document discusses issues relating to ICDs in the management of advanced heart disease.

Women and Dementia: A global research overviewThis report published by Alzheimer’s Disease International explores the main issues affecting women in relation to dementia from an international perspective.

Younger people with dementiaThis factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.

Can dementia be prevented?These web pages on the NHS Choices portal give advice on leading a healthy lifestyle to help lower your risk of developing dementia when you are older.

The dementia profileThe dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform.

Pain in People with Dementia: A Silent TragedyThis report, published by Napp Pharmaceuticals, draws on a survey of interviews with experts, major providers of care, and on desk research. It quantifies the problem and sets out the issues in recognising, assessing and managing pain in people with dementia.

Join Dementia ResearchJoin Dementia Research aims to accelerate the pace of dementia research by allowing people with and without dementia to register their interest in studies, helping researchers find the right participants at the right time.

Choosing your hospitalMost patients can choose which hospital they are seen in according to what matters most to them, whether it's location, waiting times, reputation, clinical performance, visiting policies, parking facilities or other patients' comments.

Dementia and People with Intellectual Disabilities: Guidance on their Assessment, Diagnosis, Interventions and SupportThis guidance published by the British Psychological Society aims to promote effective and timely assessment, diagnosis, interventions and support to people with intellectual disabilities who develop dementia.

Addenbrookes cognitive examination-IIIThe Addenbrooke's Cognitive Examination-III (ACE) is one of the most popular and commonly used cognitive tests used in dementia clinics and in the assessment of other neurological disorders.

What about me? Remembering the needs of carersThis short leaflet published by Marie Curie Cancer Care is a good starting point for anyone working in health, social care or other setting who is likely to come into contact with people approaching the end of life and their carers.

Living with young onset dementiaThis video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.

Cracks in the pathwayThis report presents the findings of a Care Quality Commission review of the care people living with dementia receive as they moved between care homes and acute hospitals.

Unlocking Diagnosis: The key to improving the lives of people with dementiaThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.

Dementia awareness resource packThis pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.

Dementia DiariesDementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.

Are you worried about Dementia?This leaflet produced by the Lewy Body Society explains the main symptoms and causes of dementia. It also outlines the distinct symptoms associated with Lewy body dementia.

Prime Minister’s challenge on dementia 2020The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.

Always a last resort: Inquiry into the prescription of antipsychotic drugs to people with dementia living in care homesThis report published by the All-Party Parliamentary Group on Dementia (APPG) examines the problem of the over prescription of antipsychotic drugs to people with dementia living in care homes and proposes workables solutions.

Prepared to care – Challenging the dementia skills gapThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the scale of the challenge in training the caring professions in dementia, and how it may be met.

Building dementia-friendly communities: A priority for everyoneThis report, published by the Alzheimer's Society, explores evidence from people with dementia about their experiences of living in their community and the ten key things they would like to see in a dementia-friendly community.

Caring for CarersThe Caring for Carers Hub developed by the Royal College of General Practitioners is a web based tool that can help primary care staff to more effectively support carers and the people they care for.

Dementia does not discriminate – The experiences of black, Asian and minority ethnic communitiesThis report, produced by the All Party Parliamentary Group (APPG) on Dementia, looks at the experiences of black, Asian and minority ethnic (BAME) communities in dealing with the condition.

Information about Lewy Body DementiaThis handbook published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.

Continence Product AdvisorThe Continence Product Advisor is a website providing evidence-based guidance on how to select appropriate products for managing incontinence and use them effectively.

Dementia FriendsDementia Friends is an Alzheimer’s Society initiative that aims to give a million people a better understanding of dementia by 2015.

No Secrets: guidance on protecting vulnerable adults in careThis guidance document published by the Department of Health sets out a code of practice for the protection of vulnerable adults in care.

CMG48: Support for commissioning of dementia careThis guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.

Award in Understanding DementiaThe Alzheimer's Society and the Royal Society for Public Health have joined forces to create a new qualification to help people understand more about dementia.

Dementia: A state of the nation report on dementia care and support in EnglandThis report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.

A vision of care fit for the twenty-first centuryThis report published by the Commission on Residential Care offers a vision of housing with care fit for the twenty-first century, not bound by existing definitions but based on the outcomes that people want and value.

Moving and walking aboutThis Alzheimer's Society factsheet explains some of the reasons why a person with dementia may walk about and looks at what you can do to help.

Six Item Cognitive Impairment TestThe Six Item Cognitive Impairment Test (6CIT) is a brief cognitive function test which takes less than five minutes and is widely used in primary care settings.

Dementia CarerDementia Carer is a website that provides access to a wide range of video clips featuring carers discussing what helps them cope with issues they encounter in caring for someone with dementia.

How common is dementia?According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.

Find me good careThis website developed by the Social Care Institute for Excellence (SCIE) is designed to help people find the right care and support to suit their needs and lifestyle, whether at a time of crisis or as they plan for the future.

New models of care for dementiaThis report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.

Improving services and support for people with dementiaThis report published by the National Audit Office presents findings from a study into the health and social care services available for people with dementia and their unpaid carers in England and whether they are providing effective and good quality support; and the scope for better use of resources against a background of rising demand.

Montreal cognitive assessmentThe Montreal Cognitive Assessment (MoCA) is a rapid screening instrument for mild cognitive dysfunction suitable for use in primary care settings.

NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careThis guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.

Good to go: A guide to dementia-friendly days outThis handbook published by Care UK aims to support carers relatives and friends who want to enjoy a variety of outings and trips with someone living with dementia.

What is dementia?This resource will help practitioners to understand that dementia is more than just difficulties with memory. Dementia is not a single disease but a term used to describe a group of symptoms.

Carers AssessmentThis factsheet published by Carers UK outlines the Carers Assessment, a legal entitlement which explores how being a carer affects someone, how much caring they can realistically do, and any help they may need.

Women’s experiences of dementiaThe 'Women's experiences of dementia' website contains a wealth of stories which highlight the experiences of women affected by dementia.

Caregiver Strain IndexThe Caregiver Strain Index (CSI) is a tool that can be used to quickly identify families with potential caregiving concerns.

The Care Bill: factsheetsThese factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.

Service specification for dementia: mental health liaison service for general and community hospitalsThis specification has been designed to assist commissioners in the delivery of a service to support general and community hospitals to deliver better care to people with dementia.

QS30: Supporting people to live well with dementiaThis quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.

Dementia Peer Support Resource PackThis resource pack, published by the Health Innovation Network, the Academic Health Science Network for South London, aims to promote and encourage more peer support opportunities for people with dementia.

Reading well books on prescription for dementiaThe Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition.

Drugs used to relieve behavioural and psychological symptoms in dementiaThis factsheet produced by the Alzheimer’s Society explores the different types of drugs that can be used to treat these symptoms if non-pharmalogical treatments have not worked.

Building on the National Dementia Strategy: Change, progress and prioritiesThis report published by the All Party Parliamentary Party Group on Dementia (APPG) calls for a new long term strategy for dementia to be a worthy successor to the National Dementia Strategy for Dementia in England and the Prime Minister's challenge on dementia.

The Right Prescription: resource packThis resource pack will support pharmacists, who play a crucial role in medicines optimisation, to have critical conversations about the prescription of antipsychotics in dementia and reduce inappropriate prescribing.

The dementia guideThis guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.

Abbreviated mental test scoreThe Abbreviated mental test score (AMTS) was developed in 1972 for assessing cognition. The test takes around five minutes and is widely used, particularly in UK general hospital settings.

Mental Capacity Act 2005The Mental Capacity Act 2005 came into force in 2007 and affects all those working in health and social care involved in caring for people over the age of 16 who are unable to make some or all decisions for themselves.

Dementia and aggressive behaviourThis factsheet produced by the Alzheimer's Society aims to aid understanding about what may cause this type of behaviour and offers some ways to deal with it.

Making involvement countThe Making involvement count resource pack is made up 18 cards each aimed at giving specific information, advice and top tips to support people with dementia to get involved in activities whilst recognising their current abilities.

The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.

Putting dementia on the mapPutting dementia on the map published by the Department of Health draws on data and information about dementia health and care, dementia friendly communities and research.

Improving the care of people with dementia in general hospitalsDignity in dementia; improving care in general hospital settings, a Royal College of Nursing led project, has launched tools to improve the care of people with dementia in general hospitals.

Improving Dementia Education and Awareness (IDEA)This online resource managed by the University of Nottingham is aimed at improving the care and quality of life for people with dementia.

Mini-CogThe Mini-Cog is a brief cognitive function test to screen for cognitive impairment in older adults in the primary care setting.

Cancer Delivery Support ToolThe Cancer Delivery Support Tool developed by Macmillan Cancer Support is an electronic support tool to assist GPs and Health Professionals to make an early diagnosis of five types of cancer: Oesophageal, Pancreatic, Ovarian, Colorectal and Lung.

Frontotemporal dementiaThis article published in the British Medical Journal highlights some of the issues pertinent to Frontotemporal dementia, a clinically and pathologically heterogeneous group of non-Alzheimer dementias characterised collectively by relatively selective, progressive atrophy involving the frontal or temporal lobes, or both.

The Sound Doctor: Getting the best out of life with dementiaA series of films providing information to families living with dementia through the entertaining medium of TV/Film.

AT DementiaAT Dementia is web-based information resource on assistive technologies (including telecare) for people with dementia.

Participation in dementia researchThis short film aims to encourage more patients and carers to take part in ground-breaking research into dementia and other neurodegenerative diseases.

What is vascular dementia?Vascular dementia is the second most common form of dementia after Alzheimer's disease. This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for vascular dementia.

Making a Difference in Dementia: Nursing StrategyThis nursing vision and strategy for dementia care, published by the Department of Health, makes clear that every nurse can make a difference to the care of people with dementia.

Advance decisionsAdvance Directives (also referred to as advance decisions to refuse treatment, ADRTs, or living wills) may be drawn up by any person with capacity to do so who is over the age of 18, to determine what treatment they might receive in the event of them losing capacity to make decisions under the Mental Capacity Act 2005.

Telehealth and Telecare AwareThis online information portal provides a news and information service for people interested in telecare and telehealth.

ACEmobileACEmobile is a mobile-friendly version of the Addenbrooke’s Cognitive Examination (ACE-III), a popular and commonly-used screening tools for dementia.

Peer support networks and dementia advisers: evaluationThis report, published by the Department of Health, provides the findings of the Healthbridge evaluation into the role that dementia advisers and peer support networks can provide in post diagnostic support for people with dementia and their carers.

Carers Evidence Summits ebookNHS Improving Quality has produced an ebook to share the Commitment to Carers achievements over the last year. It includes the findings from the regional Carers Evidence Summits and links to over 50 case studies.

Journey of Caring: An analysis of long-term care for dementiaThis report published by Alzheimer’s Disease International highlights the importance of helping people with dementia to remain independent and living in their own homes as part of the local community for as long as possible.

Windows of opportunity for prevention and early intervention in dementia toolkitThis online resource, produced by the Social Care Institute for Excellence, will help commissioners and providers to ensure that any help or support offered at any stage in a person’s journey with dementia is offered in a timely way.

NHS Continuing Healthcare e-learning toolThis e-learning tool developed by NHS England and the Association of Directors of Adult Social Services will support all practitioners to improve assessment and decision making around NHS Continuing Healthcare.

Blackfriars Consensus on promoting brain healthThe Blackfriars Consensus, published by the UK Health Forum and Public Health England, explores the potential for incorporation of dementia risk reduction into current approaches for non-communicable diseases.

What is Alzheimer’s disease?Alzheimer's disease is the most common cause of dementia, affecting around 496,000 people in the UK. This Alzheimer's Society factsheet outlines the symptoms and risk factors for Alzheimer's disease, and describes what treatments are currently available.

What causes dementia?Dementia is the result of brain cells being damaged in an ongoing way. This happens as a result of a number of different diseases (sometimes referred to as ‘types’ of dementia). It is not an inevitable part of ageing.

Dementia: ethical issuesThis report published by the Nuffield Council on Bioethics presents an ethical framework to help practitioners who face dilemmas in connection with the everyday care of someone with dementia.

Dementia Revealed: What primary care needs to knowThis toolkit written by Dr Elizabeth Barrett is intended as an educational resource for use by GPs and practice nurses to expand their knowledge and confidence.

Dementia Prevalence CalculatorThe Dementia Prevalence Calculator presents an opportunity for all health communities to gain a better understanding of their local estimated prevalence of dementia in the community, and among people living in local care homes.

Dementia assessment and referral 2014-15This data collection reports on the number and proportion of patients aged 75 and over admitted as an emergency for more than 72 hours who have been identified as potentially having dementia, who are appropriately assessed and, where appropriate, referred on to specialist services in England.

Ten tips for communicating with a person with dementiaThese top tips produced by the Family Caregiver Alliance will help practitioners and those caring for a person with dementia to improve communication skills and ability to handle the difficult behaviour.

An evaluation of dementia support worker rolesThis report presents an evaluation of existing models of community-based support for people with dementia, their families and carers.

Commissioning for Carers PrinciplesThis practical tool is part of a suite of products that will help commissioners to deliver what carers say is important to them in ways that have been shown to work effectively and efficiently in practice.

RCGP Commissioning Guidance in End of Life CareThis guidance offers a logical six-step framework and overview to support GP commissioners to deliver practical improvements in end of life care, aligned with national policy and quality standards.

Focus on dementia researchThe National Institute for Health Research (NIHR) website Focus on Dementia showcases some of the cutting-edge clinical research that could bring new hope to dementia patients and their families.

Sight, perception and hallucinations in dementiaThis Alzheimer's Society factsheet considers some specific difficulties that people with dementia can have with sight, perception and hallucinations, and suggests ways to support them.

Dementia Friendly Communities: New domains and global examplesThis report, published by Alzheimer’s Disease International, highlights the emerging trend to create dementia-friendly communities as a global response against stigma in an effort to form more inclusive societies for people living with dementia.

Better care for older peopleThis online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.

This is me'This is me' is a leaflet produced by the Alzheimer's Society to help hospital staff better understand the needs of people with dementia.

Driving and dementiaThis Alzheimer's Society factsheet explains the legal situation around driving and dementia, and gives some tips on stopping driving.

Reducing the use of antipsychotic drugsThis leaflet is for people with dementia and their carers who want to know more about behavioural and psychological symptoms of dementia and how they can be prevented and treated.

Marie Curie End of Life Care AtlasThe Marie Curie End of Life Care Atlas is an information portal that gives people who plan and commission end of life care new insight into care provision in their local areas.

General practitioner assessment of cognitionThe General practitioner assessment of cognition (GPCOG) is a reliable, valid and efficient tool to use to screen for dementia in primary care settings for people with carers.

Commissioning End of Life Care: Act & EarlyThis guidance published by the National Council for Palliative Care aims to help healthcare commissioners to prioritise early action on end of life care to ensure people’s choices are met and to avoid unnecessary emergency hospital admissions.

Dementia-friendly technology charterThe Dementia-friendly technology charter gives people with dementia and their carers information on how to access technology. It also provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs.

Diabetes care pathwayThis NICE care pathway defines clinical best practice for diabetes care. It covers managing type 1 and type 2 diabetes.

Referral for a diagnosisThis leaflet produced by the Lewy Body Society highlights the importance of practitioners identifying the main symptoms of Lewy body dementia early to enable referral to a specialist at a memory clinic for correct diagnosis to be made.

Supporting people with dementia at homeThis training resource published by the Alzheimer’s Society aims to help homecare workers provide excellent person centred support for people with dementia who are living at home.

Virtual Hospital modelling toolThe Virtual Hospital modelling tool, developed by the Dementia Services Development Centre, aims to show good design can help to make an acute hospital setting dementia-friendly.

What is dementia with Lewy bodies (DLB)?This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for Dementia with Lewy bodies (DLB).

A Misspent Opportunity? Inquiry into the funding of the National Dementia StrategyThis report published by the All-Party Parliamentary Group on Dementia (APPG) examines initial progress made by Primary Care Trusts in England towards implementing the National Dementia Strategy for England.

State of Care 2013/14This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.

National Diabetes AuditThe National Diabetes Audit (NDA) is a major national clinical audit, which measures the effectiveness of diabetes healthcare against NICE Clinical Guidelines and NICE Quality Standards, in England and Wales.

Dementia diagnosis resource packThis resource pack produced by Dementia Partnerships sets out key steps for Commissioners and General Practices to improve the diagnosis of dementia, and diagnosis pathways.

Cancer information factsheetsThese factsheets published by Macmillan Cancer Support cover a variety of topics relating to cancer, such as chemotherapy drugs, less common cancer types and practical issues for cancer care professionals.

Committed to carers: Supporting carers of people at the end of lifeThis report published by the Marie Curie Cancer Care draws on the direct experiences of people caring for someone at the end of life and on Marie Curie Cancer Care’s years of expertise of caring for carers.

Making your home a better place to live with dementiaThis briefing published by Care and Repair England outlines how people might adapt their homes to help better manage the symptoms associatted with dementia.

10 Top Tips for supporting carers of people living with cancerThis guidance produced by Macmillan Cancer Support offers some top tips for primary care practitoners to support carers of people living with cancer.

Diabetes in adults quality standardThis NICE quality standard defines clinical best practice for diabetes care. It provides specific, concise quality statements, measures and audience descriptors to provide patients and the public, health and social care professionals, commissioners and service providers with definitions of high-quality care.

Dementia 2013: The hidden voice of lonelinessThis report, published Alzheimer’s Society, reveals that nearly two thirds (62%) of more than 250,000 people with dementia who live on their own are lonely. This compares to just 24 per cent of over 55 year olds.

Support, Stay, Save: care and support of people with dementia in their own homesThis report provides evidence from over 2,000 carers, people with dementia and home care workers on the aspirations, experiences and outcomes of providing dementia care in the community in England, Wales and Northern Ireland.

A practical guide to healthy ageingThis guide published by NHS England and Age UK contains advice to help improve the health and general fitness of people of any age, but it is particularly relevant for people who are about 70 years or older.

Taking medication ‘just like that’This campaign led by the British Heart Foundation (BHF) aimed to remind people how vital heart medicines and raise awareness that millions of people could be putting their lives in danger by not taking their medicines as prescribed.

The Triangle of Care – carers included: A guide to best practice for dementia careThe Triangle of Care is a model for dementia care that supports a partnership approach between the person with dementia, the staff member and carer. It is designed to ensure that carers are appropriately included and involved in the care of people with dementia, particularly in hospital settings.

National Audit of Dementia in General HospitalsThe second report of the National Audit of Dementia in General Hospitals identifies continuing problems in the quality of care received by people with dementia in hospitals in England and Wales.

Unusual behaviourThis factsheet produced by the Alzheimer’s Society outlines some typical sorts of unusual behaviour in people with dementia and explains some common causes.

Dementia e-learning sessionsAn interactive e-learning resource to support the training of all health and social care staff in recognising, assessing, and managing dementia, and providing high quality dementia care.

Matters of Life and Death: Helping people to live well until they dieThis guidance aims to support practitioners to implement the End of Life Care Patient Charter, jointly produced by the Royal College of General Practitioners and the Royal College of Nursing.

Be head strongThis guidance published by the Alzheimer's Society contains tips to help people reduce the risk of developing dementia.

Dementia adviser service: evaluationThis report published by the Alzheimer's Society presents the findings of an evaluation of the Pathfinder Dementia Adviser services from the perspective of service users.

Dementia: Finding housing solutionsThis report, published by the National Housing Federation, highlights how good housing and related services can impact positively on the lives of people with dementia, from delaying more intensive forms of care to preventing admission and readmission to hospital.

How would I know? What can I do?This guide, developed by the National Council for Palliative Care (NCPC), provides advice for carers and those who work with people with dementia on how to help with pain and distress in people with the condition.

Counting the cost: caring for people with dementia on hospital wardsThis report published by the Alzheimer's Society reveals unacceptable variations in the quality of care for people with dementia in hospital and puts forward recommendations to improve dementia care, shorten the length of stay and reduce costs.

Deprivation of Liberty Safeguards (DoLS)This factsheet published by the Alzheimer's Society explains the Deprivation of Liberty Safeguards (DoLS), which are part of the Mental Capacity Act 2005. It also outlines the process for getting authorisation for a deprivation of liberty and how to get it reviewed.

Treatment and care towards the end of life: good practice in decision makingThis guidance provides a framework for good practice aimed at doctors when providing treatment and care for patients who are reaching the end of their lives.

Request for proposal: action plan to improve care for people with dementia in hospitalThis is a request for a proposal to improve care for people with dementia in hospital.

Supporting a person with dementiaThis Easy Read factsheet published by the the Alzheimer's Society provides advice for someone with learning disabilities who may have a friend or relative with dementia.

World Alzheimer Report 2014, Dementia and Risk ReductionThe World Alzheimer Report 2014, Dementia and Risk Reduction: An analysis of protective and modifiable factors critically examines the evidence for the existence of modifiable risk factors for dementia.

Listen, talk, connect: Communicating with people living with dementiaThis handbook published by Care UK is a guide to support carers relatives and friends who want to communicate effectively with someone living with dementia.

Am I at risk of developing dementia?This factsheet published by the Alzheimer's Society explains what we know about the risks associated with developing different types of dementia, and gives some advice on the steps people can take to reduce their risk.

Improving cancer patient experience: A top tips guideThis guide published by Macmillan Cancer Support provides top tips to support professionals make service improvements in response to the National Cancer Survey and deliver improved patient experience.

Gold Standard Framework Prognostic Indicator GuidanceThis guidance aims to help GPs, clinicians and other professionals in earlier identification of those adult patients nearing the end of their life who may need additional support.

Understanding and respecting the person with dementiaThis factsheet produced by the Alzheimer’s Society explores ways that carers can help people living with dementia to feel valued and good about themselves.

Diabetes and your heartThis booklet is for people who have diabetes, and for their families and friends. It may also be useful if you don’t have diabetes but you have been told you may develop it in the future.

Collaborative Care and Support Planning: an introductionThis animation, commissioned by the Royal College of General Practitioners, sets out the collaborative care and support planning process in a short, easy to understand way.

Wearing glasses with dementia factsheetThis factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.

Care and Support Jargon BusterThe Care and Support Jargon Buster published by Think Local Act Personal is a plain English guide to the most commonly used social care words and phrases and what they mean.

Guidance for Learning Disability Partnership BoardsThis booklet offers guidance to Learning Disability Partnership Boards to help them ensure that carers of people with learning disabilities, and carers with learning disabilities are supported and involved in local service developments which affect their lives, and the lives of the people they care for.

Services for younger people with Alzheimer’s disease and other dementiasThis briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer's Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.

Women and dementia: A marginalised majorityThis report published by Alzheimer's Research UK reveals that dementia has become the leading cause of death among British women and that women are far more likely to end up as carers of those with dementia than men, suffering physical and emotional stress and job losses in the process.

Improving the delivery of adult diabetes care through integrationThis report published by Diabetes UK explains how diabetes care can be improved to achieve better outcomes for people with diabetes. The challenge for commissioners and healthcare providers locally is to make the system work to support that.

A proposal for a UK dementia eye care pathwayThis article published in the journal Optometry in Practice introduces a proposal for a UK dementia eye care pathway and outlines the areas that should be covered within a pathway.

Enhanced service for people with dementia in primary careThis short paper by Alistair Burns and Laurence Buckman summarises a multi-disciplinary group discussion on how the Enhanced Service might be optimally used to increase the numbers of people receiving a diagnosis and accessing post diagnostic support.

Low expectations: attitudes on choice, care and community for people with dementia in care homesThis report published by the Alzheimer’s Society stresses the need to lift expectations and to strengthen existing minimum standards to boost quality of life for people with dementia in care homes.

Commissioning person-centred end of life careThis toolkit published by the National End of Life Care Programme identifies the main elements involved in the commissioning process, explains the commissioning cycle in practical terms and offers a four-stage approach across all sectors.

Caring, compassionate, skilled – transforming the dementia workforceThis guidance will support commissioners to better understand workforce planning and development issues that may impact staff working with people with dementia and their carers and families.

Improving the quality of cancer care in primary careThis toolkit developed by Macmillan Cancer Support aims to support the primary care professionals to develop initiatives and programmes which have a positive impact on the care of people daiagnosed with cancer, their families and carers.

A road less rocky – supporting people with dementiaThis report published by the Carers Trust highlights that carers of people with dementia are not getting the support and advice they often desperately need.

Five Year Forward ViewThe Five Year Forward View published by NHS England sets out why the NHS needs to change and various models of care which could be provided in the future to deliver transformed care for patients.

Handy guide to selecting a care homeThis guide published by the Alzheimer’s Society is designed to be taken into care homes by people with dementia and their families and provides an independent and objective guide to what makes good quality care.

Recognised, valued and supported: Next steps for the Carers StrategyThis strategy identifies the actions that the Government will take between 2011-15 to support its priorities to ensure the best possible outcomes for carers and those they support.

Carers services guide – Setting up support services for carersThis guide published by Help the Hospices provides a framework for organisations planning to set up support services for carers of people with life-limiting and terminal illnesses.

Dementia patient decision aidThis decision aid is intended to assist health professionals considering prescribing acetylcholinesterase inhibitor medication (donepezil, galantamine or rivastigmine) for patients to improve symptoms of dementia and reduce the rate of decline in mental function.

Cardiovascular Disease Outcomes StrategyThis outcomes strategy published by the Department of Health identifies ten key actions for local authority and NHS commissioners and providers to deliver improvements in patient outcomes.

Case for change – Communities for people living with dementiaThis document explains the evidence that has been used in designing the service to support people with dementia, whether living at home or in care homes, as well as dementia-specific elements of other Communities.

Diabetes Risk ScoreThe Diabetes Risk Score is an assessment tool which aims to identify individuals with impaired glucose regulation (IGR) and is designed to predict an individual’s risk of developing Type 2 diabetes within the next ten years. It was developed by University of Leicester and University Hospitals of Leicester NHS Trust in collaboration with Diabetes UK.

The Right Care: creating dementia friendly hospitalsThe Right Care is a call to action to transform the acute hospital experience for people with dementia and their carers.

Dementia coding clean-up exerciseThis exercise devised by Dr Paul Russell aims to support GPs to identify problems in coding, which are contributing to low rates of dementia diagnosis on practice registers.

End of life care for people with dementia commissioning and benchmarking toolThe commissioning and benchmarking tool helps you to assess local service requirements using the indicative benchmark as a starting point. With knowledge of your local population and its demographic, you can amend the benchmark to better reflect your local circumstances.

End of life care for people with dementia commissioning guideThis commissioning guide provides support for the local implementation of NICE clinical guidelines through commissioning, and is a resource to help statutory and voluntary health and social care professionals in England to commission integrated end of life care (EOLC) services for people with dementia.

Implementing local diabetes networksImplementing Local Diabetes Networks, published by Diabetes UK, is for commissioners to explain the importance and composition of a local diabetes network.

Template action plan to improve care for people with dementia in the communityThis is a template action plan for use by local authorities and commissioning consortia working together under the auspices of Health and Well-being Boards to improve care for those people with dementia who live in their own homes or in some other residential setting.

Echocardiography guidelines for valve quantificationThis poster contains guidelines for echocardiography valve quantification developed by the Education Committee of the British Society of Echocardiography.

Dementia UKThis report into the prevalence and cost of dementia shows that as the UK's population ages the number of people with dementia will grow substantially. It also shows that dementia costs the UK £17 billion a year.

Duty to Care? Supporting and involving unpaid carers of people at the end of lifeThis resource covers the three plenary discussion sessions at the ‘Duty to Care?' conference held in 2013 facilitated by the National Council for Palliative Care. Three detailed scenarios were debated to help identify and explore the practical issues involved in being or supporting a carer.

Life After Death: Six steps to improve support in bereavementThis briefing paper published by the National Council for Palliative Care identifies six steps to address bereavement as a major public policy issue.

Best practice for commissioning diabetes servicesThis guidance published by Diabetes UK aims to help commissioners understand the nature of integrated diabetes care, why it is so important and to provide a signpost to other documents that will be of help in the commissioning process.

Befriending works: building resilience in local communitiesThis report published by the Mentoring and Befriending Foundation provides an overview of how befriending can contribute to improving the health and well-being outcomes of vulnerable people at risk of social isolation or exclusion from mainstream society.

Advance care planning toolkitThis toolkit developed by the National End of Life Care Programme (NEoLCP) aims to help care providers approach the advance care planning process with confidence and knowledge.

The later stages of dementiaDuring the later stages of dementia most people will become increasingly frail due to the progression of the illness. They will also gradually become dependent on others for all of their care.

Understanding out of hospital dementia careThis report, published by Healthcare at Home, explores home-based models of care that will keep people with dementia out of hospital.

Initial review following diagnosisThis guidance outlines the steps that a practitioner should consider during an initial review with a patient that has received a formal diagnosis of dementia.

Dementia commissioning for quality and innovationDementia commissioning for quality and innovation (CQUIN) aims to help identify patients with dementia and other causes of cognitive impairment, alongside their other medical conditions and to prompt appropriate referral and follow up after they leave hospital.

Guidance on the use of neuro-imaging in the assessment of dementia in Primary CareThis guidance for Clinical Commissioning Groups and Health and Wellbeing Boards covers the role of neuro-imaging in the assessment and diagnosis of dementia in primary care.

Diabetes care planning reviewPractitioners should provide an annual care planning review to all people with diabetes to ensure that each patient gets the right support for managing their diabetes. This short film produced by Diabetes UK aims to help patients to understand what care planning is, and how they can get more involved in their diabetes care.

Personalisation and dementia: a practitioner’s guide to self-directed support for people living with dementiaThis guide to personalisation and dementia has been written for, and with input from, people living with dementia, their families and friends, and the practitioners who support them.

Optimising treatment and care for behavioural and psychological symptoms of dementiaThis best practice guide has been developed in consultation with an advisory group of leading clinicians specialising in dementia.

See me, not just the dementiaThis report looks at the experiences of people with dementia living in care homes in England, with a particular focus on whether their care offers dignity and respect.

Service specification for dementia: better care at home, and in care homesThis specification has been designed to support primary care in the assessment and management of people with problematic symptoms of dementia or other complex presentations living at home, in a care home or other residential setting.

Case for change – mental health liaison service for dementia care in hospitalsThis document explains the evidence that has been used to identify eligible patients and for the design of mental health liaison services in general and community hospitals and its core components.

Care of people with dementia in primary careThis factsheet published by the Royal College of General Practitioners provides GPs with guidance on the care of people with dementia in primary care.

Guidance and standards for diagnosing dementiaThis guidance sets out the process and associated standards for making a diagnosis of dementia in primary health care services, and by specialist memory assessment services.

Diabetes sample service specificationThe service specification, published by NHS England, outlines the provision of high quality care for all those with diabetes. It describes all the services needed to provide a complete care pathway for people with diabetes.

Thinking Ahead: a planning guide for familiesThis guidance, published by the Foundation for People with Learning Disabilities, provides a clear framework to help the families of people with learning disabilities plan for the future and address the concerns they have.

Delivering major improvements in dementia care and research by 2015: A report of progressThis report by the three Champion Groups leading the Prime Minister's challenge on dementia provides an update on progress since the launch of the Challenge in March 2012.

Supporting Family Carers of People with Learning DisabilitiesThis resource pack produced by the Foundation for People with Learning Disabilities and the Sharing Caring Project at Sheffield Mencap supports practitioners to develop and provide the best information and support to family carers of people with learning disabilities.

National dementia and antipsychotic prescribing auditThe National dementia and antipsychotic prescribing audit aims to gather information from primary care to establish a national picture of prescribing antipsychotic medication in people with dementia.

Commissioning domiciliary care for people with dementia and their carersThe purpose of this paper is to assist commissioners in ensuring that homecare for people with dementia is appropriate to their needs and/or the needs of their carers.

Better planning for car ownership and well-being in old ageThis briefing paper published by the Housing Learning and Improvement Network seeks to connect the body of knowledge around the significance of car ownership in achieving well-being for older people to those making decisions that may impact on car ownership among older people.

Dementia and People with Learning DisabilitiesThis document jointly published by the Royal College of Psychiatrists and the British Psychological Society provides guidance on the assessment, diagnosis, treatment and support of people with learning disabilities who develop dementia.

Dementia Friendly Housing CharterThis toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.

John’s CampaignJohn’s Campaign is about the right of people who care for someone living with dementia to be able to stay with them – and the right of people with dementia to be able to have a family carer stay with them. It applies to all ...

Turning up the volume: unheard voices of people with dementiaThis report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia.

Videos on dementiaFilms aimed at BME community These two locally made films form part of ongoing work by NHS Aylesbury Vale and Chiltern Clinical Commissioning Groups, together with Buckinghamshire County Council, to reduce stigma of the condition and raise awareness within diverse communities. One film, ‘Living Well ...

Quick contacts and linksBuckinghamshire County Council Adult Social Care Tel: 01296 383204 Alzheimer’s Society Buckinghamshire Tel: 01296 331722 Carers Bucks Tel: 0300 777 2722 NHS Oxford Health NHS Foundation Trust Aylesbury & District Citizens Advice Bureau Tel: 03444 111 444 Buckinghamshire Mind NRS – supplier of disability equipment, mobility aids ...

Nutrition information and resourcesBelow are a number of links to information and advice in nutrition and diet. It is thought that unplanned weight loss can be an early sign of dementia, before symptoms such as memory loss or other cognitive issues are noticed. While such weight loss can ...

National Audit of Dementia – third reportThe National Audit of Dementia (NAD) (care in general hospitals) measures the performance of general hospitals against criteria relating to care delivery which are known to impact upon people with dementia while in hospital. The third audit collected data between April and November 2016.

Voting passportThe Dimensions organisation supports people with learning disabilities, autism, challenging behaviour and complex needs in various ways – including voting. Click here to download a ‘voting passport’. This sheet can be filled in and presented at the polling station to support you in voting.

Getting informed – websiteYork University has launched a website to help support older people and their relatives find information about social care in later life. The website contains a leaflet and short film and covers basic information about social care including what information different organisations can and cannot provide.

State of Caring 2017This survey undertaken by Carers UK paints a comprehensive picture of caring in 2017 and more than 7,000 people responded, making it the largest State of Caring Survey to date.

Hospital 2 Home resource packThis resource is designed to make it easier for health and social care professionals involved in hospital discharge to support older patients in returning home safely after a hospital stay and reduce the risk of readmission to hospital.

Delirium awareness videoDelirium in older adults often goes unrecognised by health care professionals and can be poorly managed. This video was produced with the aim of improving recognition and management of delirium in any healthcare setting.

Training resources to improve the dementia component of the NHS Health CheckThese training resources can be used by NHS Health Check trainers and practitioners to improve the quality of their delivery of the dementia component of the check.

NHS Health Check commissioning: Commissioner’s current and potential use of weighted financial remunerationThis report includes details of a literature review of commissioner’s current and potential use of weighted financial remuneration and provides recommendations for commissioners.

Enabling people with dementia to remain at home: a housing perspectiveThis report published by the Housing Learning and Improvement Network sets out the key role housing providers, and in particular social housing providers, can play in supporting people living with dementia to stay independent in the home of their choice for as long as possible.

Dementia Commissioning know how guideThis resource aims to enable Clinical Commissioning Groups to achieve and maintain dementia diagnosis rate of at least two-thirds of the estimated number of people with dementia, and improve the quality of and access to post diagnostic care for people living with dementia and their carers.

Implementation guide and resource pack for dementia careThis guide aims to set out the policy drivers and strategic context for transforming dementia care, and why it is of importance to commissioners, providers and sustainability and transformation partnerships (STPs) in supporting delivery of a number of objectives in the Department of Health’s Prime Minister’s challenge on dementia 2020, published February 2015, which complements the aims of the Five Year Forward View, published in October 2014.

Living with Dementia – 51 Tips to Help You With Daily LivingIn this in-depth infographic and article UK Care Guide offers a range of tips of advice to help people to live well with dementia.

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Popular Groups

RevitaliseRevitalise is a national charity providing short breaks and holidays (respite care) for disabled people and carers. We also offer inspirational opportunities for volunteers through one of the largest, most diverse volunteer programmes in the UK.

House of MemoriesHouse of Memories is an award-winning training programme, run by the Museum of Liverpool, which targets the carers of people living with dementia. It provides participants with information about dementia and equips them with the practical skills and knowledge to facilitate a positive quality of life experience for people living with dementia.

HealthwatchHealthwatch England is the national consumer champion in health and care. We have significant statutory powers to ensure the voice of the consumer is strengthened and heard by those who commission, deliver and regulate health and care services.

ThriveThrive is the leading charity in the UK using gardening to change the lives of disabled people. Thrive run structured programmes of activities for people with dementia which focus on positive reminiscence, re-connecting with others including friends and family and gentle appropriate exercise and cognitive stimulation

Engage & CreateEngage & Create is a not-for-profit organisation that uses creativity and conversation to improve the quality of life for people with dementia and those that care for them.

The Imperial Memory UnitThe Imperial Memory Unit within Charing Cross Hospital offers patients access to the latest treatments for memory disorders through participation in clinical trials and research.

Admiral Nurse Dementia HelplineThe Admiral Nurse Dementia Helpline is for anyone with a question or concern about dementia. From looking out for the first symptoms of Alzheimer’s, to understanding the challenges of living with someone with vascular dementia, Admiral Nurses have the knowledge and experience to understand the situation and suggest answers that might be hard to find elsewhere.

All-Party Parliamentary Group on Dementia (APPG)The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.

Dementia Engagement and Empowerment Project (DEEP)The Dementia Engagement and Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia.

Lewy Body SocietyThe Lewy Body Society is a charity which aims to raise awareness of Dementia with Lewy bodies for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease.

Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.

Innovations in DementiaInnovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals to develop and test projects that will enhance the lives of people with dementia.

Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.

Carers UKCarers UK is a national membership charity for carers, that is both a support network and a movement for change.

Assist UKAssist UK leads a UK wide network of locally-situated Disabled Living Centres. Most centres include a permanent exhibition of products and equipment that provide people with opportunities to see and try products and equipment to support them to live independently.

Macmillan Cancer SupportMacmillan Cancer Support is a national charitable organisation that provides practical, medical and financial support and push for better cancer care.

Carers DirectCarers Direct offer a helpline for carers that need help with their caring role and want to talk to someone about what options are available to them.

Marie Curie Cancer CareMarie Curie Cancer Care is a UK charity dedicated to the care of people with terminal illnesses.

Parkinson’s UKParkinsonism is a feature associated with some dementias, particularly Parkinson's dementia and dementia with Lewy bodies. Parkinson's UK offers support for patients and carers, including excellent advice on coping with daily activities.

Alzheimer’s Research UKAlzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias.

Disabled Living FoundationThe Disabled Living Foundation (DLF) is a national charity providing impartial advice, information and training on independent living.

British Heart FoundationThe British Heart Foundation is a UK charity leading the fight against coronary heart disease funding pioneering research to transform the lives of people living with heart and circulatory conditions.

Driver and Vehicle Licensing Agency (DVLA)The Driver and Vehicle Licensing Agency (DVLA) maintain registers of drivers and vehicles in Great Britain. It is important that practitioners encourage their patients with dementia to inform the DVLA of their diagnosis.

Faculty for the Psychology of Older PeopleThe Faculty for the Psychology of Older People (FPoP), formely known as PSIGE, is part of the British Psychological Society's Division of Clinical Psychology. It works to encourage the exchange of information, ideas and expertise about psychological approaches with older people.

Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.

Bradford Dementia GroupBradford Dementia Group is a multi-disciplinary, multi-professional group committed to making a difference to policy and practice in dementia care, through excellence in research, education and training.

Sporting Memories NetworkThe Sporting Memories Network, also known as Replay, is a national charity which promotes the use of sporting memories to improve the wellbeing of older people and to tackle dementia, depression and social isolation.

Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.

The Dementia Training CentreThe Dementia Training Centre offers a range of courses from face to face training programmes, tailored to the meet the needs of your organisation, free e-learning packages designed by experts, to a Master’s degree offering specialist dementia training.

Dementia Action AllianceThe Dementia Action Alliance brings together organisations across England committed to transforming the lives of people with dementia and their carers.

National Council for Palliative CareThe National Council for Palliative Care (NCPC) is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.

Bladder and Bowel CommunityThe Bladder and Bowel Community is the UK wide charity for people with bladder and bowel control problems. It provides information and support services, including a confidential helpline, for anyone affected by these conditions as well as their families, carers and healthcare professionals.

Dementia Research CentreThe Dementia Research Centre, based at the National Hospital for Neurology and Neurosurgery, is one of the UK's leading centres for clinical research into dementia.

Short Breaks NetworkThe Short Breaks Network is the national co-ordinating body for the short break sector in the UK, providing short breaks for disabled children, young people and their families.

Self Management UKSelf Management UK provide support and advice for people living with a long term health condition, such as asthma, diabetes, heart disease, COPD, arthritis and chronic pain.

Foundation for People with Learning DisabilitiesThe Foundation for People with Learning Disabilities influences government and local authority policies and services so that they better meet the needs of people with learning disabilities, their families and carers.

Foundation for Assistive TechnologyThe Foundation for Assistive Technology aims to develop a thriving market in equipment that promotes independent living and meets the real needs of disabled and older people.

Ladder to the MoonLadder to the Moon provides workforce and service development that enables health and care organisations to develop active, creative, vibrant care services. It uses approaches that incorporate creativity and the arts, and involve staff, older people living with dementia and other long-term conditions, and the wider community.

Gold Standards Framework CentreThe National Gold Standards Framework (GSF) Centre in End of Life Care is the national training and coordinating centre for all GSF programmes, enabling generalist frontline staff to provide a gold standard of care for people nearing the end of life.

YoungDementia UKYoungDementia UK is a charity based in Oxfordshire that aims to help people whose lives are affected by young onset dementia.

The Reading AgencyThe Reading Agency is a charity working to inspire more people to read more, encourage them to share their enjoyment of reading and celebrate the difference that reading makes to all our lives.

Employers for CarersEmployers for Carers provides practical, ‘hands-on’, help to employers to support carers in their workforce.

Diabetes UKDiabetes UK is a leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes.

Cognitive neurology and dementia centreThe Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.

The National Valuing Families ForumThe National Valuing Families Forum brings together a network of regional family carer organisations to consult and feed into government policy and legislation affecting those with learning disabilities and their families.

The Disabled Parents NetworkThe Disabled Parents Network is a National network of Disabled Parents, helping each other and bringing about change for disabled people who are parents or who hope to become parents, their families, friends and supporters.

Arts 4 DementiaArts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers.

The Reader OrganisationThe Reader Organisation is a charitable social enterprise working to connect people with literature through shared reading. The older people and dementia work programme uses shared reading to improve quality of life and care for people living with dementia and their carers.

Buckinghamshire Memory Support ServiceBuckinghamshire Memory Support Service offers information and practical guidance to help people understand dementia, cope with day-to-day challenges and prepare for the future.

Carersmart: Making life a little easier for carers Offers, benefits and discounts available exclusively for carers and people with care needs

Race Against DementiaRace Against Dementia is an alliance of groups currently providing information and support to people from Black, Asian and minority ethnic communities in the UK.

British Institute of Learning DisabilitiesBritish Institute of Learning Disabilities (BILD) wants people with learning disabilities to be valued equally, participate fully in their communities and be treated with dignity and respect.

Playlist for LifeBeing able to respond to music is the one thing dementia cannot destroy. Playlist for Life encourages families and caregivers to create a playlist of personally meaningful music on an iPod for people with dementia.

Aylesbury Activity Group (Alzheimers Society)Join the group for games and quizzes (and, during February 2018, 45 minutes of gentle seated exercise), all followed by light refreshments. Held on the first Tuesday of the month: 10.15am – 12pm

Bucks Mind Services for Older People – Chesham Park Club in Chesham, and Pippin Club in Prestwood. Our clients have either dementia, or other mental health issues which make it difficult to access other services in the community. We offer a variety of activities such as games, quizzes, orientation and reminiscence activities, crafts ...

High Wycombe Carer Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator, the sessions offer a chance to ask questions, get information and share experiences in a safe and supportive environment.

Singing for the BrainSinging for the Brain brings people together in a friendly, fun and social environment. Based around the principles of music therapy, the stimulating sessions include vocal warm-ups and singing a wide variety of familiar and new songs.

Apetito – community meals serviceCommunity Meals Service – Run by Apetito, this team of meals-on-wheels drivers works from a local service centre and delivers meals in specially designed vans with built-in ovens. Meals are cooked en route and dishes arrive piping hot and full of nutrition. Call 0808 274 0322 for ...

Chesham Activity Group (Alzheimer’s Society)Join the group for 45 minutes of seated exercise followed by light refreshments and time to chat. Last Monday of the month: 1.45 – 4pm

Carers BucksCarers Bucks is an independent charity established in 2004 to support the wellbeing of unpaid, family carers in Buckinghamshire. It is part of the Carers Trust Network, which has Carers Centres around the UK. It’s main office is in Aylesbury and it work closely with ...

Bucks Mind Services for Older People – PrestwoodOur clients have either dementia, or other mental health issues which make it difficult to access other services in the community. We offer a variety of activities such as games, quizzes, orientation and reminiscence activities, crafts and physical activities. Both are currently funded by Buckinghamshire ...

Age UK BuckinghamshireAge UK Buckinghamshire’s services can support people to live independently and lets families have peace of mind and be confident in their caring role. Services include: Befriending, hairdressing, handyperson, gardening, toenail cutting, benefits advice and general help in the home.

Prevention MattersPrevention Matters is a free and friendly advice service linking eligible adults (over 18) in Buckinghamshire to social activities, volunteers and community services. Prevention Matters is delivered by Buckinghamshire County Council through a partnership of organisations, including the NHS, District Councils and a variety of ...

NRS HealthcareNRS Healthcare provide products and services designed to support independent living. Its comprehensive range includes daily living aids, mobility equipment, disability equipment and therapeutic resources to improve people’s quality of life and independence. A number of the items they offer can be very helpful for people ...

Young onset dementia carers support groupCarers Bucks runs a regular support group for carers of people with Young Onset Dementia. This group has been running for a number of years and is made up of carers and former carers who have a wealth of knowledge and experience, who can help ...

Home Library ServiceThis service is for Buckinghamshire residents, who are housebound and unable to visit a library due to age, illness or disability. Carers who are unpaid are also eligible. This service could benefit dementia clients by keeping their mind’s active. The Home Library Service is a free monthly service delivered ...

The Reminiscence CollectionRecalling and sharing memories is something most of us do whatever our age. For people with dementia, it can be especially enjoyable and helpful. The Reminiscence Collection includes a wide variety of ‘Memory Boxes’ containing games, puzzles, books and activities for individuals or groups is ...

Picks Disease Support GroupCaring for people with frontotemporal dementia is hard, there are few facilities tailored for the younger sufferer and those are not always appropriate for people with frontotemporal dementia. Also there are no specific treatments yet for frontotemporal dementia. All this adds to the distress, isolation ...

Carers TrustCarers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.

Amersham Carer Support GroupFirst Tuesday of each month 10.30 – 12.30pm These groups are for carers of people with dementia who would like to meet with other carers for support. If you are new to the groups and would like to come along, please contact the Aylesbury office ...

Buckinghamshire Dementia Information SessionsThis is a six week programme of sessions for people who have received a diagnosis of dementia. The aim of the sessions is to educate and inform people about their diagnosis and give them the support and help they need to live well with their ...

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