DementiaRoadmap

Helping primary care to support people with dementia

Involvement

Getting involved in reviewing and planning services is an important way in which individuals and carers can contribute to improving services. Experiences and views are valuable in shaping future services.

Dementia Advisors or the local Healthwatch office can advise on opportunities and contacts. The Alzheimer’s Society offers a range of involvement opportunities for people with all types of dementia.

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Resources
Groups

Resources

  • Living with Dementia – 51 Tips to Help You With Daily LivingJune 26 2019In this in-depth infographic and article UK Care Guide offers a range of tips of advice to help people to live well with dementia.
  • Music for Dementia 2020April 12 2019Music for Dementia 2020 is campaigning to make music free for people living with dementia by 2020. Led by The Utley Foundation, the campaign is a direct and positive response to the Commission into Dementia and Music report 'What would life be – without a song and dance, what are we?'.
  • Turning up the volume: unheard voices of people with dementiaJanuary 18 2018This report published by the Alzheimer’s Society brings together views of more than 3,500 people with dementia, carers and the public on what it is like to live with dementia.
  • Evaluation of the Bradford Dementia Friendly Communities ProgrammeSeptember 16 2015This report published by the Joseph Rowntree Foundation identifies the distinctive features of the Bradford Dementia Friendly Communities programme, and examines how people with dementia can influence what a Dementia Friendly Bradford should be like.
  • Peer Support for People with Dementia: A social return on investment studyThis report published by the Health Innovation Network South London, the Academic Health Science Network for South London, outlines the findings of a study which demonstrated that the positive social value of peer support groups for people with dementia, their carers and volunteers can be far greater than the investment.
  • How can we make our cities dementia friendly?September 3 2015This briefing paper published by the Joseph Rowntree Foundation contributes to the emerging evidence base for Dementia friendly communities by drawing out the key messages from independent evaluations of their work programmes in Bradford and York.
  • Developing a national user movement of people with dementiaThis report published by the Joseph Rowntree Foundation explores the learning from the Dementia Engagement and Empowerment Project (DEEP), a national network that engages and empowers people with dementia to influence the services and policies that affect them.
  • Evaluation of the York Dementia Friendly Communities ProgrammeThis report published by the Joseph Rowntree Foundation identifies the distinctive features of the York Dementia Friendly Communities programme, which promotes a range of innovative projects. It looks at how people with dementia have been involved in shaping the programme.
  • Dementia DiariesJune 4 2015Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • Women’s experiences of dementiaJune 1 2015The 'Women's experiences of dementia' website contains a wealth of stories which highlight the experiences of women affected by dementia.
  • Dementia Peer Support Resource PackApril 24 2015This resource pack, published by the Health Innovation Network, the Academic Health Science Network for South London, aims to promote and encourage more peer support opportunities for people with dementia.
  • Prime Minister’s challenge on dementia 2020February 21 2015The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • Reading well books on prescription for dementiaFebruary 4 2015The Reading well books on prescription for dementia scheme is available in public libraries as part of a national library strategy to support the development of dementia-friendly communities and build understanding and awareness of the condition.
  • Collaborative Care and Support Planning: an introductionJanuary 19 2015This animation, commissioned by the Royal College of General Practitioners, sets out the collaborative care and support planning process in a short, easy to understand way.
  • Supporting a person with dementiaOctober 16 2014This Easy Read factsheet published by the the Alzheimer's Society provides advice for someone with learning disabilities who may have a friend or relative with dementia.
  • Building on the National Dementia Strategy: Change, progress and prioritiesJuly 27 2014This report published by the All Party Parliamentary Party Group on Dementia (APPG) calls for a new long term strategy for dementia to be a worthy successor to the National Dementia Strategy for Dementia in England and the Prime Minister's challenge on dementia.
  • Dementia: A state of the nation report on dementia care and support in EnglandNovember 29 2013This report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
  • QS30: Supporting people to live well with dementiaApril 3 2013This quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Dementia FriendsFebruary 21 2013Dementia Friends is an Alzheimer’s Society initiative that aims to give a million people a better understanding of dementia by 2015.
  • Making involvement countOctober 7 2011The Making involvement count resource pack is made up 18 cards each aimed at giving specific information, advice and top tips to support people with dementia to get involved in activities whilst recognising their current abilities.
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Groups

  • Singing for the Mind – Hartley WintneyThese singing sessions run by Hartley Wintney Voluntary Care Group are available weekly on a Thursday afternoon from 1:30 - 3:00 pm at Hartley Wintney Football Club, Green Lane, Hartley Wintney, Hook, Hampshire, RG27 8DL. Hartley Wintney Football Club, Green Lane, Hartley Wintney, Hook, Hampshire, RG27 8DLhttp://www.hartleywintneyvoluntarycare.org.uk/community/hartley-wintney-voluntary-care-group-13302/singing-for-the-mind/
  • Admiral Nurse Dementia HelplineThe Admiral Nurse Dementia Helpline is for anyone with a question or concern about dementia. From looking out for the first symptoms of Alzheimer’s, to understanding the challenges of living with someone with vascular dementia, Admiral Nurses have the knowledge and experience to understand the situation and suggest answers that might be hard to find elsewhere.2nd Floor, Resource for London, 356 Holloway Road, London, N7 6PA0845 257 9406https://www.dementiauk.org/information-support/admiral-nursing-direct/
  • Dementia AdventureDementia Adventure is a registered charity dedicated to supporting people with dementia to get outdoors, connect with nature, themselves and their community, and retain a sense of adventure in their lives.Unit 11, Old Park Farm, Main Road, Ford End, Essex, CM3 1LN01245 237548 http://www.dementiaadventure.co.uk/
  • Race Against DementiaRace Against Dementia is an alliance of groups currently providing information and support to people from Black, Asian and minority ethnic communities in the UK.Stamford Hill, London, N16 5TJhttp://www.raceagainstdementia.com
  • ThriveThrive is the leading charity in the UK using gardening to change the lives of disabled people. Thrive run structured programmes of activities for people with dementia which focus on positive reminiscence, re-connecting with others including friends and family and gentle appropriate exercise and cognitive stimulationThe Geoffrey Udall Centre, Beech Hill, Reading, Berkshire, RG7 2AT0118 988 5688http://www.thrive.org.uk/
  • HealthwatchHealthwatch England is the national consumer champion in health and care. We have significant statutory powers to ensure the voice of the consumer is strengthened and heard by those who commission, deliver and regulate health and care services.Skipton House, 80 London Road, London, SE1 6LH03000 683 000http://www.healthwatch.co.uk
  • RevitaliseRevitalise is a national charity providing short breaks and holidays (respite care) for disabled people and carers. We also offer inspirational opportunities for volunteers through one of the largest, most diverse volunteer programmes in the UK.212 Business Design Centre, 52 Upper Street, London, N1 0QH0303 303 0147http://revitalise.org.uk/
  • Woking Wellbeing CentreDrop by on a Monday when staff will be on hand to assist you. Alternatively you can book an appointment for any other time or for further information please call 01483 743558.45 Broadway, Knaphill, Woking, GU21 2SP01483 743558http://new.surreycc.gov.uk/social-care-and-health/care-and-support-for-adults/health-and-wellbeing/mental-health/wellbeing-centres#woking
  • Woking Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk/
  • Woking Day CentreThe day care and support service provides care and support in a safe and comfortable group setting. Stimulating activities are based on people's individual needs and interestsBradbury Centre Smiles Place, Lavender Road, Woking, GU22 8BJ01483 753651http://www.alzheimers.org.uk/
  • Woking Carers support groupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.Bradbury Centre Smiles Place, Lavender Road, Woking, GU22 8BJ01932 855582http://www.alzheimers.org.uk
  • Weybridge Forget Me Not cafeThe Dementia Cafe provides information about living with dementia and other services available locally in an informal and comfortable environment. A Dementia Cafe is also a place to relax socialise and meet other people with dementia and their carers.Weybridge Day Centre, Churchfield Place, Weybridge, KT13 8BZ01932 855582
  • West Elmbridge Dementia SupportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk/
  • Waverley Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk/
  • The Tuesday ClubActivity groups give people affected by dementia the opportunity to take part in structured activities. Run by a facilitator who encourages and supports people to take part the groups are also a chance to relax and socialise.United Reformed Church, Woodmansterne Lane, Banstead, SM7 3EX01932 855582
  • The Orchard Day CentreThe day care and support service provides care and support in a safe and comfortable group setting. Stimulating activities are based on people's individual needs and interestsThe Orchard Day Centre, Staines Lane, Chertsey, KT16 8PS01932 565242
  • Surrey Heath Wellbeing CentreThe main centre which the wellbeing centre is attached to provides day care for pensioners of the borough including a bathing service two course hot lunch and a programme of activities and entertainment.Windle Valley Centre, Park Street, Bagshot, GU19 5AQ01276 479185http://new.surreycc.gov.uk/social-care-and-health/care-and-support-for-adults/health-and-wellbeing/mental-health/wellbeing-centres#surreyheath
  • Surrey Heath Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk
  • Spelthorne Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk/
  • Spelthorne Carers Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.Greeno Centre, Glebeland Gardens, Shepperton, TW17 9DH01932 855582http://www.alzheimers.org.uk/
  • Runnymede Wellbeing CentreThis is a free deep relaxation class for carers which works by releasing tension with gentle floor based therapy. There is no fee and is suitable for all ages and abilities. This a small friendly group with no need to book.Manor Farm Centre, Manor Farm Lane, Egham, TW20 9HR01784 444214http://new.surreycc.gov.uk/social-care-and-health/care-and-support-for-adults/health-and-wellbeing/mental-health/wellbeing-centres#runnymede
  • Runnymede Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk/
  • Runnymede Carers Information programmeThe Carer Information and Support Programme 2 is for carers family members and friends of people who have been living with dementia for some time. Topics covered include: understanding how dementia progresses and living well with dementia.The Orchard Day Centre, Staines Lane, Chertsey, KT16 8PS01932 855582
  • Reigate and Banstead North Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk/
  • Peer support groupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.The Key Centre, Elvetham Heath, Fleet, GU51 1HA01256 363393http://www.alzheimers.org.uk
  • New Haw Forget Me Not cafeThe Dementia Cafe provides information about living with dementia and other services available locally in an informal and comfortable environment. A Dementia Cafe is also a place to relax socialise and meet other people with dementia and their carers.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk/
  • Mole Valley North Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk/
  • Haslemere Day CentreThe day care and support service provides care and support in a safe and comfortable group setting. Stimulating activities are based on people's individual needs and interestsMarjorie Gray Hall, Grayswood Road, Haslemere, GU27 2BW01428 642055http://www.alzheimers.org.uk/
  • Haslemere Carers Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.Haslemere District Hospital, Church Lane, Haslemere, GU27 2BJ01932 855582http://www.alzheimers.org.uk/
  • Guildford Wellbeing CentreDrop by and staff will be on hand to assist you.Park Barn Drive, Guildford, GU2 8EN01483 458055http://new.surreycc.gov.uk/social-care-and-health/care-and-support-for-adults/health-and-wellbeing/mental-health/wellbeing-centres#guildford
  • Guildford Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk
  • Guildford Carers Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.83 Portsmouth Road, Guildford, GU2 4BS01932 855582http://www.alzheimers.org.uk/
  • Guildford Carers Information programmeThe Carer Information and Support Programme 1 is a series of sessions for carers family and friends of people recently diagnosed with dementia. Topics include: understanding dementia legal and money matters support and care and coping with dementia day to day.83 Portsmouth Road, Guildford, GU2 4BS01932 855582http://www.alzheimers.org.uk/
  • GimmmicksThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.Bradbury Centre Smiles Place, Lavender Road, Woking, GU22 8BJ01932 855582http://www.alzheimers.org.uk/
  • Frimley Carers Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.The Ridgewood Centre, Old Bisley Road, Frimley, Camberley, GU16 9QE01932 855582http://www.alzheimers.org.uk/
  • Farnham Dementia cafeThe Dementia Cafe provides information about living with dementia and other services available locally in an informal and comfortable environment. A Dementia Cafe is also a place to relax socialise and meet other people with dementia and their carers.Cobgates Falkner Road, Farnham, GU9 7HG01932 855582http://www.alzheimers.org.uk/
  • Epsom Walking GroupA monthly walking group for people with early stage dementia who have insight into their condition and are physically able.The Rubbing House, Epsom Downs, Epsom, KT18 5LJ01932 855582
  • Epsom Singing for the BrainSinging for the Brain brings people together in a friendly fun and social environment. Based around the principles of music therapy the stimulating sessions include vocal warm-ups and singing a wide variety of familiar and new songs.Wells Centre, Spa Drive, Epsom, KT18 7LR01932 855582http://alzheimers.org.uk
  • Epsom and Ewell Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582http://www.alzheimers.org.uk/
  • Epsom and Ewell Carers Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.Longmead Day Centre, Sefton Road, Epsom, KT19 9HG01932 855582http://www.alzheimers.org.uk
  • Egham Carers Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.Runnymede Wellbeing Centre, Manor Farm Lane, Egham, TW20 9HR01932 855582
  • East Elmbridge Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582
  • Dementia support – Blackwater ValleyDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.Ground Floor Room 38, Chequers Road, Basingstoke, RG21 7PU01256 363393http://www.alzheimers.org.uk
  • Cranleigh Dementia supportDementia support workers offer information and practical guidance to help people understand dementia cope with day-to-day challenges and prepare for the future. They offer support face to face over the phone or in writing.65 Woodham Lane, New Haw, KT15 3ND01932 855582
  • Claygate Carers Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Claygate Community Centre, Elm Road, Claygate, KT10 0EJ01932 855582http://www.alzheimers.org.uk/MidSurrey
  • Banstead Dementia cafeThe Dementia Cafe provides information about living with dementia and other services available locally in an informal and comfortable environment. A Dementia Cafe is also a place to relax socialise and meet other people with dementia and their carers.Banstead Civic Centre, The Horseshoe, Banstead, SM7 2BQ01932 855582
  • Banstead Carers Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.Banstead Civic Centre, The Horseshoe, Banstead, SM7 2BQ01932 855582http://www.alzheimers.org.uk
  • Ashtead Carers Support GroupThe peer support group gives people the opportunity to meet with others who understand some of what they are going through. Run by a facilitator the sessions offer a chance to ask questions get information and share experiences in a safe and supportive environment.St.Georges Christian Centre, Barnett Wood Lane, Ashtead, KT21 2DA01932 855582
  • Mole Valley Wellbeing CentreDrop by on a Tuesday when staff will be on hand to assist you. The Wellbeing Centre provides a space where people can come along with their carer and be engaged in memory related activities. Please contact to see what is on.Swan Court, 34 Leret Way, Leatherhead, KT22 8AH01372 376058http://www.molevalley.gov.uk/wellbeing
  • The Conservatory ClubRun by the Mid Surrey Dementia Care Trust the club is a facilitated self-help club providing a stimulating environment for those with memory difficulties and respite for those who care for them. Fairfield Day Centre, Swan Court, 34 Leret Way, High Street, Leatherhead, KT22 8AH01372 376058http://www.midsurreydementiacare.co.uk/
  • Activity groupActivity groups give people affected by dementia the opportunity to take part in structured activities. Run by a facilitator who encourages and supports people to take part the groups are also a chance to relax and socialise.Bourne Court Manor Road, Aldershot, GU11 3DG01256 363393http://www.alzheimers.org.uk
  • Arts 4 DementiaArts 4 Dementia helps develop activities at arts venues to re-energise and inspire people in the early stages of dementia and their carers. The Music Base, King's Place, 90 York Way, London, N1 9AG020 7520 1492https://www.arts4dementia.org.uk/
  • The Reading AgencyThe Reading Agency is a charity working to inspire more people to read more, encourage them to share their enjoyment of reading and celebrate the difference that reading makes to all our lives. Free Word Centre, 60 Farringdon Road, London, EC1R 3GA0207 324 2544http://readingagency.org.uk/
  • Dementia Engagement and Empowerment Project (DEEP)The Dementia Engagement and Empowerment Project (DEEP) brings together groups of people with dementia from across the UK. DEEP supports these groups to try to change services and policies that affect the lives of people with dementia.PO Box 616, Exeter, EX1 9JB01392 420076http://dementiavoices.org.uk/
  • Innovations in DementiaInnovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals to develop and test projects that will enhance the lives of people with dementia.PO Box 616, Exeter, EX1 9JB01392 420076http://www.innovationsindementia.org.uk/
  • The Reader OrganisationThe Reader Organisation is a charitable social enterprise working to connect people with literature through shared reading. The older people and dementia work programme uses shared reading to improve quality of life and care for people living with dementia and their carers.Calderstones Mansion House, Calderstones Park, Liverpool, L18 3JB0151 729 2200http://www.thereader.org.uk/
  • Dementia PathfindersDementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.Bushbury Triangle Resource Centre, 74 Stanley Road, Wolverhampton, WV10 9EL01902 556630http://www.dementiapathfinders.org
  • YoungDementia UKYoungDementia UK is a charity based in Oxfordshire that aims to help people whose lives are affected by young onset dementia.PO Box 315, Witney, Oxfordshire, OX28 1ZN01993 776295http://www.youngdementiauk.org/
  • Dementia Action AllianceThe Dementia Action Alliance brings together organisations across England committed to transforming the lives of people with dementia and their carers.Devon House, 58 St Katharine's Way, London, E1W 1LBhttp://www.dementiaaction.org.uk
  • Dementia Research CentreThe Dementia Research Centre, based at the National Hospital for Neurology and Neurosurgery, is one of the UK's leading centres for clinical research into dementia.8-11 Queen Square, London, WC1N 3AR020 3448 4773http://www.ucl.ac.uk/drc/
  • Bradford Dementia GroupBradford Dementia Group is a multi-disciplinary, multi-professional group committed to making a difference to policy and practice in dementia care, through excellence in research, education and training.School of Health Studies, Horton A Building, University of Bradford, Richmond Road, Bradford, BD7 1DP01274 233996http://www.brad.ac.uk/health/career-areas/bradford-dementia-group/
  • Dementia Services Development CentreThe Dementia Services Development Centre is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.Iris Murdoch Building, University of Stirling, Stirling, FK9 4LA, Scotland01786 467740http://www.dementia.stir.ac.uk
  • Alzheimer’s SocietyAlzheimer's Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.Devon House, 58 St Katharine's Way, London, E1W 1LB020 7423 3500http://www.alzheimers.org.uk/
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