DementiaRoadmap

Helping primary care to support people with dementia

Understanding young onset dementia

April 24 2016

‘Young onset dementia’ is a term used by some health and social care professionals to describe dementia when it affects people under 65 years of age. It is also referred to as ‘early onset’ or ‘working age’ dementia.

To support improved understanding about young onset dementia we have recently published a collection of relevant content on the Dementia Roadmaps.

Resources to support young onset dementia

Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onset

This guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life.

Approaching an unthinkable future – Understanding the support needs of people living with young onset dementia

This report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015.

Living with young onset dementia

This video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.

Dementia Diaries

Dementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.

Younger people with dementia

This factsheet published by the Alzheimer’s Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.

How common is dementia?

According to the Alzheimer’s Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.

Unlocking Diagnosis: The key to improving the lives of people with dementia

This report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.

Dementia UK

This report into the prevalence and cost of dementia shows that as the UK’s population ages the number of people with dementia will grow substantially. It also shows that dementia costs the UK £17 billion a year.

Services for younger people with Alzheimer’s disease and other dementias

This briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer’s Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.

Groups to support young onset dementia

Admiral Nursing DIRECT

Admiral Nursing DIRECT is a telephone and email helpline run by experienced Admiral Nurses for family and professional carers, people with dementia and those worried about their memory.

Alzheimer’s Research UK

Alzheimer’s Research UK is a leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias.

Alzheimer’s Society

Alzheimer’s Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland.

Cognitive neurology and dementia centre

The Cognitive neurology and dementia centre at St George’s Hospital is a regional specialist centre for cognitive neuroscience and dementia, that works closely with other hospitals from across South West London, Surrey, Sussex and Hampshire, and with GPs, community nursing teams, mental health services and social services.

Dementia Pathfinders

Dementia Pathfinders CIC is a social enterprise delivering therapeutic care and support for people with dementia and their families, and programmes of education and learning for people working in the dementia care field.

Dementia UK

Dementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia.

YoungDementia UK

YoungDementia UK is a charity based in Oxfordshire that aims to help people whose lives are affected by young onset dementia.

Share this page