DementiaRoadmap

Helping primary care to support people with dementia

Journey of Caring: An analysis of long-term care for dementia

September 19 2013
Journey of Caring: An analysis of long-term care for dementia

This report published by Alzheimer’s Disease International, reveals that number of older people dependent on care will rise threefold to 277 million worldwide in the next thirty years and almost half of those people will be living with dementia. The report highlights the importance of helping people with dementia to remain independent and living in their own homes as part of the local community for as long as possible.

Download Journey of Caring: An analysis of long-term care for dementia

Long-term care is mainly about care for people with dementia; around half of all older people who need personal care have dementia, and 80% of older people in nursing homes are living with dementia. The worldwide cost of dementia care is currently over US$600 billion, or around 1% of global GDP.

Recommendations

  • Governments around the world should make dementia a priority by implementing national plans, and by initiating urgent national debates on future arrangements for long-term care
  • Systems should to be in place to monitor the quality of dementia care in all settings – whether in care homes or in the community
  • Autonomy and choice should be promoted at all stages of the dementia journey, prioritising the voices of people with dementia and their caregivers
  • Health and social care systems should be better integrated and coordinated to meet people’s needs
  • Front-line caregivers must be adequately trained and systems will need to be in place to ensure paid and unpaid carers receive appropriate financial reward in order to sustain the informal care system and improve recruitment and retention of paid carers
  • Care in care homes is a preferred option for a significant minority – quality of life at home can be as good, and costs are comparable if the unpaid work of family caregivers is properly valued
  • The quality of care in care homes should be monitored through the quality of life and satisfaction of their residents, in addition to routine inspections, as care homes will remain an important component of long-term care.

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