DementiaRoadmap

Helping primary care to support people with dementia

Advance care planning

There are a number of things that can be done to plan for care in the future. These are known collectively as ‘advance care planning’. Advance Decisions and Advance Statements enable individuals to make decisions about their views, preferences and wishes about future care before they are no longer able to and provide guidance to relatives and others supporting them.

Advance Care Planning is a process of discussion between the individual and those who provide care for them. There are sources of advice and templates on Advance Care Plans. The term ‘Living will’ is sometimes used to refer to Advance Statements.

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  • Mental Capacity Act Code of PracticeThis guidance published by the Office of the Public Guardian explains to people working with or caring for adults who lack capacity to make decisions for themselves the legal responsibilities that must be considered under the Mental Capacity Act 2005.
  • Planning for your future careThis guidance published by the National Council for Palliative Care explains advance care planning to the public. It outlines the different options available to people when planning for their end of life care.
  • Deprivation of Liberty Safeguards (DoLS)This factsheet published by the Alzheimer's Society explains the Deprivation of Liberty Safeguards (DoLS), which are part of the Mental Capacity Act 2005. It also outlines the process for getting authorisation for a deprivation of liberty and how to get it reviewed.
  • Advance decisionsAdvance Directives (also referred to as advance decisions to refuse treatment, ADRTs, or living wills) may be drawn up by any person with capacity to do so who is over the age of 18, to determine what treatment they might receive in the event of them losing capacity to make decisions under the Mental Capacity Act 2005.
  • Mental Capacity Act 2005The Mental Capacity Act 2005 came into force in 2007 and affects all those working in health and social care involved in caring for people over the age of 16 who are unable to make some or all decisions for themselves.
  • The dementia guideThis guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
  • QS30: Supporting people to live well with dementiaThis quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • RCGP Commissioning Guidance in End of Life CareThis guidance offers a logical six-step framework and overview to support GP commissioners to deliver practical improvements in end of life care, aligned with national policy and quality standards.
  • Advance care planning toolkitThis toolkit developed by the National End of Life Care Programme (NEoLCP) aims to help care providers approach the advance care planning process with confidence and knowledge.
  • Matters of Life and Death: Helping people to live well until they dieThis guidance aims to support practitioners to implement the End of Life Care Patient Charter, jointly produced by the Royal College of General Practitioners and the Royal College of Nursing.
  • Gold Standard Framework Prognostic Indicator GuidanceThis guidance aims to help GPs, clinicians and other professionals in earlier identification of those adult patients nearing the end of their life who may need additional support.
  • Commissioning End of Life Care: Act & EarlyThis guidance published by the National Council for Palliative Care aims to help healthcare commissioners to prioritise early action on end of life care to ensure people’s choices are met and to avoid unnecessary emergency hospital admissions.
  • Treatment and care towards the end of life: good practice in decision makingThis guidance provides a framework for good practice aimed at doctors when providing treatment and care for patients who are reaching the end of their lives.
  • Making decisions: who decides when you can’t?This guidance published by the Office of the Public Guardian explains how the Mental Capacity Act 2005 affects anyone who is unable to make some or all decisions for themselves. It provides advice to help people to plan ahead in case they are unable to make and understand decisions in the future.
  • Making decisions: a guide for people who work in health and social careThis guidance published by the Office of the Public Guardian explains to health and social care workers how the Mental Capacity Act 2005 affects anyone who is unable to make some or all decisions for themselves.
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