Integrated Care Systems: GuidanceThese guidance documents published by NHS England and the Local Government Association set out how NHS leaders and organisations will operate with their partners in Integrated Care Systems (ICSs) from April 2022.
Pre-memory assessment support project briefingSince the COVID-19 pandemic there has been an increase in the time people need to wait for their memory assessment appointment. This briefing published by the Dementia Change Action Network (DCAN) explores people’s experiences of waiting for a memory assessment.
Useful tips on the COVID-19 vaccine for people with dementiaThis briefing developed by the Royal College of Psychiatrists, working with Dementia UK, includes useful tips for giving the COVID-19 vaccine without causing distress and how to explain the vaccination to someone who is living with dementia.
Dementia wellbeing in the COVID-19 pandemicThis resource is primarily for clinicians working with people with dementia, but can also be used by carers and people with dementia. This document takes the Dementia Well Pathway and sets out the adjustments and amendments needed to respond to the COVID-19 pandemic. It highlights key priorities and actions for each step in the pathway.
Join Dementia ResearchJoin Dementia Research forms part of the Governments Dementia strategy and is a service that delivers opportunities for people to see what studies are taking place both in their local area and nationally and connecting researchers with them.
The Many Faces of DementiaThis online course enables you to gain a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses of dementia, the people involved and the implications of these for our wider understanding.
Risk reduction of cognitive decline and dementiaThe World Health Organization (WHO) guidelines on risk reduction of cognitive decline and dementia provide evidence-based recommendations on lifestyle behaviours and interventions to delay or prevent cognitive decline and dementia.
Music for Dementia 2020Music for Dementia 2020 is campaigning to make music free for people living with dementia by 2020. Led by The Utley Foundation, the campaign is a direct and positive response to the Commission into Dementia and Music report 'What would life be – without a song and dance, what are we?'.
What would life be – without a song or dance, what are we?This report by the Commission on Dementia and Music outlines the value and benefits of music for people with dementia and looks at the important next steps which can be taken to ensure that everyone with dementia is able to access music.
Dementia Commissioning know how guideThis resource aims to enable Clinical Commissioning Groups to achieve and maintain dementia diagnosis rate of at least two-thirds of the estimated number of people with dementia, and improve the quality of and access to post diagnostic care for people living with dementia and their carers.
Dementia Care Pathway: full implementation guidanceThe Dementia Care Pathway: full implementation guidance, published by the National Collaborating Centre for Mental Health (NCCMH), sets out key commissioning and service development considerations in the delivery and quality of care and support for people living with dementia and their families and carers.
Do I see what you see?In this film, produced by Created Out Of Mind, people share stories and experiences of living with Posterior Cortical Atrophy (PCA), a rare form of dementia that commonly affects vision.
Delirium awareness videoDelirium in older adults often goes unrecognised by health care professionals and can be poorly managed. This video was produced with the aim of improving recognition and management of delirium in any healthcare setting.
John’s CampaignJohn’s Campaign is about the right of people who care for someone living with dementia to be able to stay with them – and the right of people with dementia to be able to have a family carer stay with them. It applies to all ...
Admiral Nurse Dementia HelplineThe Admiral Nurse Dementia Helpline is for anyone with a question or concern about dementia. From looking out for the first symptoms of Alzheimer’s, to understanding the challenges of living with someone with vascular dementia, Admiral Nurses have the knowledge and experience to understand the situation and suggest answers that might be hard to find elsewhere.
Dementia UKDementia UK provides specialist dementia support for families through our Admiral Nurse service. When things get challenging or difficult for people with dementia and their families, Admiral Nurses work alongside them. They give the compassionate one-to-one support, guidance and practical solutions people need, and that can be hard to find elsewhere.
Implementation guide and resource pack for dementia careThis guide aims to set out the policy drivers and strategic context for transforming dementia care, and why it is of importance to commissioners, providers and sustainability and transformation partnerships (STPs) in supporting delivery of a number of objectives in the Department of Health’s Prime Minister’s challenge on dementia 2020, published February 2015, which complements the aims of the Five Year Forward View, published in October 2014.
National Audit of Dementia – third reportThe National Audit of Dementia (NAD) (care in general hospitals) measures the performance of general hospitals against criteria relating to care delivery which are known to impact upon people with dementia while in hospital. The third audit collected data between April and November 2016.
State of Caring 2017This survey undertaken by Carers UK paints a comprehensive picture of caring in 2017 and more than 7,000 people responded, making it the largest State of Caring Survey to date.
Dementia Friendly Housing CharterThis toolkit aims to help professionals in their support of people living with dementia in their homes and facilitate consistency and good practice.
Dementia AdventureDementia Adventure is a registered charity dedicated to supporting people with dementia to get outdoors, connect with nature, themselves and their community, and retain a sense of adventure in their lives.
How living with dementia could beThis short animated video highlights how living with dementia could be through the 'well pathway for dementia'. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local community settings.
Helping your loved one with dementia eat wellThis infographic published by Bupa UK offers some pointers for carers and relatives on how to help people with dementia to eat well so that they remain healthy and can continue to remain independent in their own home.
Better planning for car ownership and well-being in old ageThis briefing paper published by the Housing Learning and Improvement Network seeks to connect the body of knowledge around the significance of car ownership in achieving well-being for older people to those making decisions that may impact on car ownership among older people.
Integrated approach to identifying and assessing Carer health and wellbeingThis toolkit published by NHS England clarifies the new duties on NHS organisations under the Care Act 2014 and the Children and Families Act 2014, provides a template Memorandum of Understanding (MOU) to support joined up working locally, and includes examples of positive practice of work that have proven successful in supporting carers and their families.
Fix dementia care – NHS and care homesThis report published by the Alzheimer's Society marks the second phase of a campaign looking at the experiences of people with dementia in a range of health and care settings. It contains the results of a survey of care home managers and the voices of people with dementia, their families and carers.
Dementia rarely travels alone: living with dementia and other conditionsThis report published by the All Party Parliamentary Group (APPG) on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people.
Race Against DementiaRace Against Dementia is an alliance of groups currently providing information and support to people from Black, Asian and minority ethnic communities in the UK.
House of MemoriesHouse of Memories is an award-winning training programme, run by the Museum of Liverpool, which targets the carers of people living with dementia. It provides participants with information about dementia and equips them with the practical skills and knowledge to facilitate a positive quality of life experience for people living with dementia.
Dementia and comorbidities: Ensuring parity of careThis report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year.
Playlist for LifeBeing able to respond to music is the one thing dementia cannot destroy. Playlist for Life encourages families and caregivers to create a playlist of personally meaningful music on an iPod for people with dementia.
Immediate post diagnosis support guidanceThis guidance document, published by the London Strategic Clinical Networks, has been created for professionals to support people with dementia and their carers immediately following diagnosis.
Engage & CreateEngage & Create is a not-for-profit organisation that uses creativity and conversation to improve the quality of life for people with dementia and those that care for them.
DeAR-GP (Dementia Assessment Referral to GP)DeAR–GP, developed by the South London Health Innovation Network, is a simple paper based case-finding tool which has been designed for use by care workers to identify people who are showing signs of dementia.
Dementia advisers surveyThis report published by Ipsos MORI presents the findings of a survey into the provision of dementia adviser services throughout England.
The experiences, needs and outcomes for carers of people with dementiaThis comprehensive literature review undertaken by the the Association of Dementia Studies at the University of Worcester, examines the experiences and needs of carers of people with dementia and the evidence of outcomes produced from a wide range of interventions. Download The experiences, needs and outcomes ...
Care of dying adults in the last days of lifeThis guideline published by the National Institute for Health and Care Excellence (NICE) covers the clinical care of adults (18 years and over) who are dying during the last 2 to 3 days of life. The guideline contains specific advice relevant when caring for people with dementia.
Ladder to the MoonLadder to the Moon provides workforce and service development that enables health and care organisations to develop active, creative, vibrant care services. It uses approaches that incorporate creativity and the arts, and involve staff, older people living with dementia and other long-term conditions, and the wider community.
ThriveThrive is the leading charity in the UK using gardening to change the lives of disabled people. Thrive run structured programmes of activities for people with dementia which focus on positive reminiscence, re-connecting with others including friends and family and gentle appropriate exercise and cognitive stimulation
The dementia profileThe dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform.
Health Education EnglandHealth Education England (HEE) works across England to deliver high quality education and training for a better health and healthcare workforce.
HealthwatchHealthwatch England is the national consumer champion in health and care. We have significant statutory powers to ensure the voice of the consumer is strengthened and heard by those who commission, deliver and regulate health and care services.
Active Minds – dementia activity resourcesActive Minds produce a suite of activity products to assist people with dementia in leading active, engaging and fulfilling lives - enjoying activities that are meaningful to them.
The Daily SparkleThe Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
RevitaliseRevitalise is a national charity providing short breaks and holidays (respite care) for disabled people and carers. We also offer inspirational opportunities for volunteers through one of the largest, most diverse volunteer programmes in the UK.
The ExtraCare Charitable TrustThe ExtraCare Charitable Trust is a not for profit developer and operator of ExtraCare Villages and Housing schemes which has retirement villages and housing schemes across the Midlands and North. ExtraCare's award-winning Enriched Opportunities Programme® (EOP) supports residents with dementia and dementia-related conditions.
Arts 4 DementiaArts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers.
Dementia and homecare: driving quality and innovationThis report published by the United Kingdom Homecare Association demonstrates how skilled homecare can play a pivotal role in enabling people with dementia to live well in their preferred familiar environment. Through a series of innovative practice examples, the report shows why good homecare should ...
Making your home dementia friendlyThis booklet published by the Alzheimer's Society aims to help people with dementia to live well in their own home. It describes ways to create or adapt the home environment so that it remains a safe and familiar place. This can help make daily living activities easier and keep people in touch with the things they enjoy doing.
A practical guide to healthy ageingThis guide published by NHS England and Age UK contains advice to help improve the health and general fitness of people of any age, but it is particularly relevant for people who are about 70 years or older.
Peer Support for People with Dementia: A social return on investment studyThis report published by the Health Innovation Network South London, the Academic Health Science Network for South London, outlines the findings of a study which demonstrated that the positive social value of peer support groups for people with dementia, their carers and volunteers can be far greater than the investment.
How can we make our cities dementia friendly?This briefing paper published by the Joseph Rowntree Foundation contributes to the emerging evidence base for Dementia friendly communities by drawing out the key messages from independent evaluations of their work programmes in Bradford and York.
Developing a national user movement of people with dementiaThis report published by the Joseph Rowntree Foundation explores the learning from the Dementia Engagement and Empowerment Project (DEEP), a national network that engages and empowers people with dementia to influence the services and policies that affect them.
Evaluation of the York Dementia Friendly Communities ProgrammeThis report published by the Joseph Rowntree Foundation identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme.
Accessible Information StandardThe Accessible Information Standard tells organisations how they should ensure that disabled patients receive information in formats that they can understand and they receive appropriate support to help them to communicate.
A proposal for a UK dementia eye care pathwayThis article published in the journal Optometry in Practice introduces a proposal for a UK dementia eye care pathway and outlines the areas that should be covered within a pathway.
Living with young onset dementiaThis video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.
The Reading AgencyThe Reading Agency is a charity working to inspire more people to read more, encourage them to share their enjoyment of reading and celebrate the difference that reading makes to all our lives.
Dementia DiariesDementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
Dementia Engagement and Empowerment Project (DEEP)The Dementia Engagement and Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia.
Women’s experiences of dementiaThe 'Women's experiences of dementia' website contains a wealth of stories which highlight the experiences of women affected by dementia.
Innovations in DementiaInnovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals to develop and test projects that will enhance the lives of people with dementia.
The Reader OrganisationThe Reader Organisation is a charitable social enterprise working to connect people with literature through shared reading. The older people and dementia work programme uses shared reading to improve quality of life and care for people living with dementia and their carers.
Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.
Cognitive neurology and dementia centreThe Cognitive neurology and dementia centre at St George's Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.
Younger people with dementiaThis factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
Information about Lewy Body DementiaThis handbook published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.
Dementia Peer Support Resource PackThis resource pack, published by the Health Innovation Network, the Academic Health Science Network for South London, aims to promote and encourage more peer support opportunities for people with dementia.
The Imperial Memory UnitThe Imperial Memory Unit within Charing Cross Hospital offers patients access to the latest treatments for memory disorders through participation in clinical trials and research.
Award in Understanding DementiaThe Alzheimer's Society and the Royal Society for Public Health have joined forces to create a new qualification to help people understand more about dementia.
Duty of Candour: Information for all providersThis document published by the Care Quality Commission sets out how meeting the Duty of Candour regulation will be central to both registration and inspection for NHS bodies and all other care providers regulated by the CQC.
Women and dementia: A marginalised majorityThis report published by Alzheimer's Research UK reveals that dementia has become the leading cause of death among British women and that women are far more likely to end up as carers of those with dementia than men, suffering physical and emotional stress and job losses in the process.
Caring for CarersThe Caring for Carers Hub developed by the Royal College of General Practitioners is a web based tool that can help primary care staff to more effectively support carers and the people they care for.
Sporting Memories NetworkThe Sporting Memories Network, also known as Replay, is a national charity which promotes the use of sporting memories to improve the wellbeing of older people and to tackle dementia, depression and social isolation.
Join Dementia ResearchJoin Dementia Research aims to accelerate the pace of dementia research by allowing people with and without dementia to register their interest in studies, helping researchers find the right participants at the right time.
Prime Minister’s challenge on dementia 2020The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
Reading well books on prescription for dementiaThe Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition.
Mental Health Act 1983: Code of PracticeThe revised code of practice shows professionals how to carry out their roles and responsibilities under the Mental Health Act 1983, to ensure that all patients receive high quality and safe care.
Carers AssessmentThis factsheet published by Carers UK outlines the Carers Assessment, a legal entitlement which explores how being a carer affects someone, how much caring they can realistically do, and any help they may need.
Dementia Action AllianceThe Dementia Action Alliance brings together organisations across England committed to transforming the lives of people with dementia and their carers.
Pain in People with Dementia: A Silent TragedyThis report, published by Napp Pharmaceuticals, draws on a survey of interviews with experts, major providers of care, and on desk research. It quantifies the problem and sets out the issues in recognising, assessing and managing pain in people with dementia.
Commissioning for Carers PrinciplesThis practical tool is part of a suite of products that will help commissioners to deliver what carers say is important to them in ways that have been shown to work effectively and efficiently in practice.
Carers Evidence Summits ebookNHS Improving Quality has produced an ebook to share the Commitment to Carers achievements over the last year. It includes the findings from the regional Carers Evidence Summits and links to over 50 case studies.
Mental Capacity Act Code of PracticeThis guidance published by the Office of the Public Guardian explains to people working with or caring for adults who lack capacity to make decisions for themselves the legal responsibilities that must be considered under the Mental Capacity Act 2005.
Faculty for the Psychology of Older PeopleThe Faculty for the Psychology of Older People (FPoP), formely known as PSIGE, is part of the British Psychological Society's Division of Clinical Psychology. It works to encourage the exchange of information, ideas and expertise about psychological approaches with older people.
Wearing glasses with dementia factsheetThis factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
Cracks in the pathwayThis report presents the findings of a Care Quality Commission review of the care people living with dementia receive as they moved between care homes and acute hospitals.
Dementia assessment and referral 2014-15This data collection reports on the number and proportion of patients aged 75 and over admitted as an emergency for more than 72 hours who have been identified as potentially having dementia, who are appropriately assessed and, where appropriate, referred on to specialist services in England.
Five Year Forward ViewThe Five Year Forward View published by NHS England sets out why the NHS needs to change and various models of care which could be provided in the future to deliver transformed care for patients.
British Institute of Learning DisabilitiesBritish Institute of Learning Disabilities (BILD) wants people with learning disabilities to be valued equally, participate fully in their communities and be treated with dignity and respect.
State of Care 2013/14This report published by the Care Quality Commission (CQC) reveals wide variation in the quality and safety of care for conditions such as dementia in England.
Supporting a person with dementiaThis Easy Read factsheet published by the the Alzheimer's Society provides advice for someone with learning disabilities who may have a friend or relative with dementia.
British Heart FoundationThe British Heart Foundation is a UK charity leading the fight against coronary heart disease funding pioneering research to transform the lives of people living with heart and circulatory conditions.
National Diabetes AuditThe National Diabetes Audit (NDA) is a major national clinical audit, which measures the effectiveness of diabetes healthcare against NICE Clinical Guidelines and NICE Quality Standards, in England and Wales.
Diabetes UKDiabetes UK is a leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes.
Grief, loss and bereavementThis factsheet published by the Alzheimers Society looks at some of the feelings carers may experience in caring for someone living with dementia and suggests ways to cope. It also looks at supporting a person with dementia to cope with grief and bereavement.
Planning for your future careThis guidance published by the National Council for Palliative Care explains advance care planning to the public. It outlines the different options available to people when planning for their end of life care.
A vision of care fit for the twenty-first centuryThis report published by the Commission on Residential Care offers a vision of housing with care fit for the twenty-first century, not bound by existing definitions but based on the outcomes that people want and value.
Diabetes sample service specificationThe service specification, published by NHS England, outlines the provision of high quality care for all those with diabetes. It describes all the services needed to provide a complete care pathway for people with diabetes.
Self Management UKSelf Management UK provide support and advice for people living with a long term health condition, such as asthma, diabetes, heart disease, COPD, arthritis and chronic pain.
Dementia Research CentreThe Dementia Research Centre, based at the National Hospital for Neurology and Neurosurgery, is one of the UK's leading centres for clinical research into dementia.
Bradford Dementia GroupBradford Dementia Group is a multi-disciplinary, multi-professional group committed to making a difference to policy and practice in dementia care, through excellence in research, education and training.
Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.
Disabled Living FoundationThe Disabled Living Foundation (DLF) is a national charity providing impartial advice, information and training on independent living.
Telehealth and Telecare AwareThis online information portal provides a news and information service for people interested in telecare and telehealth.
Better care for older peopleThis online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.
Marie Curie End of Life Care AtlasThe Marie Curie End of Life Care Atlas is an information portal that gives people who plan and commission end of life care new insight into care provision in their local areas.
National Council for Palliative CareThe National Council for Palliative Care (NCPC) is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.
Gold Standards Framework CentreThe National Gold Standards Framework (GSF) Centre in End of Life Care is the national training and coordinating centre for all GSF programmes, enabling generalist frontline staff to provide a gold standard of care for people nearing the end of life.
Employers for CarersEmployers for Carers provides practical, ‘hands-on’, help to employers to support carers in their workforce.
Short Breaks NetworkThe Short Breaks Network is the national co-ordinating body for the short break sector in the UK, providing short breaks for disabled children, young people and their families.
Bladder and Bowel CommunityThe Bladder and Bowel Community is the UK wide charity for people with bladder and bowel control problems. It provides information and support services, including a confidential helpline, for anyone affected by these conditions as well as their families, carers and healthcare professionals.
Continence Product AdvisorThe Continence Product Advisor is a website providing evidence-based guidance on how to select appropriate products for managing incontinence and use them effectively.
Dementia-friendly technology charterThe Dementia-friendly technology charter gives people with dementia and their carers information on how to access technology. It also provides guidance to health, housing and social care professionals on how to make technology work for people based on their individual needs.
Foundation for People with Learning DisabilitiesThe Foundation for People with Learning Disabilities influences government and local authority policies and services so that they better meet the needs of people with learning disabilities, their families and carers.
The National Valuing Families ForumThe National Valuing Families Forum brings together a network of regional family carer organisations to consult and feed into government policy and legislation affecting those with learning disabilities and their families.
Marie Curie Cancer CareMarie Curie Cancer Care is a UK charity dedicated to the care of people with terminal illnesses.
Cancer Delivery Support ToolThe Cancer Delivery Support Tool developed by Macmillan Cancer Support is an electronic support tool to assist GPs and Health Professionals to make an early diagnosis of five types of cancer: Oesophageal, Pancreatic, Ovarian, Colorectal and Lung.
Improving the quality of cancer care in primary careThis toolkit developed by Macmillan Cancer Support aims to support the primary care professionals to develop initiatives and programmes which have a positive impact on the care of people daiagnosed with cancer, their families and carers.
Cancer information factsheetsThese factsheets published by Macmillan Cancer Support cover a variety of topics relating to cancer, such as chemotherapy drugs, less common cancer types and practical issues for cancer care professionals.
Macmillan Cancer SupportMacmillan Cancer Support is a national charitable organisation that provides practical, medical and financial support and push for better cancer care.
Dementia CarerDementia Carer is a website that provides access to a wide range of video clips featuring carers discussing what helps them cope with issues they encounter in caring for someone with dementia.
Foundation for Assistive TechnologyThe Foundation for Assistive Technology aims to develop a thriving market in equipment that promotes independent living and meets the real needs of disabled and older people.
Assist UKAssist UK leads a UK wide network of locally-situated Disabled Living Centres. Most centres include a permanent exhibition of products and equipment that provide people with opportunities to see and try products and equipment to support them to live independently.
Carers DirectCarers Direct offer a helpline for carers that need help with their caring role and want to talk to someone about what options are available to them.
Carers UKCarers UK is a national membership charity for carers, that is both a support network and a movement for change.
Carers TrustCarers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.
The Disabled Parents NetworkThe Disabled Parents Network is a National network of Disabled Parents, helping each other and bringing about change for disabled people who are parents or who hope to become parents, their families, friends and supporters.
Driver and Vehicle Licensing Agency (DVLA)The Driver and Vehicle Licensing Agency (DVLA) maintain registers of drivers and vehicles in Great Britain. It is important that practitioners encourage their patients with dementia to inform the DVLA of their diagnosis.
Driving and dementiaThis Alzheimer's Society factsheet explains the legal situation around driving and dementia, and gives some tips on stopping driving.
Care and Support Jargon BusterThe Care and Support Jargon Buster published by Think Local Act Personal is a plain English guide to the most commonly used social care words and phrases and what they mean.
ACEmobileACEmobile is a mobile-friendly version of the Addenbrooke’s Cognitive Examination (ACE-III), a popular and commonly-used screening tools for dementia.
Montreal cognitive assessmentThe Montreal Cognitive Assessment (MoCA) is a rapid screening instrument for mild cognitive dysfunction suitable for use in primary care settings.
Addenbrookes cognitive examination-IIIThe Addenbrooke's Cognitive Examination-III (ACE) is one of the most popular and commonly used cognitive tests used in dementia clinics and in the assessment of other neurological disorders.
Mini-CogThe Mini-Cog is a brief cognitive function test to screen for cognitive impairment in older adults in the primary care setting.
Six Item Cognitive Impairment TestThe Six Item Cognitive Impairment Test (6CIT) is a brief cognitive function test which takes less than five minutes and is widely used in primary care settings.
Abbreviated mental test scoreThe Abbreviated mental test score (AMTS) was developed in 1972 for assessing cognition. The test takes around five minutes and is widely used, particularly in UK general hospital settings.
Focus on dementia researchThe National Institute for Health Research (NIHR) website Focus on Dementia showcases some of the cutting-edge clinical research that could bring new hope to dementia patients and their families.
Carer’s health checkA Carer's health check should be offered to any newly-registered carers according to local guidelines or the terms of any Local Enhanced Service.
Initial review following diagnosisThis guidance outlines the steps that a practitioner should consider during an initial review with a patient that has received a formal diagnosis of dementia.
Blackfriars Consensus on promoting brain healthThe Blackfriars Consensus, published by the UK Health Forum and Public Health England, explores the potential for incorporation of dementia risk reduction into current approaches for non-communicable diseases.
The Dementia Training CentreThe Dementia Training Centre offers a range of courses from face to face training programmes, tailored to the meet the needs of your organisation, free e-learning packages designed by experts, to a Master’s degree offering specialist dementia training.
Referral for a diagnosisThis leaflet produced by the Lewy Body Society highlights the importance of practitioners identifying the main symptoms of Lewy body dementia early to enable referral to a specialist at a memory clinic for correct diagnosis to be made.
Are you worried about Dementia?This leaflet produced by the Lewy Body Society explains the main symptoms and causes of dementia. It also outlines the distinct symptoms associated with Lewy body dementia.
What causes dementia?Dementia is the result of brain cells being damaged in an ongoing way. This happens as a result of a number of different diseases (sometimes referred to as ‘types’ of dementia). It is not an inevitable part of ageing.
How common is dementia?According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.
Parkinson’s UKParkinsonism is a feature associated with some dementias, particularly Parkinson's dementia and dementia with Lewy bodies. Parkinson's UK offers support for patients and carers, including excellent advice on coping with daily activities.
What is dementia?This resource will help practitioners to understand that dementia is more than just difficulties with memory. Dementia is not a single disease but a term used to describe a group of symptoms.
Be head strongThis guidance published by the Alzheimer's Society contains tips to help people reduce the risk of developing dementia.
AT DementiaAT Dementia is web-based information resource on assistive technologies (including telecare) for people with dementia.
Choosing your hospitalMost patients can choose which hospital they are seen in according to what matters most to them, whether it's location, waiting times, reputation, clinical performance, visiting policies, parking facilities or other patients' comments.
Diabetes care planning reviewPractitioners should provide an annual care planning review to all people with diabetes to ensure that each patient gets the right support for managing their diabetes. This short film produced by Diabetes UK aims to help patients to understand what care planning is, and how they can get more involved in their diabetes care.
Deprivation of Liberty Safeguards (DoLS)This factsheet published by the Alzheimer's Society explains the Deprivation of Liberty Safeguards (DoLS), which are part of the Mental Capacity Act 2005. It also outlines the process for getting authorisation for a deprivation of liberty and how to get it reviewed.
Advance decisionsAdvance Directives (also referred to as advance decisions to refuse treatment, ADRTs, or living wills) may be drawn up by any person with capacity to do so who is over the age of 18, to determine what treatment they might receive in the event of them losing capacity to make decisions under the Mental Capacity Act 2005.
Mental Capacity Act 2005The Mental Capacity Act 2005 came into force in 2007 and affects all those working in health and social care involved in caring for people over the age of 16 who are unable to make some or all decisions for themselves.
Lewy Body SocietyThe Lewy Body Society is a charity which aims to raise awareness of Dementia with Lewy bodies for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease.
The dementia guideThis guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
Alzheimer’s Research UKAlzheimer's Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias.
Can dementia be prevented?These web pages on the NHS Choices portal give advice on leading a healthy lifestyle to help lower your risk of developing dementia when you are older.
Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.
Am I at risk of developing dementia?This factsheet published by the Alzheimer's Society explains what we know about the risks associated with developing different types of dementia, and gives some advice on the steps people can take to reduce their risk.
The Care Bill: factsheetsThese factsheets will help practitioners to better support patients and carers to get the care and support they need, following the changes introduced by the Care Bill, published in 2013.
Putting dementia on the mapPutting dementia on the map published by the Department of Health draws on data and information about dementia health and care, dementia friendly communities and research.
Virtual Hospital modelling toolThe Virtual Hospital modelling tool, developed by the Dementia Services Development Centre, aims to show good design can help to make an acute hospital setting dementia-friendly.
Thinking Ahead: a planning guide for familiesThis guidance, published by the Foundation for People with Learning Disabilities, provides a clear framework to help the families of people with learning disabilities plan for the future and address the concerns they have.
Diabetes care pathwayThis NICE care pathway defines clinical best practice for diabetes care. It covers managing type 1 and type 2 diabetes.
Peer support networks and dementia advisers: evaluationThis report, published by the Department of Health, provides the findings of the Healthbridge evaluation into the role that dementia advisers and peer support networks can provide in post diagnostic support for people with dementia and their carers.
Enhanced service for people with dementia in primary careThis short paper by Alistair Burns and Laurence Buckman summarises a multi-disciplinary group discussion on how the Enhanced Service might be optimally used to increase the numbers of people receiving a diagnosis and accessing post diagnostic support.
Diabetes Risk ScoreThe Diabetes Risk Score is an assessment tool which aims to identify individuals with impaired glucose regulation (IGR) and is designed to predict an individual’s risk of developing Type 2 diabetes within the next ten years. It was developed by University of Leicester and University Hospitals of Leicester NHS Trust in collaboration with Diabetes UK.
Dementia adviser service: evaluationThis report published by the Alzheimer's Society presents the findings of an evaluation of the Pathfinder Dementia Adviser services from the perspective of service users.
Dementia e-learning sessionsAn interactive e-learning resource to support the training of all health and social care staff in recognising, assessing, and managing dementia, and providing high quality dementia care.
Frontotemporal dementiaThis article published in the British Medical Journal highlights some of the issues pertinent to Frontotemporal dementia, a clinically and pathologically heterogeneous group of non-Alzheimer dementias characterised collectively by relatively selective, progressive atrophy involving the frontal or temporal lobes, or both.
National Audit of Dementia in General HospitalsThe second report of the National Audit of Dementia in General Hospitals identifies continuing problems in the quality of care received by people with dementia in hospitals in England and Wales.
Cataracts and dementia factsheetThe information in this factsheet will help people in with both dementia and sight loss and how to help someone with dementia cope with surgery.
Guidance for Learning Disability Partnership BoardsThis booklet offers guidance to Learning Disability Partnership Boards to help them ensure that carers of people with learning disabilities, and carers with learning disabilities are supported and involved in local service developments which affect their lives, and the lives of the people they care for.
Dementia and aggressive behaviourThis factsheet produced by the Alzheimer's Society aims to aid understanding about what may cause this type of behaviour and offers some ways to deal with it.
Participation in dementia researchThis short film aims to encourage more patients and carers to take part in ground-breaking research into dementia and other neurodegenerative diseases.
Dementia coding clean-up exerciseThis exercise devised by Dr Paul Russell aims to support GPs to identify problems in coding, which are contributing to low rates of dementia diagnosis on practice registers.
NHS Continuing Healthcare e-learning toolThis e-learning tool developed by NHS England and the Association of Directors of Adult Social Services will support all practitioners to improve assessment and decision making around NHS Continuing Healthcare.
Dementia: Finding housing solutionsThis report, published by the National Housing Federation, highlights how good housing and related services can impact positively on the lives of people with dementia, from delaying more intensive forms of care to preventing admission and readmission to hospital.
Dementia Prevalence CalculatorThe Dementia Prevalence Calculator presents an opportunity for all health communities to gain a better understanding of their local estimated prevalence of dementia in the community, and among people living in local care homes.
Dementia 2013: The hidden voice of lonelinessThis report, published Alzheimer’s Society, reveals that nearly two thirds (62%) of more than 250,000 people with dementia who live on their own are lonely. This compares to just 24 per cent of over 55 year olds.
CMG48: Support for commissioning of dementia careThis guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
Cardiovascular Disease Outcomes StrategyThis outcomes strategy published by the Department of Health identifies ten key actions for local authority and NHS commissioners and providers to deliver improvements in patient outcomes.
Best practice for commissioning diabetes servicesThis guidance published by Diabetes UK aims to help commissioners understand the nature of integrated diabetes care, why it is so important and to provide a signpost to other documents that will be of help in the commissioning process.
RCGP Commissioning Guidance in End of Life CareThis guidance offers a logical six-step framework and overview to support GP commissioners to deliver practical improvements in end of life care, aligned with national policy and quality standards.
Dementia FriendsDementia Friends is an Alzheimer’s Society initiative that aims to give a million people a better understanding of dementia by 2015.
Handy guide to selecting a care homeThis guide published by the Alzheimer’s Society is designed to be taken into care homes by people with dementia and their families and provides an independent and objective guide to what makes good quality care.
Dementia diagnosis resource packThis resource pack produced by Dementia Partnerships sets out key steps for Commissioners and General Practices to improve the diagnosis of dementia, and diagnosis pathways.
Implementing local diabetes networksImplementing Local Diabetes Networks, published by Diabetes UK, is for commissioners to explain the importance and composition of a local diabetes network.
Supporting people with dementia at homeThis training resource published by the Alzheimer’s Society aims to help homecare workers provide excellent person centred support for people with dementia who are living at home.
How would I know? What can I do?This guide, developed by the National Council for Palliative Care (NCPC), provides advice for carers and those who work with people with dementia on how to help with pain and distress in people with the condition.
Dementia READ codesThis knowledge summary produced by Dementia Partnerships defines a standard set of READ codes for the diagnosis of dementia to be used by general practices and memory assessment services.
Hospital 2 Home resource packThis resource is designed to make it easier for health and social care professionals involved in hospital discharge to support older patients in returning home safely after a hospital stay and reduce the risk of readmission to hospital.
Find me good careThis website developed by the Social Care Institute for Excellence (SCIE) is designed to help people find the right care and support to suit their needs and lifestyle, whether at a time of crisis or as they plan for the future.
Advance care planning toolkitThis toolkit developed by the National End of Life Care Programme (NEoLCP) aims to help care providers approach the advance care planning process with confidence and knowledge.
Commissioning person-centred end of life careThis toolkit published by the National End of Life Care Programme identifies the main elements involved in the commissioning process, explains the commissioning cycle in practical terms and offers a four-stage approach across all sectors.
Taking medication ‘just like that’This campaign led by the British Heart Foundation (BHF) aimed to remind people how vital heart medicines and raise awareness that millions of people could be putting their lives in danger by not taking their medicines as prescribed.
The Right Prescription: resource packThis resource pack will support pharmacists, who play a crucial role in medicines optimisation, to have critical conversations about the prescription of antipsychotics in dementia and reduce inappropriate prescribing.
Moving and walking aboutThis Alzheimer's Society factsheet explains some of the reasons why a person with dementia may walk about and looks at what you can do to help.
New models of care for dementiaThis report proposes a new understanding of the dementia journey and a revised model of care for dementia, aimed at improving experiences and outcomes, and informing service redesign and commissioning.
Dementia commissioning for quality and innovationDementia commissioning for quality and innovation (CQUIN) aims to help identify patients with dementia and other causes of cognitive impairment, alongside their other medical conditions and to prompt appropriate referral and follow up after they leave hospital.
What is Alzheimer’s disease?Alzheimer's disease is the most common cause of dementia, affecting around 496,000 people in the UK. This Alzheimer's Society factsheet outlines the symptoms and risk factors for Alzheimer's disease, and describes what treatments are currently available.
The later stages of dementiaDuring the later stages of dementia most people will become increasingly frail due to the progression of the illness. They will also gradually become dependent on others for all of their care.
What is vascular dementia?Vascular dementia is the second most common form of dementia after Alzheimer's disease. This Alzheimer's Society factsheet outlines the causes, symptoms and treatments available for vascular dementia.
Making involvement countThe Making involvement count resource pack is made up 18 cards each aimed at giving specific information, advice and top tips to support people with dementia to get involved in activities whilst recognising their current abilities.
Reducing the use of antipsychotic drugsThis leaflet is for people with dementia and their carers who want to know more about behavioural and psychological symptoms of dementia and how they can be prevented and treated.
Commissioning End of Life Care: Act & EarlyThis guidance published by the National Council for Palliative Care aims to help healthcare commissioners to prioritise early action on end of life care to ensure people’s choices are met and to avoid unnecessary emergency hospital admissions.
Dementia awareness resource packThis pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.
Diabetes in adults quality standardThis NICE quality standard defines clinical best practice for diabetes care. It provides specific, concise quality statements, measures and audience descriptors to provide patients and the public, health and social care professionals, commissioners and service providers with definitions of high-quality care.
Unusual behaviourThis factsheet produced by the Alzheimer’s Society outlines some typical sorts of unusual behaviour in people with dementia and explains some common causes.
Befriending works: building resilience in local communitiesThis report published by the Mentoring and Befriending Foundation provides an overview of how befriending can contribute to improving the health and well-being outcomes of vulnerable people at risk of social isolation or exclusion from mainstream society.
What about me? Remembering the needs of carersThis short leaflet published by Marie Curie Cancer Care is a good starting point for anyone working in health, social care or other setting who is likely to come into contact with people approaching the end of life and their carers.
End of life care for people with dementia commissioning guideThis commissioning guide provides support for the local implementation of NICE clinical guidelines through commissioning, and is a resource to help statutory and voluntary health and social care professionals in England to commission integrated end of life care (EOLC) services for people with dementia.
Diabetes and your heartThis booklet is for people who have diabetes, and for their families and friends. It may also be useful if you don’t have diabetes but you have been told you may develop it in the future.
This is me'This is me' is a leaflet produced by the Alzheimer's Society to help hospital staff better understand the needs of people with dementia.
Dementia: ethical issuesThis report published by the Nuffield Council on Bioethics presents an ethical framework to help practitioners who face dilemmas in connection with the everyday care of someone with dementia.
Supporting Family Carers of People with Learning DisabilitiesThis resource pack produced by the Foundation for People with Learning Disabilities and the Sharing Caring Project at Sheffield Mencap supports practitioners to develop and provide the best information and support to family carers of people with learning disabilities.
Dementia and People with Learning DisabilitiesThis document jointly published by the Royal College of Psychiatrists and the British Psychological Society provides guidance on the assessment, diagnosis, treatment and support of people with learning disabilities who develop dementia.
Dementia patient decision aidThis decision aid is intended to assist health professionals considering prescribing acetylcholinesterase inhibitor medication (donepezil, galantamine or rivastigmine) for patients to improve symptoms of dementia and reduce the rate of decline in mental function.
Making decisions: who decides when you can’t?This guidance published by the Office of the Public Guardian explains how the Mental Capacity Act 2005 affects anyone who is unable to make some or all decisions for themselves. It provides advice to help people to plan ahead in case they are unable to make and understand decisions in the future.
Improving services and support for people with dementiaThis report published by the National Audit Office presents findings from a study into the health and social care services available for people with dementia and their unpaid carers in England and whether they are providing effective and good quality support; and the scope for better use of resources against a background of rising demand.
Dementia UKThis report into the prevalence and cost of dementia shows that as the UK's population ages the number of people with dementia will grow substantially. It also shows that dementia costs the UK £17 billion a year.