DementiaRoadmap

Resources

• Dementia: assessment, management and support for people living with dementia and their carersThis NICE guideline covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia.
• How living with dementia could beThis short animated video highlights how living with dementia could be through the 'well pathway for dementia'. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local community settings.
• Dementia Atlas: Putting a focus on dementiaThe Dementia Atlas is an interactive map that plots data about dementia care and support, allowing people to compare the quality of dementia care across the country.
• Immediate post diagnosis support guidanceThis guidance document, published by the London Strategic Clinical Networks, has been created for professionals to support people with dementia and their carers immediately following diagnosis.
• Prime Minister’s Challenge on Dementia 2020 Implementation PlanThis implementation plan outlines how the 50 commitments set out in the Prime Minister’s challenge on dementia 2020 will be met, ensuring that England becomes the world-leader in dementia care, research and awareness by 2020.
• The dementia profileThe dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform.
• Joint declaration on post-diagnostic dementia care and supportThis joint declaration signed by signatories across government, health, social care and the third sector sets out a shared commitment to deliver good quality post-diagnostic dementia care.
• Dementia core skills education and training frameworkThis framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
• Tailored resource for carers and care providers on supporting people to live well with dementiaThis resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
• Accessible Information StandardThe Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
Duty of Candour: Information for all providersThis document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.
Prime Minister’s challenge on dementia 2020The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
Collaborative Care and Support Planning: an introductionThis animation, commissioned by the Royal College of General Practitioners, sets out the collaborative care and support planning process in a short, easy to understand way.
Five Year Forward ViewThe Five Year Forward View published by NHS England sets out why the NHS needs to change and various models of care which could be provided in the future to deliver transformed care for patients.
State of Care 2013/14This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
Better care for older peopleThis online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.
Initial review following diagnosisThis guidance outlines the steps that a practitioner should consider during an initial review with a patient that has received a formal diagnosis of dementia.
The dementia guideThis guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
10 key steps to improving timely diagnosis: A resource pack for Commissioners and General PracticesThis resource pack sets out key steps for Commissioners, and key steps for General Practices to improve the diagnosis of dementia, and the diagnosis pathway.
The Care Bill: factsheetsThese factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
Dementia: A state of the nation report on dementia care and support in EnglandThis report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
Building dementia-friendly communities: A priority for everyoneThis report, published by the Alzheimer's Society, explores evidence from people with dementia about their experiences of living in their community and the ten key things they would like to see in a dementia-friendly community.
NHS Continuing Healthcare e-learning toolThis e-learning tool developed by NHS England and the Association of Directors of Adult Social Services will support all practitioners to improve assessment and decision making around NHS Continuing Healthcare.
QS30: Supporting people to live well with dementiaThis quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
Ten tips for communicating with a person with dementiaThese top tips produced by the Family Caregiver Alliance will help practitioners and those caring for a person with dementia to improve communication skills and ability to handle the difficult behaviour.
Unlocking Diagnosis: The key to improving the lives of people with dementiaThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
Template action plan to improve care for people with dementia in the communityThis is a template action plan for use by local authorities and commissioning consortia working together under the auspices of Health and Well-being Boards to improve care for those people with dementia who live in their own homes or in some other residential setting.
The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careThis guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
Dementia: ethical issuesThis report published by the Nuffield Council on Bioethics presents an ethical framework to help practitioners who face dilemmas in connection with the everyday care of someone with dementia.
Prepared to care – Challenging the dementia skills gapThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the scale of the challenge in training the caring professions in dementia, and how it may be met.
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