DementiaRoadmap

Helping primary care to support people with dementia

Dementia support workers

Dementia Support Workers help people with dementia and their carers at the time of diagnosis and during the “dementia journey” to maintain their independence, improve their sense of well-being and take control of their own lives. They may be known as Dementia Advisors or Dementia Navigators.

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  • Dementia: assessment, management and support for people living with dementia and their carersThis NICE guideline covers diagnosing and managing dementia (including Alzheimer’s disease). It aims to improve care by making recommendations on training staff and helping carers to support people living with dementia.
  • How living with dementia could beThis short animated video highlights how living with dementia could be through the 'well pathway for dementia'. It shows the importance of a holistic partnership approach to supporting the person with dementia, their families and carers within local community settings.
  • Immediate post diagnosis support guidanceThis guidance document, published by the London Strategic Clinical Networks, has been created for professionals to support people with dementia and their carers immediately following diagnosis.
  • Dementia advisers surveyThis report published by Ipsos MORI presents the findings of a survey into the provision of dementia adviser services throughout England.
  • Joint declaration on post-diagnostic dementia care and supportThis joint declaration signed by signatories across government, health, social care and the third sector sets out a shared commitment to deliver good quality post-diagnostic dementia care.
  • Support for Living Well with Dementia in EastleighThe Eastleigh Borough Council Website collects together a range of local resources and groups to support individuals living with Dementia. Please follow the link below: Eastleigh Borough Council Resources  
  • Dementia Connect – Information about local servicesAcross Andover, Andover Mind have been doing a huge amount of work to increase awareness and to make Andover a Dementia Friendly Community and offering a Dementia Adviser services. Alzheimer’s Society works across North Hampshire to support people living with dementia and their carers. Alzheimer’s ...
  • New Forest Dementia Advisers Contacts List & Drop In LocationsThe New Forest Dementia Advice Service can help by providing support and information to people who are concerned about their memory and their carers You can contact the Dementia Advice service yourself, a relative or carer may contact us or you can ask any professional ...
  • Dementia core skills education and training frameworkThis framework published by Skills for Health, Health Education England and Skills for Care sets out the essential skills and knowledge necessary for all staff involved in dementia care.
  • Dementia Advice Service – Andover MindDementia Advice Service for: Andover, Basingstoke, Deane and Alton, Eastleigh, Hart and Rushmoor, Romsey and Winchester www.andovermind.org.uk/dementia-advice/ 01264 353363  Dementia Contact list 2015 (and see below) How can we help? We are a consistent point of contact and support from first diagnosis throughout your journey We ...
  • Local contact cardDr Nicola Decker from Oakley and Overton Surgery  found it was useful to collate local resources onto a small card that can be given to patients, carers or staff with the dementia adviser contact number, local carer support and local council contacts.   To create ...
  • The dementia guideThis guide produced by the Alzheimer's Society is for anyone who has recently been told they have dementia.
  • Dementia: A state of the nation report on dementia care and support in EnglandThis report, published by the Department of Health, sets out what is known about dementia care, support and research. It highlights where improvements are being made and where improvements are needed.
  • Peer support networks and dementia advisers: evaluationThis report, published by the Department of Health, provides the findings of the Healthbridge evaluation into the role that dementia advisers and peer support networks can provide in post diagnostic support for people with dementia and their carers.
  • Dementia adviser service: evaluationThis report published by the Alzheimer's Society presents the findings of an evaluation of the Pathfinder Dementia Adviser services from the perspective of service users.
  • CMG48: Support for commissioning of dementia careThis guidance produced by the National Institute for Health and Clinical Excellence (NICE) summarises the key commissioning issues and the resource impact that will arise from implementing improvements in the quality of care for people with dementia, in line with the statements and measures that comprise the NICE quality standards for dementia.
  • QS30: Supporting people to live well with dementiaThis quality standard, published by the National Institute for Health and Care Excellence (NICE), covers the care and support of people with dementia.
  • Ten tips for communicating with a person with dementiaThese top tips produced by the Family Caregiver Alliance will help practitioners and those caring for a person with dementia to improve communication skills and ability to handle the difficult behaviour.
  • Unlocking Diagnosis: The key to improving the lives of people with dementiaThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the barriers to dementia diagnosis in the UK. It makes recommendations to improve diagnosis rates and provide better post diagnosis support for people with dementia.
  • An evaluation of dementia support worker rolesThis report presents an evaluation of existing models of community-based support for people with dementia, their families and carers.
  • Caring, compassionate, skilled – transforming the dementia workforceThis guidance will support commissioners to better understand workforce planning and development issues that may impact staff working with people with dementia and their carers and families.
  • Template action plan to improve care for people with dementia in the communityThis is a template action plan for use by local authorities and commissioning consortia working together under the auspices of Health and Well-being Boards to improve care for those people with dementia who live in their own homes or in some other residential setting.
  • Dementia: ethical issuesThis report published by the Nuffield Council on Bioethics presents an ethical framework to help practitioners who face dilemmas in connection with the everyday care of someone with dementia.
  • Prepared to care – Challenging the dementia skills gapThis report published by the All-Party Parliamentary Group on Dementia (APPG) explores the scale of the challenge in training the caring professions in dementia, and how it may be met.
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