DementiaRoadmap
Helping primary care to support people with dementia
Young onset dementia
'Young onset dementia' is a term used by some health and social care professionals to describe dementia when it affects people under 65 years of age. It is also referred to as ‘early onset’ or ‘working age’ dementia.
This age distinction is becoming increasingly irrelevant as services are realigned to focus on the person and the impact of the condition, rather than the age.
Resources
Groups
Resources
- Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onsetThis guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life.
- Approaching an unthinkable future – Understanding the support needs of people living with young onset dementiaThis report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015.
- Living with young onset dementiaThis video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.
- Dementia DiariesDementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
- Younger people with dementiaThis factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
- How common is dementia?According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.
- Unlocking Diagnosis: The key to improving the lives of people with dementiaThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
- Services for younger people with Alzheimer’s disease and other dementiasThis briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer's Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.
Groups
- Admiral Nurse Dementia HelplineThe Admiral Nurse Dementia Helpline is for anyone with a question or concern about dementia. From looking out for the first symptoms of Alzheimer’s, to understanding the challenges of living with someone with vascular dementia, Admiral Nurses have the knowledge and experience to understand the situation and suggest answers that might be hard to find elsewhere.7th Floor, One Aldgate, London, EC3N 1RE0800 888 6678helpline@dementiauk.orghttps://www.dementiauk.org/get-support/dementia-helpline-alzheimers-helpline/
- Dementia UKDementia UK provides specialist dementia support for families through our Admiral Nurse service. When things get challenging or difficult for people with dementia and their families, Admiral Nurses work alongside them. They give the compassionate one-to-one support, guidance and practical solutions people need, and that can be hard to find elsewhere.7th Floor, One Aldgate, London, EC3N 1RE020 8036 5400info@dementiauk.orghttps://www.dementiauk.org
- Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.Bushbury Triangle Resource Centre, 74 Stanley Road, Wolverhampton, WV10 9EL01902 556630info@dementiapathfinders.orghttp://www.dementiapathfinders.org
- Cognitive neurology and dementia centreThe Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.St George's Hospital, Blackshaw Road, London, SW17 0QThttps://www.stgeorges.nhs.uk/service/neuro/cognitive-neurology-dementia/
- Alzheimer’s Research UKAlzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias. 3 Riverside, Granta Park, Cambridge, CB21 6AD0300 111 5555enquiries@alzheimersresearchuk.orghttp://www.alzheimersresearchuk.org
- Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.Devon House, 58 St Katharine's Way, London, E1W 1LB020 7423 3500enquiries@alzheimers.org.ukhttp://www.alzheimers.org.uk/