DementiaRoadmap

Helping primary care to support people with dementia

Worried about your memory

For anyone concerned about their own, or someone else's memory, it is important to visit their GP or to seek help from relevant local organisations e.g. Alzheimer’s society, Wellbeing Centre.

GPs and primary health care teams are often the first port of call for people worried about their memory, and are a gateway to timely diagnosis and interventions. Dementia is progressive so it is important to obtain a diagnosis and understand about the support and treatments that are available to stabilise / improve symptoms that start affecting day to day life. The GP will carry out an initial assessment and may refer to a consultant for further specialist assessment either in primary care or a memory clinic.

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Resources

  • Delirium awareness videoDelirium in older adults often goes unrecognised by health care professionals and can be poorly managed. This video was produced with the aim of improving recognition and management of delirium in any healthcare setting.
  • Health matters: midlife approaches to reduce dementia riskThis guidance published by Public Health England makes the case for action in midlife to promote healthy lifestyles that can reduce the risk of dementia.
  • Prime Minister’s Challenge on Dementia 2020 Implementation PlanThis implementation plan outlines how the 50 commitments set out in the Prime Minister’s challenge on dementia 2020 will be met, ensuring that England becomes the world-leader in dementia care, research and awareness by 2020.
  • The dementia profileThe dementia profile developed by the Dementia Intelligence Network collects new and existing data on dementia at both Clinical Commissioning Group and local authority level. This will assist the local planning of services and support areas to make sustainable improvements from an easily accessible online platform.
  • The Daily SparkleThe Daily Sparkle is a professionally written daily and weekly reminiscence and activity tool supported by the UK's leading care organisations such as the NHS, AgeUK and DementiaUK.
  • New Forest Dementia Advisers Contacts List & Drop In LocationsThe New Forest Dementia Advice Service can help by providing support and information to people who are concerned about their memory and their carers You can contact the Dementia Advice service yourself, a relative or carer may contact us or you can ask any professional ...
  • Dementia core skills education and training frameworkThis framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • Dementia, disability and frailty in later life – mid-life approaches to delay or prevent onsetThis guidance published by the National Institute for Health and Care Excellence aims to increase the amount of time that people can be independent, healthy and active in later life.
  • Approaching an unthinkable future – Understanding the support needs of people living with young onset dementiaThis report explores the experiences of people living with young onset dementia contacted by Dementia Pathfinders during a social care workforce training project in 2014 and 2015.
  • A practical guide to healthy ageingThis guide published by NHS England and Age UK contains advice to help improve the health and general fitness of people of any age, but it is particularly relevant for people who are about 70 years or older.
  • World Alzheimer Report 2015: The Global Impact of DementiaThe World Alzheimer Report 2015, 'The Global Impact of Dementia: An analysis of prevalence, incidence, cost and trends' makes key recommendations to provide a global framework for action on dementia.
  • Living with young onset dementiaThis video published by the Social Care Institute for Excellence highlights the experiences of younger people being diagnosed and living with dementia.
  • Dementia DiariesDementia Diaries is a national project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.
  • Younger people with dementiaThis factsheet published by the Alzheimer's Society explores at the types of dementia that younger people under 65 years of age may have, some of the difficulties that they might experience and where support can be found.
  • Dementia Advice Service – Andover MindDementia Advice Service for: Andover, Basingstoke, Deane and Alton, Eastleigh, Hart and Rushmoor, Romsey and Winchester www.andovermind.org.uk/dementia-advice/ 01264 353363  Dementia Contact list 2015 (and see below) How can we help? We are a consistent point of contact and support from first diagnosis throughout your journey We ...
  • Dementia Friendly GP PracticesA resource for GP surgeries who want to sign up to becoming more 'Dementia friendly'
  • The Sound Doctor: Getting the best out of life with dementiaA series of films providing information to families living with dementia through the entertaining medium of TV/Film.
  • Prime Minister’s challenge on dementia 2020The Prime Minister recently launched the government’s five year vision for the future of dementia care, support and research, which follows on from the existing Prime Minister’s Challenge on Dementia, launched in March 2012.
  • Wearing glasses with dementia factsheetThis factsheet is about the issues people with dementia who need to wear glasses may face. It will be useful for people with dementia, their families, carers and professionals.
  • World Alzheimer Report 2014, Dementia and Risk ReductionThe World Alzheimer Report 2014, Dementia and Risk Reduction: An analysis of protective and modifiable factors critically examines the evidence for the existence of modifiable risk factors for dementia.
  • Are you worried about Dementia?This leaflet produced by the Lewy Body Society explains the main symptoms and causes of dementia. It also outlines the distinct symptoms associated with Lewy body dementia.
  • How common is dementia?According to the Alzheimer's Society there are around 800,000 people in the UK with dementia. One in three people over 65 will develop dementia, and two-thirds of people with dementia are women.
  • Be head strongThis guidance published by the Alzheimer's Society contains tips to help people reduce the risk of developing dementia.
  • Can dementia be prevented?These web pages on the NHS Choices portal give advice on leading a healthy lifestyle to help lower your risk of developing dementia when you are older.
  • Am I at risk of developing dementia?This factsheet published by the Alzheimer's Society explains what we know about the risks associated with developing different types of dementia, and gives some advice on the steps people can take to reduce their risk.
  • Frontotemporal dementiaThis article published in the British Medical Journal highlights some of the issues pertinent to Frontotemporal dementia, a clinically and pathologically heterogeneous group of non-Alzheimer dementias characterised collectively by relatively selective, progressive atrophy involving the frontal or temporal lobes, or both.
  • QS30: Supporting people to live well with dementiaThis quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Support and care for people living with dementia from minority communitiesThis report outlines recommendations to improve support and care for people with dementia from minority communities in the North East.
  • Unlocking Diagnosis: The key to improving the lives of people with dementiaThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
  • Drugs used to relieve behavioural and psychological symptoms in dementiaThis factsheet produced by the Alzheimer’s Society explores the different types of drugs that can be used to treat these symptoms if non-pharmalogical treatments have not worked.
  • The £20 Billion Question – An inquiry into improving lives through cost-effective dementia servicesThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the the evidence for cost effective models of dementia care. It makes recommendations to focus on early intervention and prevention to reduce early entry to residential care and reduce unnecessary hospital admissions.
  • Dementia awareness resource packThis pack contains a selection of quality assured awareness raising resources designed to promote living well with dementia. The resources include leaflets, factsheets, contact lists and a DVD.
  • Windows of opportunity for prevention and early intervention in dementia toolkitThis online resource, produced by the Social Care Institute for Excellence, will help commissioners and providers to ensure that any help or support offered at any stage in a person’s journey with dementia is offered in a timely way.
  • NICE Clinical guideline CG42 Dementia: supporting people with dementia and their carers in health and social careThis guideline, published by the National Institute for Health and Clinical Excellence (NICE), makes specific recommendations on Alzheimer's disease, dementia with Lewy bodies (DLB), fronto temporal dementia, vascular dementia and mixed dementias, as well as recommendations that apply to all types of dementia.
  • Services for younger people with Alzheimer’s disease and other dementiasThis briefing paper jointly published by the Royal College of Psychiatrists and the Alzheimer's Society provides guidance on the services for younger people with Alzheimer’s disease and other dementias.
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