DementiaRoadmap

Helping primary care to support people with dementia

Referral

Clinicians can refer a person with memory problems to a consultant in a particular specialty, such as:

  • Neurologists who specialise in disorders of the brain and nerve pathways. Some neurologists have particular experience in diagnosing dementia especially young onset and atypical dementia.
  • Specialists in medicine for older people (geriatricians) who specialise in the physical illnesses and disabilities commonly associated with old age and in the care of older people. If the person who is being diagnosed has reached retirement age they may be referred to one of these specialists to see whether their symptoms are due to a physical illness, or to find out whether they are suffering from a physical illness as well as dementia.
  • General adult psychiatrists specialise in diagnosing and treating a wide range of mental health problems. A younger person may be referred to a psychiatrist to assist in the diagnosis.
  • Old age psychiatrists are psychiatrists who have further specialised in the mental health problems of older people, including dementia. They may sometimes also offer support to younger people with dementia.
  • There is a subset of psychiatrists who have specialist knowledge about people with learning disability to whom this group of patients with suspected dementia are referred.

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Resources

  • Dementia: assessment, management and support for people living with dementia and their carersJune 20 2018This NICE guideline covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia.
  • Quick contacts and linksAugust 15 2017Buckinghamshire County Council Adult Social Care Tel: 01296 383204 Alzheimer’s Society Buckinghamshire Tel: 01296 331722 Carers Bucks Tel: 0300 777 2722 NHS Oxford Health NHS Foundation Trust  Aylesbury & District Citizens Advice Bureau Tel: 03444 111 444 Buckinghamshire Mind NRS – supplier of disability equipment, mobility aids ...
  • DeAR-GP (Dementia Assessment Referral to GP)April 1 2016DeAR–GP, developed by the South London Health Innovation Network, is a simple paper based case-finding tool which has been designed for use by care workers to identify people who are showing signs of dementia.
  • Younger people with dementiaMay 19 2015This factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
  • Dementia and People with Intellectual Disabilities: Guidance on their Assessment, Diagnosis, Interventions and SupportApril 29 2015This guidance published by the British Psychological Society aims to promote effective and timely assessment, diagnosis, interventions and support to people with intellectual disabilities who develop dementia.
  • Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • Dementia assessment and referral 2014-15October 28 2014This data collection reports on the number and proportion of patients aged 75 and over admitted as an emergency for more than 72 hours who have been identified as potentially having dementia, who are appropriately assessed and, where appropriate, referred on to specialist services in England.
  • Referral for a diagnosisApril 7 2014This leaflet produced by the Lewy Body Society highlights the importance of practitioners identifying the main symptoms of Lewy body dementia early to enable referral to a specialist at a memory clinic for correct diagnosis to be made.
  • 10 key steps to improving timely diagnosis: A resource pack for Commissioners and General PracticesJanuary 29 2014This resource pack sets out key steps for Commissioners, and key steps for General Practices to improve the diagnosis of dementia, and the diagnosis pathway.
  • Dementia: A state of the nation report on dementia care and support in EnglandNovember 29 2013This report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Unlocking Diagnosis: The key to improving the lives of people with dementiaJuly 4 2012This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
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Groups

  • Dementia UKDementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA020 7697 4160https://www.dementiauk.org
  • Cognitive neurology and dementia centreThe Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.St George's Hospital, Blackshaw Road, London, SW17 0QThttps://www.stgeorges.nhs.uk/service/neuro/cognitive-neurology-dementia/
  • Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.Iris Murdoch Building, University of Stirling, Stirling, FK9 4LA, Scotland01786 467740http://www.dementia.stir.ac.uk