Helping primary care to support people with dementia

Supporting people with co-morbidities

June 21 2016

Many people live with both dementia and other health conditions, known as co-morbidities. We have published a collection of content under the new topic of ‘Co-morbidities’ on the Dementia Roadmaps to support health and social care practitioners to provide holistic and person-centred care for this growing body of people.

Bladder and bowel health

Bladder and Bowel Foundation

The Bladder and Bowel Foundation is the UK wide charity for people with bladder and bowel control problems. It provides information and support services, including a confidential helpline, for anyone affected by these conditions as well as their families, carers and healthcare professionals.

Continence Product Advisor

The Continence Product Advisor is a website providing evidence-based guidance on how to select appropriate products for managing incontinence and use them effectively.


Macmillan Cancer Support

Macmillan Cancer Support is a national charitable organisation that provides practical, medical and financial support and push for better cancer care.

Marie Curie Cancer Care

Marie Curie Cancer Care is a UK charity dedicated to the care of people with terminal illnesses.

10 Top Tips for supporting carers of people living with cancer

This guidance produced by Macmillan Cancer Support offers some top tips for primary care practitoners to support carers of people living with cancer.

Improving cancer patient experience: A top tips guide

This guide published by Macmillan Cancer Support provides top tips to support professionals make service improvements in response to the National Cancer Survey and deliver improved patient experience.

Cancer Delivery Support Tool

The Cancer Delivery Support Tool developed by Macmillan Cancer Support is an electronic support tool to assist GPs and Health Professionals to make an early diagnosis of five types of cancer: Oesophageal, Pancreatic, Ovarian, Colorectal and Lung.

Improving the quality of cancer care in primary care

This toolkit developed by Macmillan Cancer Support aims to support the primary care professionals to develop initiatives and programmes which have a positive impact on the care of people daiagnosed with cancer, their families and carers.

Cancer information factsheetsJune 17, 2014These factsheets published by Macmillan Cancer Support cover a variety of topics relating to cancer, such as chemotherapy drugs, less common cancer types and practical issues for cancer care professionals.


Carers services guide – Setting up support services for carers

This guide published by Help the Hospices provides a framework for organisations planning to set up support services for carers of people with life-limiting and terminal illnesses.

Recognised, valued and supported: Next steps for the Carers Strategy

This strategy identifies the actions that the Government will take between 2011-15 to support its priorities to ensure the best possible outcomes for carers and those they support.

What about me? Remembering the needs of carers

This short leaflet published by Marie Curie Cancer Care is a good starting point for anyone working in health, social care or other setting who is likely to come into contact with people approaching the end of life and their carers.


Diabetes UK

Diabetes UK is a leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes.

Improving the delivery of adult diabetes care through integration

This report published by Diabetes UK explains how diabetes care can be improved to achieve better outcomes for people with diabetes. The challenge for commissioners and healthcare providers locally is to make the system work to support that.

National Diabetes Audit

The National Diabetes Audit (NDA) is a major national clinical audit, which measures the effectiveness of diabetes healthcare against NICE Clinical Guidelines and NICE Quality Standards, in England and Wales.

Diabetes sample service specification

The service specification, published by NHS England, outlines the provision of high quality care for all those with diabetes. It describes all the services needed to provide a complete care pathway for people with diabetes.

Diabetes care planning review

Practitioners should provide an annual care planning review to all people with diabetes to ensure that each patient gets the right support for managing their diabetes. This short film produced by Diabetes UK aims to help patients to understand what care planning is, and how they can get more involved in their diabetes care.

Diabetes care pathway

This NICE care pathway defines clinical best practice for diabetes care. It covers managing type 1 and type 2 diabetes.

Diabetes Risk Score

The Diabetes Risk Score is an assessment tool which aims to identify individuals with impaired glucose regulation (IGR) and is designed to predict an individual’s risk of developing Type 2 diabetes within the next ten years. It was developed by University of Leicester and University Hospitals of Leicester NHS Trust in collaboration with Diabetes UK.

Best practice for commissioning diabetes services

This guidance published by Diabetes UK aims to help commissioners understand the nature of integrated diabetes care, why it is so important and to provide a signpost to other documents that will be of help in the commissioning process.

Implementing local diabetes networks

Implementing Local Diabetes Networks, published by Diabetes UK, is for commissioners to explain the importance and composition of a local diabetes network.

Diabetes and your heart

This booklet is for people who have diabetes, and for their families and friends. It may also be useful if you don’t have diabetes but you have been told you may develop it in the future.

Diabetes in adults quality standard

This NICE quality standard defines clinical best practice for diabetes care. It provides specific, concise quality statements, measures and audience descriptors to provide patients and the public, health and social care professionals, commissioners and service providers with definitions of high-quality care.

End of life care

Duty to Care? Supporting and involving unpaid carers of people at the end of life

This resource covers the three plenary discussion sessions at the ‘Duty to Care?’ conference held in 2013 facilitated by the National Council for Palliative Care. Three detailed scenarios were debated to help identify and explore the practical issues involved in being or supporting a carer.

Life After Death: Six steps to improve support in bereavement

This briefing paper published by the National Council for Palliative Care identifies six steps to address bereavement as a major public policy issue.

ICD deactivation at the end of life: Principles and practice

Designed for any health professionals involved in caring for patients with an Implantable Cardioverter Defibrillator (ICD), this document discusses issues relating to ICDs in the management of advanced heart disease.

Committed to carers: Supporting carers of people at the end of life

This report published by the Marie Curie Cancer Care draws on the direct experiences of people caring for someone at the end of life and on Marie Curie Cancer Care’s years of expertise of caring for carers.

Eye health

A proposal for a UK dementia eye care pathway

This article published in the journal Optometry in Practice introduces a proposal for a UK dementia eye care pathway and outlines the areas that should be covered within a pathway.

Wearing glasses with dementia factsheet

This factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.

Eye examinations for people with dementia factsheet

This factsheet provides information on eye examinations for people with dementia. It will be useful for people with dementia, their families, carers and professionals.


Dementia rarely travels alone: living with dementia and other conditions

This report published by the All Party Parliamentary Group (APPG) on Dementia examines the scale of difficulty faced by people living with both dementia and other health conditions, and how the health and social care system can provide holistic, person-centred care and support for this growing body of people.

Dementia and comorbidities: Ensuring parity of care

This report published by the International Longevity Centre demonstrates that a failure to prevent, diagnose, and treat depression, diabetes and urinary tract infections in people with dementia could be costing the UK’s health and social care system up to nearly £1 billion per year.

Better care for older people

This online resource published by the General Medical Council aims to help doctors challenge the stereotypes associated with older people and tackle the most common concerns older people have about their care.

Heart health

British Heart Foundation

The British Heart Foundation is a UK charity leading the fight against coronary heart disease funding pioneering research to transform the lives of people living with heart and circulatory conditions.

Cardiovascular Disease Outcomes Strategy

This outcomes strategy published by the Department of Health identifies ten key actions for local authority and NHS commissioners and providers to deliver improvements in patient outcomes.

Taking medication ‘just like that’

This campaign led by the British Heart Foundation (BHF) aimed to remind people how vital heart medicines and raise awareness that millions of people could be putting their lives in danger by not taking their medicines as prescribed.

Echocardiography guidelines for valve quantification

This poster contains guidelines for echocardiography valve quantification developed by the Education Committee of the British Society of Echocardiography.

Learning Disabilities

British Institute of Learning Disabilities

British Institute of Learning Disabilities (BILD) wants people with learning disabilities to be valued equally, participate fully in their communities and be treated with dignity and respect.

Foundation for People with Learning Disabilities

The Foundation for People with Learning Disabilities influences government and local authority policies and services so that they better meet the needs of people with learning disabilities, their families and carers.

The National Valuing Families Forum

The National Valuing Families Forum brings together a network of regional family carer organisations to consult and feed into government policy and legislation affecting those with learning disabilities and their families.

Dementia and People with Intellectual Disabilities: Guidance on their Assessment, Diagnosis, Interventions and Support

This guidance published by the British Psychological Society aims to promote effective and timely assessment, diagnosis, interventions and support to people with intellectual disabilities who develop dementia.

Thinking Ahead: a planning guide for families

This guidance, published by the Foundation for People with Learning Disabilities, provides a clear framework to help the families of people with learning disabilities plan for the future and address the concerns they have.

Guidance for Learning Disability Partnership Boards

This booklet offers guidance to Learning Disability Partnership Boards to help them ensure that carers of people with learning disabilities, and carers with learning disabilities are supported and involved in local service developments which affect their lives, and the lives of the people they care for.

Supporting Family Carers of People with Learning Disabilities

This resource pack produced by the Foundation for People with Learning Disabilities and the Sharing Caring Project at Sheffield Mencap supports practitioners to develop and provide the best information and support to family carers of people with learning disabilities.


Parkinson’s UK

Parkinsonism is a feature associated with some dementias, particularly Parkinson’s dementia and dementia with Lewy bodies. Parkinson’s UK offers support for patients and carers, including excellent advice on coping with daily activities.

Self Management

Self Management UK

Self Management UK provide support and advice for people living with a long term health condition, such as asthma, diabetes, heart disease, COPD, arthritis and chronic pain.

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