DementiaRoadmap

This handbook published by the Lewy Body Society aims to help people with Lewy body dementia (LBD), their families and health care professionals learn more about the disease and find ways and resources to help them cope with it.

It explains what is known about the different types of LBD and how they are diagnosed. Most importantly, it describes how to treat and manage this difficult disease, with practical advice both for people with LBD and their carers.

Download Information about Lewy Body Dementia

Lewy body dementia (LBD) is a complex, challenging and common brain disorder. It is complex because it affects many parts of the brain in ways that scientists are trying to understand more fully. It is challenging because its many possible symptoms make it difficult for the patient to do everyday tasks that once came easily and difficult also for a doctor to diagnose.

Although less known than Alzheimer’s and Parkinson’s diseases, LBD is not a rare disorder. It accounts for about 20% of all dementia cases. Approximately 125,000 people in the United Kingdom suffer from its disabling effects upon their ability to think and act. Taking into account families and/or other carers who have to deal with the disease, it probably affects the lives of at least half a million people in the UK.

As researchers seek better ways to treat LBD – and ultimately to find a cure – people with LBD and their families struggle from day to day to get an accurate diagnosis, find the best treatment and manage the disease at home.