DementiaRoadmap

Helping primary care to support people with dementia

What’s new

  • Dementia Friendly Housing CharterMarch 27, 2017This toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.
  • How living with dementia could beSeptember 2, 2016This short animated video highlights how living with dementia could be through the 'well pathway for dementia'. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local community settings.
  • Dementia Atlas: Putting a focus on dementiaAugust 16, 2016The Dementia Atlas is an interactive map that plots data about dementia care and support, allowing people to compare the quality of dementia care across the country.
  • Helping your loved one with dementia eat wellJune 2, 2016This infographic published by Bupa UK offers some pointers for carers and relatives on how to help people with dementia to eat well so that they remain healthy and can continue to remain independent in their own home.
  • Better planning for car ownership and well-being in old ageMay 31, 2016This briefing paper published by the Housing Learning and Improvement Network seeks to connect the body of knowledge around the significance of car ownership in achieving well-being for older people to those making decisions that may impact on car ownership among older people.
  • Integrated approach to identifying and assessing Carer health and wellbeingMay 17, 2016This toolkit published by NHS England clarifies the new duties on NHS organisations under the Care Act 2014 and the Children and Families Act 2014, provides a template Memorandum of Understanding (MOU) to support joined up working locally, and includes examples of positive practice of work that have proven successful in supporting carers and their families.
  • Fix dementia care – NHS and care homesApril 29, 2016This report published by the Alzheimer's Society marks the second phase of a campaign looking at the experiences of people with dementia in a range of health and care settings. It contains the results of a survey of care home managers and the voices of people with dementia, their families and carers.
  • Dementia rarely travels alone: living with dementia and other conditionsApril 20, 2016This report published by the All Party Parliamentary Group (APPG) on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people.
  • Race Against DementiaApril 19, 2016Race Against Dementia is an alliance of groups currently providing information and support to people from Black, Asian and minority ethnic communities in the UK.
  • House of MemoriesApril 18, 2016House of Memories is an award-winning training programme, run by the Museum of Liverpool, which targets the carers of people living with dementia. It provides participants with information about dementia and equips them with the practical skills and knowledge to facilitate a positive quality of life experience for people living with dementia.
  • Dementia and comorbidities: Ensuring parity of careApril 14, 2016This report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year.
  • DiADeM (Diagnosis of Advanced Dementia Mandate in Care Homes)April 14, 2016This protocol developed by the Yorkshire and Humber Dementia Strategic Clinical Network aims to support GPs to diagnose dementia for people living with advanced dementia in a care home setting.
  • Health matters: midlife approaches to reduce dementia riskApril 12, 2016This guidance published by Public Health England makes the case for action in midlife to promote healthy lifestyles that can reduce the risk of dementia.
  • Playlist for LifeApril 10, 2016Being able to respond to music is the one thing dementia cannot destroy. Playlist for Life encourages families and caregivers to create a playlist of personally meaningful music on an iPod for people with dementia.
  • Immediate post diagnosis support guidanceApril 9, 2016This guidance document, published by the London Strategic Clinical Networks, has been created for professionals to support people with dementia and their carers immediately following diagnosis.
  • Engage & CreateApril 5, 2016Engage & Create is a not-for-profit organisation that uses creativity and conversation to improve the quality of life for people with dementia and those that care for them.
  • DeAR-GP (Dementia Assessment Referral to GP)April 1, 2016DeAR–GP, developed by the South London Health Innovation Network, is a simple paper based case-finding tool which has been designed for use by care workers to identify people who are showing signs of dementia.
  • Dementia advisers surveyApril 1, 2016This report published by Ipsos MORI presents the findings of a survey into the provision of dementia adviser services throughout England.
  • The experiences, needs and outcomes for carers of people with dementiaMarch 30, 2016This comprehensive literature review undertaken by the the Association of Dementia Studies at the University of Worcester, examines the experiences and needs of carers of people with dementia and the evidence of outcomes produced from a wide range of interventions. Download The experiences, needs and outcomes ...
  • Care of dying adults in the last days of lifeMarch 21, 2016This guideline published by the National Institute for Health and Care Excellence (NICE) covers the clinical care of adults (18 years and over) who are dying during the last 2 to 3 days of life. The guideline contains specific advice relevant when caring for people with dementia.
  • Prime Minister’s Challenge on Dementia 2020 Implementation PlanMarch 6, 2016This implementation plan outlines how the 50 commitments set out in the Prime Minister’s challenge on dementia 2020 will be met, ensuring that England becomes the world-leader in dementia care, research and awareness by 2020.
  • Ladder to the MoonMarch 3, 2016Ladder to the Moon provides workforce and service development that enables health and care organisations to develop active, creative, vibrant care services. It uses approaches that incorporate creativity and the arts, and involve staff, older people living with dementia and other long-term conditions, and the wider community.
  • ThriveMarch 1, 2016Thrive is the leading charity in the UK using gardening to change the lives of disabled people. Thrive run structured programmes of activities for people with dementia which focus on positive reminiscence, re-connecting with others including friends and family and gentle appropriate exercise and cognitive stimulation
  • The dementia profileMarch 1, 2016The dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform.
  • Health Education EnglandFebruary 26, 2016Health Education England (HEE) works across England to deliver high quality education and training for a better health and healthcare workforce.
  • HealthwatchFebruary 22, 2016Healthwatch England is the national consumer champion in health and care. We have significant statutory powers to ensure the voice of the consumer is strengthened and heard by those who commission, deliver and regulate health and care services.
  • Active Minds – dementia activity resourcesFebruary 15, 2016Active Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.
  • The Daily SparkleFebruary 8, 2016The Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • RevitaliseFebruary 1, 2016Revitalise is a national charity providing short breaks and holidays (respite care) for disabled people and carers. We also offer inspirational opportunities for volunteers through one of the largest, most diverse volunteer programmes in the UK.
  • The ExtraCare Charitable TrustJanuary 25, 2016The ExtraCare Charitable Trust is a not for profit developer and operator of ExtraCare Villages and Housing schemes which has retirement villages and housing schemes across the Midlands and North. ExtraCare's award-winning Enriched Opportunities Programme® (EOP) supports residents with dementia and dementia-related conditions.
  • Dementia AdventureJanuary 18, 2016Dementia Adventure is a charity dedicated to bringing the benefits of nature based activities and adventures into the lives of more people living with dementia.
  • Arts 4 DementiaJanuary 11, 2016Arts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers.
  • Joint declaration on post-diagnostic dementia care and supportJanuary 8, 2016This joint declaration signed by signatories across government, health, social care and the third sector sets out a shared commitment to deliver good quality post-diagnostic dementia care.
  • Dementia core skills education and training frameworkOctober 29, 2015This framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • Dementia and homecare: driving quality and innovationOctober 22, 2015This report published by the United Kingdom Homecare Association demonstrates how skilled homecare can play a pivotal role in enabling people with dementia to live well in their preferred familiar environment. Through a series of innovative practice examples, the report shows why good homecare should ...
  • Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onsetOctober 22, 2015This guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life.
  • Making your home dementia friendlyOctober 20, 2015This booklet published by the Alzheimer's Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing.
  • Approaching an unthinkable future – Understanding the support needs of people living with young onset dementiaOctober 7, 2015This report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015.
  • Prevalence of dementia in population groups by protected characteristics: a systematic review of the literatureOctober 2, 2015This literature review published by Public Health England examines evidence on how the prevalence of dementia varies with different characteristics, such as ethnicity, gender and religion.
  • A practical guide to healthy ageingOctober 1, 2015This guide published by NHS England and Age UK contains advice to help improve the health and general fitness of people of any age, but it is particularly relevant for people who are about 70 years or older.
  • Models of dementia assessment and diagnosis: Indicative cost reviewSeptember 28, 2015This report published by NHS England is designed to provide commissioners and service providers with detailed information about real alternative models of dementia assessment and diagnosis, with a cost breakdown.
  • Evaluation of the Bradford Dementia Friendly Communities ProgrammeSeptember 16, 2015This report published by the Joseph Rowntree Foundation identifies the distinctive features of the Bradford Dementia Friendly Communities programme, and examines how people with dementia can influence what a Dementia Friendly Bradford should be like.
  • Peer Support for People with Dementia: A social return on investment studySeptember 16, 2015This report published by the Health Innovation Network South London, the Academic Health Science Network for South London, outlines the findings of a study which demonstrated that the positive social value of peer support groups for people with dementia, their carers and volunteers can be far greater than the investment.
  • Tailored resource for carers and care providers on supporting people to live well with dementiaSeptember 16, 2015This resource published by the National Institute for Health and Care Excellence (NICE) highlights the key messages from 10 quality statements which form the quality standard for supporting people to live well with dementia and shows what they mean for carers and care providers.
  • On the journey to becoming a dementia friendly organisationSeptember 3, 2015This paper shares the lessons that have been learned through the Joseph Rowntree Foundation’s Dementia without Walls programme which started in June 2012 with a vision of making the UK a better place for people with dementia.
  • How can we make our cities dementia friendly?September 3, 2015This briefing paper published by the Joseph Rowntree Foundation contributes to the emerging evidence base for Dementia friendly communities by drawing out the key messages from independent evaluations of their work programmes in Bradford and York.
  • Developing a national user movement of people with dementiaSeptember 3, 2015This report published by the Joseph Rowntree Foundation explores the learning from the Dementia Engagement and Empowerment Project (DEEP), a national network that engages and empowers people with dementia to influence the services and policies that affect them.
  • Evaluation of the York Dementia Friendly Communities ProgrammeSeptember 3, 2015This report published by the Joseph Rowntree Foundation identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme.
  • World Alzheimer Report 2015: The Global Impact of DementiaAugust 25, 2015The World Alzheimer Report 2015, 'The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends' makes key recommendations to provide a global framework for action on dementia.
  • Accessible Information StandardJuly 28, 2015The Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
  • A proposal for a UK dementia eye care pathwayJune 11, 2015This article published in the journal Optometry in Practice introduces a proposal for a UK dementia eye care pathway and outlines the areas that should be covered within a pathway.
  • Living with young onset dementiaJune 10, 2015This video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.
  • Women and Dementia: A global research overviewJune 5, 2015This report published by Alzheimer’s Disease International explores the main issues affecting women in relation to dementia from an international perspective.
  • The Reading AgencyJune 4, 2015The Reading Agency is a charity working to inspire more people to read more, encourage them to share their enjoyment of reading and celebrate the difference that reading makes to all our lives.
  • All-Party Parliamentary Group on Dementia (APPG)June 4, 2015The All-Party Parliamentary Group on Dementia (APPG) is a cross party group made up of MPs and Peers with an interest in dementia.
  • Dementia DiariesJune 4, 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • Dementia Engagement and Empowerment Project (DEEP)June 2, 2015The Dementia Engagement and Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia.
  • Women’s experiences of dementiaJune 1, 2015The 'Women's experiences of dementia' website contains a wealth of stories which highlight the experiences of women affected by dementia.
  • Innovations in DementiaJune 1, 2015Innovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals to develop and test projects that will enhance the lives of people with dementia.
  • The Reader OrganisationMay 28, 2015The Reader Organisation is a charitable social enterprise working to connect people with literature through shared reading. The older people and dementia work programme uses shared reading to improve quality of life and care for people living with dementia and their carers.
  • Dementia PathfindersMay 28, 2015Dementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.
  • Admiral Nursing DIRECTMay 28, 2015Admiral Nursing DIRECT is a telephone and email helpline run by experienced Admiral Nurses for family and professional carers, people with dementia and those worried about their memory.
  • Cognitive neurology and dementia centreMay 19, 2015The Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.
  • Younger people with dementiaMay 19, 2015This factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
  • Carersmart: Making life a little easier for carersMay 19, 2015 Offers, benefits and discounts available exclusively for carers and people with care needs
  • YoungDementia UKMay 19, 2015YoungDementia UK is a charity based in Oxfordshire that aims to help people whose lives are affected by young onset dementia.
  • Dementia and People with Intellectual Disabilities: Guidance on their Assessment, Diagnosis, Interventions and SupportApril 29, 2015This guidance published by the British Psychological Society aims to promote effective and timely assessment, diagnosis, interventions and support to people with intellectual disabilities who develop dementia.
  • Good to go: A guide to dementia-friendly days outApril 28, 2015This handbook published by Care UK aims to support carers relatives and friends who want to enjoy a variety of outings and trips with someone living with dementia.
  • Information about Lewy Body DementiaApril 27, 2015This handbook published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.
  • Dementia Peer Support Resource PackApril 24, 2015This resource pack, published by the Health Innovation Network, the Academic Health Science Network for South London, aims to promote and encourage more peer support opportunities for people with dementia.
  • Creating a dementia friendly workplace: A practical guide for employersApril 22, 2015This guide published by the Alzheimer's Society is designed to help employers provide support for staff members with dementia. It may also be a useful resource for people living with, or affested by, dementia in the workplace.
  • The Sound Doctor: Getting the best out of life with dementiaMarch 23, 2015A series of films providing information to families living with dementia through the entertaining medium of TV/Film.
  • Dementia Friendly Communities: New domains and global examplesMarch 20, 2015This report, published by Alzheimer’s Disease International, highlights the emerging trend to create dementia-friendly communities as a global response against stigma in an effort to form more inclusive societies for people living with dementia.
  • The Imperial Memory UnitMarch 19, 2015The Imperial Memory Unit within Charing Cross Hospital offers patients access to the latest treatments for memory disorders through participation in clinical trials and research.
  • Award in Understanding DementiaMarch 18, 2015The Alzheimer's Society and the Royal Society for Public Health have joined forces to create a new qualification to help people understand more about dementia.
  • Duty of Candour: Information for all providersMarch 15, 2015This document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.
  • Women and dementia: A marginalised majorityMarch 8, 2015This report published by Alzheimer's Research UK reveals that dementia has become the leading cause of death among British women and that women are far more likely to end up as carers of those with dementia than men, suffering physical and emotional stress and job losses in the process.
  • Caring for CarersMarch 3, 2015The Caring for Carers Hub developed by the Royal College of General Practitioners is a web based tool that can help primary care staff to more effectively support carers and the people they care for.
  • Sporting Memories NetworkMarch 2, 2015The Sporting Memories Network, also known as Replay, is a national charity which promotes the use of sporting memories to improve the wellbeing of older people and to tackle dementia, depression and social isolation.
  • Join Dementia ResearchFebruary 27, 2015Join Dementia Research aims to accelerate the pace of dementia research by allowing people with and without dementia to register their interest in studies, helping researchers find the right participants at the right time.
  • Prime Minister’s challenge on dementia 2020February 21, 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • Reading well books on prescription for dementiaFebruary 4, 2015The Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition.
  • No Secrets: guidance on protecting vulnerable adults in careJanuary 22, 2015This guidance document published by the Department of Health sets out a code of practice for the protection of vulnerable adults in care.
  • Collaborative Care and Support Planning: an introductionJanuary 19, 2015This animation, commissioned by the Royal College of General Practitioners, sets out the collaborative care and support planning process in a short, easy to understand way.
  • Mental Health Act 1983: Code of PracticeJanuary 16, 2015The revised code of practice shows professionals how to carry out their roles and responsibilities under the Mental Health Act 1983, to ensure that all patients receive high quality and safe care.
  • Carers AssessmentJanuary 13, 2015This factsheet published by Carers UK outlines the Carers Assessment, a legal entitlement which explores how being a carer affects someone, how much caring they can realistically do, and any help they may need.
  • Dementia Action AllianceJanuary 13, 2015The Dementia Action Alliance brings together organisations across England committed to transforming the lives of people with dementia and their carers.
  • Pain in People with Dementia: A Silent TragedyJanuary 7, 2015This report, published by Napp Pharmaceuticals, draws on a survey of interviews with experts, major providers of care, and on desk research. It quantifies the problem and sets out the issues in recognising, assessing and managing pain in people with dementia.
  • 10 Top Tips for supporting carers of people living with cancerDecember 12, 2014This guidance produced by Macmillan Cancer Support offers some top tips for primary care practitoners to support carers of people living with cancer.
  • Commissioning for Carers PrinciplesDecember 5, 2014This practical tool is part of a suite of products that will help commissioners to deliver what carers say is important to them in ways that have been shown to work effectively and efficiently in practice.
  • Carers Evidence Summits ebookDecember 5, 2014NHS Improving Quality has produced an ebook to share the Commitment to Carers achievements over the last year. It includes the findings from the regional Carers Evidence Summits and links to over 50 case studies.
  • Mental Capacity Act Code of PracticeNovember 21, 2014This guidance published by the Office of the Public Guardian explains to people working with or caring for adults who lack capacity to make decisions for themselves the legal responsibilities that must be considered under the Mental Capacity Act 2005.
  • Faculty for the Psychology of Older PeopleNovember 14, 2014The Faculty for the Psychology of Older People (FPoP), formely known as PSIGE, is part of the British Psychological Society's Division of Clinical Psychology. It works to encourage the exchange of information, ideas and expertise about psychological approaches with older people.
  • Wearing glasses with dementia factsheetNovember 10, 2014This factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
  • Eye examinations for people with dementia factsheetNovember 10, 2014This factsheet provides information on eye examinations for people with dementia. It will be useful for people with dementia, their families, carers and professionals.
  • Dementia Revealed: What primary care needs to knowOctober 30, 2014This toolkit written by Dr Elizabeth Barrett is intended as an educational resource for use by GPs and practice nurses to expand their knowledge and confidence.
  • Cracks in the pathwayOctober 30, 2014This report presents the findings of a Care Quality Commission review of the care people living with dementia receive as they moved between care homes and acute hospitals.
  • Dementia assessment and referral 2014-15October 28, 2014This data collection reports on the number and proportion of patients aged 75 and over admitted as an emergency for more than 72 hours who have been identified as potentially having dementia, who are appropriately assessed and, where appropriate, referred on to specialist services in England.
  • Five Year Forward ViewOctober 23, 2014The Five Year Forward View published by NHS England sets out why the NHS needs to change and various models of care which could be provided in the future to deliver transformed care for patients.
  • British Institute of Learning DisabilitiesOctober 20, 2014British Institute of Learning Disabilities (BILD) wants people with learning disabilities to be valued equally, participate fully in their communities and be treated with dignity and respect.
  • State of Care 2013/14October 16, 2014This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
  • Supporting a person with dementiaOctober 16, 2014This Easy Read factsheet published by the the Alzheimer's Society provides advice for someone with learning disabilities who may have a friend or relative with dementia.
  • Improving the delivery of adult diabetes care through integrationOctober 10, 2014This report published by Diabetes UK explains how diabetes care can be improved to achieve better outcomes for people with diabetes. The challenge for commissioners and healthcare providers locally is to make the system work to support that.
  • British Heart FoundationSeptember 29, 2014The British Heart Foundation is a UK charity leading the fight against coronary heart disease funding pioneering research to transform the lives of people living with heart and circulatory conditions.
  • National Diabetes AuditSeptember 29, 2014The National Diabetes Audit (NDA) is a major national clinical audit, which measures the effectiveness of diabetes healthcare against NICE Clinical Guidelines and NICE Quality Standards, in England and Wales.
  • Diabetes UKSeptember 29, 2014Diabetes UK is a leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes.
  • Grief, loss and bereavementSeptember 22, 2014This factsheet published by the Alzheimers Society looks at some of the feelings carers may experience in caring for someone living with dementia and suggests ways to cope. It also looks at supporting a person with dementia to cope with grief and bereavement.
  • World Alzheimer Report 2014, Dementia and Risk ReductionSeptember 16, 2014The World Alzheimer Report 2014, Dementia and Risk Reduction: An analysis of protective and modifiable factors critically examines the evidence for the existence of modifiable risk factors for dementia.
  • Planning for your future careSeptember 16, 2014This guidance published by the National Council for Palliative Care explains advance care planning to the public. It outlines the different options available to people when planning for their end of life care.
  • Listen, talk, connect: Communicating with people living with dementiaSeptember 5, 2014This handbook published by Care UK is a guide to support carers relatives and friends who want to communicate effectively with someone living with dementia.
  • A vision of care fit for the twenty-first centurySeptember 3, 2014This report published by the Commission on Residential Care offers a vision of housing with care fit for the twenty-first century, not bound by existing definitions but based on the outcomes that people want and value.
  • Diabetes sample service specificationAugust 14, 2014The service specification, published by NHS England, outlines the provision of high quality care for all those with diabetes. It describes all the services needed to provide a complete care pathway for people with diabetes.
  • Self Management UKAugust 5, 2014Self Management UK provide support and advice for people living with a long term health condition, such as asthma, diabetes, heart disease, COPD, arthritis and chronic pain.
  • Building on the National Dementia Strategy: Change, progress and prioritiesJuly 27, 2014This report published by the All Party Parliamentary Party Group on Dementia (APPG) calls for a new long term strategy for dementia to be a worthy successor to the National Dementia Strategy for Dementia in England and the Prime Minister's challenge on dementia.
  • Dementia Research CentreJuly 11, 2014The Dementia Research Centre, based at the National Hospital for Neurology and Neurosurgery, is one of the UK's leading centres for clinical research into dementia.
  • Bradford Dementia GroupJuly 11, 2014Bradford Dementia Group is a multi-disciplinary, multi-professional group committed to making a difference to policy and practice in dementia care, through excellence in research, education and training.
  • Dementia Services Development CentreJuly 11, 2014The Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.
  • Disabled Living FoundationJuly 11, 2014The Disabled Living Foundation (DLF) is a national charity providing impartial advice, information and training on independent living.
  • Telehealth and Telecare AwareJuly 11, 2014This online information portal provides a news and information service for people interested in telecare and telehealth.
  • Better care for older peopleJuly 11, 2014This online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.
  • Marie Curie End of Life Care AtlasJuly 4, 2014The Marie Curie End of Life Care Atlas is an information portal that gives people who plan and commission end of life care new insight into care provision in their local areas.
  • National Council for Palliative CareJuly 4, 2014The National Council for Palliative Care (NCPC) is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.
  • Gold Standards Framework CentreJuly 4, 2014The National Gold Standards Framework (GSF) Centre in End of Life Care is the national training and coordinating centre for all GSF programmes, enabling generalist frontline staff to provide a gold standard of care for people nearing the end of life.
  • Employers for CarersJune 25, 2014Employers for Carers provides practical, ‘hands-on’, help to employers to support carers in their workforce.
  • Short Breaks NetworkJune 25, 2014The Short Breaks Network is the national co-ordinating body for the short break sector in the UK, providing short breaks for disabled children, young people and their families.
  • Bladder and Bowel CommunityJune 25, 2014The Bladder and Bowel Community is the UK wide charity for people with bladder and bowel control problems. It provides information and support services, including a confidential helpline, for anyone affected by these conditions as well as their families, carers and healthcare professionals.
  • Continence Product AdvisorJune 25, 2014The Continence Product Advisor is a website providing evidence-based guidance on how to select appropriate products for managing incontinence and use them effectively.
  • Dementia-friendly technology charterJune 23, 2014The Dementia-friendly technology charter gives people with dementia and their carers information on how to access technology. It also provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs.
  • Foundation for People with Learning DisabilitiesJune 18, 2014The Foundation for People with Learning Disabilities influences government and local authority policies and services so that they better meet the needs of people with learning disabilities, their families and carers.
  • The National Valuing Families ForumJune 18, 2014The National Valuing Families Forum brings together a network of regional family carer organisations to consult and feed into government policy and legislation affecting those with learning disabilities and their families.
  • Marie Curie Cancer CareJune 17, 2014Marie Curie Cancer Care is a UK charity dedicated to the care of people with terminal illnesses.
  • Improving cancer patient experience: A top tips guideJune 17, 2014This guide published by Macmillan Cancer Support provides top tips to support professionals make service improvements in response to the National Cancer Survey and deliver improved patient experience.
  • Cancer Delivery Support ToolJune 17, 2014The Cancer Delivery Support Tool developed by Macmillan Cancer Support is an electronic support tool to assist GPs and Health Professionals to make an early diagnosis of five types of cancer: Oesophageal, Pancreatic, Ovarian, Colorectal and Lung.
  • Improving the quality of cancer care in primary careJune 17, 2014This toolkit developed by Macmillan Cancer Support aims to support the primary care professionals to develop initiatives and programmes which have a positive impact on the care of people daiagnosed with cancer, their families and carers.
  • Cancer information factsheetsJune 17, 2014These factsheets published by Macmillan Cancer Support cover a variety of topics relating to cancer, such as chemotherapy drugs, less common cancer types and practical issues for cancer care professionals.
  • Macmillan Cancer SupportJune 17, 2014Macmillan Cancer Support is a national charitable organisation that provides practical, medical and financial support and push for better cancer care.
  • Dementia CarerJune 9, 2014Dementia Carer is a website that provides access to a wide range of video clips featuring carers discussing what helps them cope with issues they encounter in caring for someone with dementia.
  • Foundation for Assistive TechnologyJune 9, 2014The Foundation for Assistive Technology aims to develop a thriving market in equipment that promotes independent living and meets the real needs of disabled and older people.
  • Making your home a better place to live with dementiaJune 9, 2014This briefing published by Care and Repair England outlines how people might adapt their homes to help better manage the symptoms associatted with dementia.
  • Assist UKJune 9, 2014Assist UK leads a UK wide network of locally-situated Disabled Living Centres. Most centres include a permanent exhibition of products and equipment that provide people with opportunities to see and try products and equipment to support them to live independently.
  • Carers DirectJune 6, 2014Carers Direct offer a helpline for carers that need help with their caring role and want to talk to someone about what options are available to them.
  • Carers UKJune 5, 2014Carers UK is a national membership charity for carers, that is both a support network and a movement for change.
  • Carers TrustJune 5, 2014Carers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.
  • The Disabled Parents NetworkJune 5, 2014The Disabled Parents Network is a National network of Disabled Parents, helping each other and bringing about change for disabled people who are parents or who hope to become parents, their families, friends and supporters.
  • Duty to Care? Supporting and involving unpaid carers of people at the end of lifeJune 1, 2014This resource covers the three plenary discussion sessions at the ‘Duty to Care?' conference held in 2013 facilitated by the National Council for Palliative Care. Three detailed scenarios were debated to help identify and explore the practical issues involved in being or supporting a carer.
  • Driver and Vehicle Licensing Agency (DVLA)May 21, 2014The Driver and Vehicle Licensing Agency (DVLA) maintain registers of drivers and vehicles in Great Britain. It is important that practitioners encourage their patients with dementia to inform the DVLA of their diagnosis.
  • Driving and dementiaMay 21, 2014This Alzheimer's Society factsheet explains the legal situation around driving and dementia, and gives some tips on stopping driving.
  • Care and Support Jargon BusterMay 14, 2014The Care and Support Jargon Buster published by Think Local Act Personal is a plain English guide to the most commonly used social care words and phrases and what they mean.
  • ACEmobileMay 13, 2014ACEmobile is a mobile-friendly version of the Addenbrooke’s Cognitive Examination (ACE-III), a popular and commonly-used screening tools for dementia.
  • Montreal cognitive assessmentMay 12, 2014The Montreal Cognitive Assessment (MoCA) is a rapid screening instrument for mild cognitive dysfunction suitable for use in primary care settings.
  • Addenbrookes cognitive examination-IIIMay 12, 2014The Addenbrooke's Cognitive Examination-III (ACE) is one of the most popular and commonly used cognitive tests used in dementia clinics and in the assessment of other neurological disorders.
  • Mini-CogMay 12, 2014The Mini-Cog is a brief cognitive function test to screen for cognitive impairment in older adults in the primary care setting.
  • General practitioner assessment of cognitionMay 12, 2014The General practitioner assessment of cognition (GPCOG) is a reliable, valid and efficient tool to use to screen for dementia in primary care settings for people with carers.
  • Six Item Cognitive Impairment TestMay 12, 2014The Six Item Cognitive Impairment Test (6CIT) is a brief cognitive function test which takes less than five minutes and is widely used in primary care settings.
  • Abbreviated mental test scoreMay 12, 2014The Abbreviated mental test score (AMTS) was developed in 1972 for assessing cognition. The test takes around five minutes and is widely used, particularly in UK general hospital settings.
  • Focus on dementia researchMay 10, 2014The National Institute for Health Research (NIHR) website Focus on Dementia showcases some of the cutting-edge clinical research that could bring new hope to dementia patients and their families.
  • Carer’s health checkMay 8, 2014A Carer's health check should be offered to any newly-registered carers according to local guidelines or the terms of any Local Enhanced Service.
  • Initial review following diagnosisMay 7, 2014This guidance outlines the steps that a practitioner should consider during an initial review with a patient that has received a formal diagnosis of dementia.
  • Blackfriars Consensus on promoting brain healthMay 3, 2014The Blackfriars Consensus, published by the UK Health Forum and Public Health England, explores the potential for incorporation of dementia risk reduction into current approaches for non-communicable diseases.
  • The Dementia Training CentreApril 12, 2014The Dementia Training Centre offers a range of courses from face to face training programmes, tailored to the meet the needs of your organisation, free e-learning packages designed by experts, to a Master’s degree offering specialist dementia training.
  • Referral for a diagnosisApril 7, 2014This leaflet produced by the Lewy Body Society highlights the importance of practitioners identifying the main symptoms of Lewy body dementia early to enable referral to a specialist at a memory clinic for correct diagnosis to be made.
  • Are you worried about Dementia?April 7, 2014This leaflet produced by the Lewy Body Society explains the main symptoms and causes of dementia. It also outlines the distinct symptoms associated with Lewy body dementia.
  • What causes dementia?April 6, 2014Dementia is the result of brain cells being damaged in an ongoing way. This happens as a result of a number of different diseases (sometimes referred to as ‘types’ of dementia). It is not an inevitable part of ageing.
  • How common is dementia?April 6, 2014According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.
  • Parkinson’s UKApril 4, 2014Parkinsonism is a feature associated with some dementias, particularly Parkinson's dementia and dementia with Lewy bodies. Parkinson's UK offers support for patients and carers, including excellent advice on coping with daily activities.
  • What is dementia?April 2, 2014This resource will help practitioners to understand that dementia is more than just difficulties with memory. Dementia is not a single disease but a term used to describe a group of symptoms.
  • Be head strongMarch 16, 2014This guidance published by the Alzheimer's Society contains tips to help people reduce the risk of developing dementia.
  • AT DementiaMarch 13, 2014AT Dementia is web-based information resource on assistive technologies (including telecare) for people with dementia.
  • Choosing your hospitalMarch 12, 2014Most patients can choose which hospital they are seen in according to what matters most to them, whether it's location, waiting times, reputation, clinical performance, visiting policies, parking facilities or other patients' comments.
  • Diabetes care planning reviewMarch 12, 2014Practitioners should provide an annual care planning review to all people with diabetes to ensure that each patient gets the right support for managing their diabetes. This short film produced by Diabetes UK aims to help patients to understand what care planning is, and how they can get more involved in their diabetes care.
  • Deprivation of Liberty Safeguards (DoLS)March 5, 2014This factsheet published by the Alzheimer's Society explains the Deprivation of Liberty Safeguards (DoLS), which are part of the Mental Capacity Act 2005. It also outlines the process for getting authorisation for a deprivation of liberty and how to get it reviewed.
  • Advance decisionsMarch 5, 2014Advance Directives (also referred to as advance decisions to refuse treatment, ADRTs, or living wills) may be drawn up by any person with capacity to do so who is over the age of 18, to determine what treatment they might receive in the event of them losing capacity to make decisions under the Mental Capacity Act 2005.
  • Mental Capacity Act 2005March 5, 2014The Mental Capacity Act 2005 came into force in 2007 and affects all those working in health and social care involved in caring for people over the age of 16 who are unable to make some or all decisions for themselves.
  • Lewy Body SocietyMarch 5, 2014The Lewy Body Society is a charity which aims to raise awareness of Dementia with Lewy bodies for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease.
  • Dementia UKMarch 3, 2014Dementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.
  • The dementia guideFebruary 22, 2014This guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
  • Alzheimer’s Research UKFebruary 18, 2014Alzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias.
  • Can dementia be prevented?February 16, 2014These web pages on the NHS Choices portal give advice on leading a healthy lifestyle to help lower your risk of developing dementia when you are older.
  • Alzheimer’s SocietyFebruary 14, 2014Alzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.
  • Life After Death: Six steps to improve support in bereavementJanuary 30, 2014This briefing paper published by the National Council for Palliative Care identifies six steps to address bereavement as a major public policy issue.
  • 10 key steps to improving timely diagnosis: A resource pack for Commissioners and General PracticesJanuary 29, 2014This resource pack sets out key steps for Commissioners, and key steps for General Practices to improve the diagnosis of dementia, and the diagnosis pathway.
  • Am I at risk of developing dementia?January 16, 2014This factsheet published by the Alzheimer's Society explains what we know about the risks associated with developing different types of dementia, and gives some advice on the steps people can take to reduce their risk.
  • The Care Bill: factsheetsJanuary 10, 2014These factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
  • Putting dementia on the mapNovember 29, 2013Putting dementia on the map published by the Department of Health draws on data and information about dementia health and care, dementia friendly communities and research.
  • Dementia: A state of the nation report on dementia care and support in EnglandNovember 29, 2013This report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
  • Virtual Hospital modelling toolNovember 5, 2013The Virtual Hospital modelling tool, developed by the Dementia Services Development Centre, aims to show good design can help to make an acute hospital setting dementia-friendly.
  • Carers services guide – Setting up support services for carersOctober 28, 2013This guide published by Help the Hospices provides a framework for organisations planning to set up support services for carers of people with life-limiting and terminal illnesses.
  • Thinking Ahead: a planning guide for familiesOctober 18, 2013This guidance, published by the Foundation for People with Learning Disabilities, provides a clear framework to help the families of people with learning disabilities plan for the future and address the concerns they have.
  • Diabetes care pathwayOctober 14, 2013This NICE care pathway defines clinical best practice for diabetes care. It covers managing type 1 and type 2 diabetes.
  • Improving Dementia Education and Awareness (IDEA)October 13, 2013This online resource managed by the University of Nottingham is aimed at improving the care and quality of life for people with dementia.
  • Peer support networks and dementia advisers: evaluationOctober 9, 2013This report, published by the Department of Health, provides the findings of the Healthbridge evaluation into the role that dementia advisers and peer support networks can provide in post diagnostic support for people with dementia and their carers.
  • Enhanced service for people with dementia in primary careSeptember 30, 2013This short paper by Alistair Burns and Laurence Buckman summarises a multi-disciplinary group discussion on how the Enhanced Service might be optimally used to increase the numbers of people receiving a diagnosis and accessing post diagnostic support.
  • ICD deactivation at the end of life: Principles and practiceSeptember 30, 2013Designed for any health professionals involved in caring for patients with an Implantable Cardioverter Defibrillator (ICD), this document discusses issues relating to ICDs in the management of advanced heart disease.
  • Diabetes Risk ScoreSeptember 29, 2013The Diabetes Risk Score is an assessment tool which aims to identify individuals with impaired glucose regulation (IGR) and is designed to predict an individual’s risk of developing Type 2 diabetes within the next ten years. It was developed by University of Leicester and University Hospitals of Leicester NHS Trust in collaboration with Diabetes UK.
  • Journey of Caring: An analysis of long-term care for dementiaSeptember 19, 2013This report published by Alzheimer’s Disease International highlights the importance of helping people with dementia to remain independent and living in their own homes as part of the local community for as long as possible.
  • Guidance on the use of neuro-imaging in the assessment of dementia in Primary CareSeptember 12, 2013This guidance for Clinical Commissioning Groups and Health and Wellbeing Boards covers the role of neuro-imaging in the assessment and diagnosis of dementia in primary care.
  • The Triangle of Care – carers included: A guide to best practice for dementia careSeptember 4, 2013The Triangle of Care is a model for dementia care that supports a partnership approach between the person with dementia, the staff member and carer. It is designed to ensure that carers are appropriately included and involved in the care of people with dementia, particularly in hospital settings.
  • A road less rocky – supporting people with dementiaSeptember 4, 2013This report published by the Carers Trust highlights that carers of people with dementia are not getting the support and advice they often desperately need.
  • Building dementia-friendly communities: A priority for everyoneSeptember 3, 2013This report, published by the Alzheimer's Society, explores evidence from people with dementia about their experiences of living in their community and the ten key things they would like to see in a dementia-friendly community.
  • Dementia adviser service: evaluationAugust 31, 2013This report published by the Alzheimer's Society presents the findings of an evaluation of the Pathfinder Dementia Adviser services from the perspective of service users.
  • Dementia e-learning sessionsAugust 26, 2013An interactive e-learning resource to support the training of all health and social care staff in recognising, assessing, and managing dementia, and providing high quality dementia care.
  • Assistive technology – devices to help with everyday livingAugust 12, 2013This factsheet published by the Alzheimer's Society explores technological developments that can help make life easier for people with dementia and their carers in certain situations.
  • Frontotemporal dementiaAugust 6, 2013This article published in the British Medical Journal highlights some of the issues pertinent to Frontotemporal dementia, a clinically and pathologically heterogeneous group of non-Alzheimer dementias characterised collectively by relatively selective, progressive atrophy involving the frontal or temporal lobes, or both.
  • National Audit of Dementia in General HospitalsJuly 12, 2013The second report of the National Audit of Dementia in General Hospitals identifies continuing problems in the quality of care received by people with dementia in hospitals in England and Wales.
  • Dementia does not discriminate – The experiences of black, Asian and minority ethnic communitiesJuly 2, 2013This report, produced by the All Party Parliamentary Group (APPG) on Dementia, looks at the experiences of black, Asian and minority ethnic (BAME) communities in dealing with the condition.
  • Cataracts and dementia factsheetJune 25, 2013The information in this factsheet will help people in with both dementia and sight loss and how to help someone with dementia cope with surgery.
  • Guidance for Learning Disability Partnership BoardsJune 18, 2013This booklet offers guidance to Learning Disability Partnership Boards to help them ensure that carers of people with learning disabilities, and carers with learning disabilities are supported and involved in local service developments which affect their lives, and the lives of the people they care for.
  • What is dementia with Lewy bodies (DLB)?June 7, 2013This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for Dementia with Lewy bodies (DLB).
  • Dementia and aggressive behaviourMay 20, 2013This factsheet produced by the Alzheimer's Society aims to aid understanding about what may cause this type of behaviour and offers some ways to deal with it.
  • Participation in dementia researchMay 19, 2013This short film aims to encourage more patients and carers to take part in ground-breaking research into dementia and other neurodegenerative diseases.
  • Dementia coding clean-up exerciseMay 13, 2013This exercise devised by Dr Paul Russell aims to support GPs to identify problems in coding, which are contributing to low rates of dementia diagnosis on practice registers.
  • NHS Continuing Healthcare e-learning toolMay 8, 2013This e-learning tool developed by NHS England and the Association of Directors of Adult Social Services will support all practitioners to improve assessment and decision making around NHS Continuing Healthcare.
  • Dementia: Finding housing solutionsMay 7, 2013This report, published by the National Housing Federation, highlights how good housing and related services can impact positively on the lives of people with dementia, from delaying more intensive forms of care to preventing admission and readmission to hospital.
  • Dementia Prevalence CalculatorApril 30, 2013The Dementia Prevalence Calculator presents an opportunity for all health communities to gain a better understanding of their local estimated prevalence of dementia in the community, and among people living in local care homes.
  • Dementia 2013: The hidden voice of lonelinessApril 9, 2013This report, published Alzheimer’s Society, reveals that nearly two thirds (62%) of more than 250,000 people with dementia who live on their own are lonely. This compares to just 24 per cent of over 55 year olds.
  • CMG48: Support for commissioning of dementia careApril 3, 2013This guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
  • QS30: Supporting people to live well with dementiaApril 3, 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Cardiovascular Disease Outcomes StrategyMarch 29, 2013This outcomes strategy published by the Department of Health identifies ten key actions for local authority and NHS commissioners and providers to deliver improvements in patient outcomes.
  • Making a Difference in Dementia: Nursing StrategyMarch 15, 2013This nursing vision and strategy for dementia care, published by the Department of Health, makes clear that every nurse can make a difference to the care of people with dementia.
  • Best practice for commissioning diabetes servicesMarch 14, 2013This guidance published by Diabetes UK aims to help commissioners understand the nature of integrated diabetes care, why it is so important and to provide a signpost to other documents that will be of help in the commissioning process.
  • Helping you to assess cognition: A practical toolkit for cliniciansMarch 12, 2013This toolkit published by the Alzheimer's Society provides guidance to clinicians about what cognitive function tests are available and how they may be used in clinical practice.
  • RCGP Commissioning Guidance in End of Life CareMarch 4, 2013This guidance offers a logical six-step framework and overview to support GP commissioners to deliver practical improvements in end of life care, aligned with national policy and quality standards.
  • Low expectations: attitudes on choice, care and community for people with dementia in care homesFebruary 26, 2013This report published by the Alzheimer’s Society stresses the need to lift expectations and to strengthen existing minimum standards to boost quality of life for people with dementia in care homes.
  • Support and care for people living with dementia from minority communitiesFebruary 24, 2013This report outlines recommendations to improve support and care for people with dementia from minority communities in the North East.
  • Dementia FriendsFebruary 21, 2013Dementia Friends is an Alzheimer’s Society initiative that aims to give a million people a better understanding of dementia by 2015.
  • Handy guide to selecting a care homeJanuary 28, 2013This guide published by the Alzheimer’s Society is designed to be taken into care homes by people with dementia and their families and provides an independent and objective guide to what makes good quality care.
  • Spirituality and ageing: implications for the care and support of older peopleJanuary 22, 2013This briefing paper published the Institute for Research and Innovation in Social Services explores why our ageing population requires person-centred care and developmental support in order to maximise its chances of ageing well.
  • Dementia diagnosis resource packJanuary 17, 2013This resource pack produced by Dementia Partnerships sets out key steps for Commissioners and General Practices to improve the diagnosis of dementia, and diagnosis pathways.
  • Implementing local diabetes networksJanuary 14, 2013Implementing Local Diabetes Networks, published by Diabetes UK, is for commissioners to explain the importance and composition of a local diabetes network.
  • Supporting people with dementia at homeJanuary 14, 2013This training resource published by the Alzheimer’s Society aims to help homecare workers provide excellent person centred support for people with dementia who are living at home.
  • How would I know? What can I do?December 6, 2012This guide, developed by the National Council for Palliative Care (NCPC), provides advice for carers and those who work with people with dementia on how to help with pain and distress in people with the condition.
  • Dementia READ codesDecember 5, 2012This knowledge summary produced by Dementia Partnerships defines a standard set of READ codes for the diagnosis of dementia to be used by general practices and memory assessment services.
  • Delivering major improvements in dementia care and research by 2015: A report of progressNovember 8, 2012This report by the three Champion Groups leading the Prime Minister's challenge on dementia provides an update on progress since the launch of the Challenge in March 2012.
  • Hospital 2 Home resource packOctober 26, 2012This resource is designed to make it easier for health and social care professionals involved in hospital discharge to support older patients in returning home safely after a hospital stay and reduce the risk of readmission to hospital.
  • Find me good careOctober 23, 2012This website developed by the Social Care Institute for Excellence (SCIE) is designed to help people find the right care and support to suit their needs and lifestyle, whether at a time of crisis or as they plan for the future.
  • Sight, perception and hallucinations in dementiaOctober 20, 2012This Alzheimer's Society factsheet considers some specific difficulties that people with dementia can have with sight, perception and hallucinations, and suggests ways to support them.
  • Advance care planning toolkitOctober 19, 2012This toolkit developed by the National End of Life Care Programme (NEoLCP) aims to help care providers approach the advance care planning process with confidence and knowledge.
  • Commissioning person-centred end of life careOctober 17, 2012This toolkit published by the National End of Life Care Programme identifies the main elements involved in the commissioning process, explains the commissioning cycle in practical terms and offers a four-stage approach across all sectors.
  • The Right Care: creating dementia friendly hospitalsOctober 15, 2012The Right Care is a call to action to transform the acute hospital experience for people with dementia and their carers.
  • Taking medication ‘just like that’October 13, 2012This campaign led by the British Heart Foundation (BHF) aimed to remind people how vital heart medicines and raise awareness that millions of people could be putting their lives in danger by not taking their medicines as prescribed.
  • Ten tips for communicating with a person with dementiaSeptember 8, 2012These top tips produced by the Family Caregiver Alliance will help practitioners and those caring for a person with dementia to improve communication skills and ability to handle the difficult behaviour.
  • The Right Prescription: resource packSeptember 3, 2012This resource pack will support pharmacists, who play a crucial role in medicines optimisation, to have critical conversations about the prescription of antipsychotics in dementia and reduce inappropriate prescribing.
  • Matters of Life and Death: Helping people to live well until they dieAugust 4, 2012This guidance aims to support practitioners to implement the End of Life Care Patient Charter, jointly produced by the Royal College of General Practitioners and the Royal College of Nursing.
  • National dementia and antipsychotic prescribing auditJuly 28, 2012The National dementia and antipsychotic prescribing audit aims to gather information from primary care to establish a national picture of prescribing antipsychotic medication in people with dementia.
  • Unlocking Diagnosis: The key to improving the lives of people with dementiaJuly 4, 2012This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
  • Moving and walking aboutJune 20, 2012This Alzheimer's Society factsheet explains some of the reasons why a person with dementia may walk about and looks at what you can do to help.
  • New models of care for dementiaApril 9, 2012This report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
  • Dementia commissioning for quality and innovationMarch 10, 2012Dementia commissioning for quality and innovation (CQUIN) aims to help identify patients with dementia and other causes of cognitive impairment, alongside their other medical conditions and to prompt appropriate referral and follow up after they leave hospital.
  • Care of people with dementia in primary careMarch 10, 2012This factsheet published by the Royal College of General Practitioners provides GPs with guidance on the care of people with dementia in primary care.
  • Guidance and standards for diagnosing dementiaMarch 10, 2012This guidance sets out the process and associated standards for making a diagnosis of dementia in primary health care services, and by specialist memory assessment services.
  • What is Alzheimer’s disease?March 7, 2012Alzheimer's disease is the most common cause of dementia, affecting around 496,000 people in the UK. This Alzheimer's Society factsheet outlines the symptoms and risk factors for Alzheimer's disease, and describes what treatments are currently available.
  • The later stages of dementiaMarch 7, 2012During the later stages of dementia most people will become increasingly frail due to the progression of the illness. They will also gradually become dependent on others for all of their care.
  • Moving into a care home: advice for lesbian, gay and bisexual peopleFebruary 22, 2012This factsheet published by the Alzheimers Society provides some advice for lesbian, gay and bisexual people on choosing a suitable care home and suggests things to think about when the person moves in.
  • Drugs used to relieve behavioural and psychological symptoms in dementiaJanuary 20, 2012This factsheet produced by the Alzheimer’s Society explores the different types of drugs that can be used to treat these symptoms if non-pharmalogical treatments have not worked.
  • What is vascular dementia?December 7, 2011Vascular dementia is the second most common form of dementia after Alzheimer's disease. This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for vascular dementia.
  • Personalisation and dementia: a practitioner’s guide to self-directed support for people living with dementiaNovember 28, 2011This guide to personalisation and dementia has been written for, and with input from, people living with dementia, their families and friends, and the practitioners who support them.
  • Case for change – Communities for people living with dementiaNovember 28, 2011This document explains the evidence that has been used in designing the service to support people with dementia, whether living at home or in care homes, as well as dementia-specific elements of other Communities.
  • An evaluation of dementia support worker rolesNovember 25, 2011This report presents an evaluation of existing models of community-based support for people with dementia, their families and carers.
  • NICE quality standard QS13: End of life care for adultsNovember 17, 2011This quality standard published by the National Clinical Institute for Health and Clinical Excellence (NICE) defines clinical best practice in provding end of life care for adults.
  • Making involvement countOctober 7, 2011The Making involvement count resource pack is made up 18 cards each aimed at giving specific information, advice and top tips to support people with dementia to get involved in activities whilst recognising their current abilities.
  • Caring, compassionate, skilled – transforming the dementia workforceOctober 5, 2011This guidance will support commissioners to better understand workforce planning and development issues that may impact staff working with people with dementia and their carers and families.
  • Gold Standard Framework Prognostic Indicator GuidanceOctober 4, 2011This guidance aims to help GPs, clinicians and other professionals in earlier identification of those adult patients nearing the end of their life who may need additional support.
  • Improving the care of people with dementia in general hospitalsSeptember 21, 2011Dignity in dementia; improving care in general hospital settings, a Royal College of Nursing led project, has launched tools to improve the care of people with dementia in general hospitals.
  • Committed to carers: Supporting carers of people at the end of lifeJuly 30, 2011This report published by the Marie Curie Cancer Care draws on the direct experiences of people caring for someone at the end of life and on Marie Curie Cancer Care’s years of expertise of caring for carers.
  • Request for proposal: action plan to improve care for people with dementia in hospitalJuly 28, 2011This is a request for a proposal to improve care for people with dementia in hospital.
  • Service specification for dementia: better care at home, and in care homesJuly 28, 2011This specification has been designed to support primary care in the assessment and management of people with problematic symptoms of dementia or other complex presentations living at home, in a care home or other residential setting.
  • Service specification for dementia: mental health liaison service for general and community hospitalsJuly 28, 2011This specification has been designed to assist commissioners in the delivery of a service to support general and community hospitals to deliver better care to people with dementia.
  • Template action plan to improve care for people with dementia in the communityJuly 28, 2011This is a template action plan for use by local authorities and commissioning consortia working together under the auspices of Health and Well-being Boards to improve care for those people with dementia who live in their own homes or in some other residential setting.
  • Optimising treatment and care for behavioural and psychological symptoms of dementiaJuly 28, 2011This best practice guide has been developed in consultation with an advisory group of leading clinicians specialising in dementia.
  • Case for change – mental health liaison service for dementia care in hospitalsJuly 28, 2011This document explains the evidence that has been used to identify eligible patients and for the design of mental health liaison services in general and community hospitals and its core components.
  • Reducing the use of antipsychotic drugsJuly 21, 2011This leaflet is for people with dementia and their carers who want to know more about behavioural and psychological symptoms of dementia and how they can be prevented and treated.
  • The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesJuly 4, 2011This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
  • Commissioning End of Life Care: Act & EarlyJuly 4, 2011This guidance published by the National Council for Palliative Care aims to help healthcare commissioners to prioritise early action on end of life care to ensure people’s choices are met and to avoid unnecessary emergency hospital admissions.
  • Understanding out of hospital dementia careMay 10, 2011This report, published by Healthcare at Home, explores home-based models of care that will keep people with dementia out of hospital.
  • Dementia awareness resource packApril 10, 2011This pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.
  • Support, Stay, Save: care and support of people with dementia in their own homesApril 4, 2011This report provides evidence from over 2,000 carers, people with dementia and home care workers on the aspirations, experiences and outcomes of providing dementia care in the community in England, Wales and Northern Ireland.
  • Echocardiography guidelines for valve quantificationApril 1, 2011This poster contains guidelines for echocardiography valve quantification developed by the Education Committee of the British Society of Echocardiography.
  • Windows of opportunity for prevention and early intervention in dementia toolkitMarch 24, 2011This online resource, produced by the Social Care Institute for Excellence, will help commissioners and providers to ensure that any help or support offered at any stage in a person’s journey with dementia is offered in a timely way.
  • Diabetes in adults quality standardMarch 14, 2011This NICE quality standard defines clinical best practice for diabetes care. It provides specific, concise quality statements, measures and audience descriptors to provide patients and the public, health and social care professionals, commissioners and service providers with definitions of high-quality care.
  • NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careMarch 1, 2011This guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
  • Loss and bereavement in people with dementiaFebruary 22, 2011This leaflet published by Alzheimer Scotland addresses the lack of help and information available for formal and informal carers of people with dementia who are bereaved.
  • Recognised, valued and supported: Next steps for the Carers StrategyDecember 3, 2010This strategy identifies the actions that the Government will take between 2011-15 to support its priorities to ensure the best possible outcomes for carers and those they support.
  • Understanding and respecting the person with dementiaNovember 29, 2010This factsheet produced by the Alzheimer’s Society explores ways that carers can help people living with dementia to feel valued and good about themselves.
  • Unusual behaviourNovember 29, 2010This factsheet produced by the Alzheimer’s Society outlines some typical sorts of unusual behaviour in people with dementia and explains some common causes.
  • Befriending works: building resilience in local communitiesNovember 12, 2010This report published by the Mentoring and Befriending Foundation provides an overview of how befriending can contribute to improving the health and well-being outcomes of vulnerable people at risk of social isolation or exclusion from mainstream society.
  • Treatment and care towards the end of life: good practice in decision makingNovember 4, 2010This guidance provides a framework for good practice aimed at doctors when providing treatment and care for patients who are reaching the end of their lives.
  • What about me? Remembering the needs of carersJuly 29, 2010This short leaflet published by Marie Curie Cancer Care is a good starting point for anyone working in health, social care or other setting who is likely to come into contact with people approaching the end of life and their carers.
  • End of life care for people with dementia commissioning and benchmarking toolJune 25, 2010The commissioning and benchmarking tool helps you to assess local service requirements using the indicative benchmark as a starting point. With knowledge of your local population and its demographic, you can amend the benchmark to better reflect your local circumstances.
  • End of life care for people with dementia commissioning guideJune 8, 2010This commissioning guide provides support for the local implementation of NICE clinical guidelines through commissioning, and is a resource to help statutory and voluntary health and social care professionals in England to commission integrated end of life care (EOLC) services for people with dementia.
  • A Misspent Opportunity? Inquiry into the funding of the National Dementia StrategyMarch 18, 2010This report published by the All-Party Parliamentary Group on Dementia (APPG) examines initial progress made by Primary Care Trusts in England towards implementing the National Dementia Strategy for England.
  • Diabetes and your heartMarch 11, 2010This booklet is for people who have diabetes, and for their families and friends. It may also be useful if you don’t have diabetes but you have been told you may develop it in the future.
  • This is meFebruary 23, 2010'This is me' is a leaflet produced by the Alzheimer's Society to help hospital staff better understand the needs of people with dementia.
  • Dementia: ethical issuesJanuary 25, 2010This report published by the Nuffield Council on Bioethics presents an ethical framework to help practitioners who face dilemmas in connection with the everyday care of someone with dementia.
  • Commissioning domiciliary care for people with dementia and their carersNovember 28, 2009The purpose of this paper is to assist commissioners in ensuring that homecare for people with dementia is appropriate to their needs and/or the needs of their carers.
  • Counting the cost: caring for people with dementia on hospital wardsNovember 28, 2009This report published by the Alzheimer's Society reveals unacceptable variations in the quality of care for people with dementia in hospital and puts forward recommendations to improve dementia care, shorten the length of stay and reduce costs.
  • Supporting Family Carers of People with Learning DisabilitiesSeptember 18, 2009This resource pack produced by the Foundation for People with Learning Disabilities and the Sharing Caring Project at Sheffield Mencap supports practitioners to develop and provide the best information and support to family carers of people with learning disabilities.
  • Dementia and People with Learning DisabilitiesSeptember 18, 2009This document jointly published by the Royal College of Psychiatrists and the British Psychological Society provides guidance on the assessment, diagnosis, treatment and support of people with learning disabilities who develop dementia.
  • Dementia patient decision aidSeptember 7, 2009This decision aid is intended to assist health professionals considering prescribing acetylcholinesterase inhibitor medication (donepezil, galantamine or rivastigmine) for patients to improve symptoms of dementia and reduce the rate of decline in mental function.
  • Prepared to care – Challenging the dementia skills gapJune 4, 2009This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the scale of the challenge in training the caring professions in dementia, and how it may be met.
  • Making decisions: who decides when you can’t?April 20, 2009This guidance published by the Office of the Public Guardian explains how the Mental Capacity Act 2005 affects anyone who is unable to make some or all decisions for themselves. It provides advice to help people to plan ahead in case they are unable to make and understand decisions in the future.
  • Making decisions: a guide for people who work in health and social careApril 1, 2009This guidance published by the Office of the Public Guardian explains to health and social care workers how the Mental Capacity Act 2005 affects anyone who is unable to make some or all decisions for themselves.
  • See me, not just the dementiaJune 22, 2008This report looks at the experiences of people with dementia living in care homes in England, with a particular focus on whether their care offers dignity and respect.
  • Always a last resort: Inquiry into the prescription of antipsychotic drugs to people with dementia living in care homesApril 4, 2008This report published by the All-Party Parliamentary Group on Dementia (APPG) examines the problem of the over prescription of antipsychotic drugs to people with dementia living in care homes and proposes workables solutions.
  • Improving services and support for people with dementiaJuly 3, 2007This report published by the National Audit Office presents findings from a study into the health and social care services available for people with dementia and their unpaid carers in England and whether they are providing effective and good quality support; and the scope for better use of resources against a background of rising demand.
  • Dementia UKFebruary 3, 2007This report into the prevalence and cost of dementia shows that as the UK's population ages the number of people with dementia will grow substantially. It also shows that dementia costs the UK £17 billion a year.
  • Services for younger people with Alzheimer’s disease and other dementiasMarch 18, 2006This briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer's Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.
  • Caregiver Strain IndexJuly 3, 1983The Caregiver Strain Index (CSI) is a tool that can be used to quickly identify families with potential caregiving concerns.
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